Ugh -- embarrassment!: I took my... - Cure Parkinson's

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Ugh -- embarrassment!

TheresaCurley profile image
25 Replies

I took my granddaughters to the movies to see Muana (Great movie for kids!) and while watching a got a sudden urge to use the bathroom. So I told the kids just to stay while I run to the bathroom (Yeah right run...hahaha). Any way making my way down the line to get to the walk way I lost my balance and feel in a lady's lap. No one hurt. She was very gracious and I was very apologetic and we both laughed....but OH MY LORD I was so embarrassed.

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TheresaCurley profile image
TheresaCurley
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25 Replies
racerCP profile image
racerCP

Has anyone noticed that when the Cd/ld wears off I can drink some beer and feel whole again. In fact, the only time I feel 'normal' is with a small amount of an alcoholic beverage. Has anyone noticed that? Let me assure everyone I am not now nor ever had uncontrollable urge for alcohol or addiction. Why do you think alcoholic beverages work for me?

Astra7 profile image
Astra7 in reply to racerCP

Maybe it helps reduce anxiety?

racerCP profile image
racerCP in reply to Astra7

Certainly.

BUZZ1397 profile image
BUZZ1397 in reply to racerCP

Yes, I have that experience. Wish it was alright to just drink beer all day long. Getting tipsy is tantamount to raising one's dopamine level.

Loss of bladder control is a symptom I am not ready for. When we took our last vacation I expressed my concerns about the flight and my Dr. recommended adult diapers. NOT READY FOR THAT.

andrewij profile image
andrewij in reply to Serenity_finaly-1

The brain prioritises bodily functions, unfortunately bladder function is quite low. As a consequence, Parkinson's patients get a message without warning to go to the toilet. One of the solutions is to go at regular intervals, when you don't think you need to. This may be a bit of a pain, however it is better than wearing incontinence pads. Although, incontinence is a wider problem than people realise, not just within the Parkinson's community. It is not a subject that people can discuss freely, because of the embarrassment.

Bobkat profile image
Bobkat in reply to andrewij

My husband has dealt with bladder problems for the last three years. He had prescriptions and depends. He would get up seven or eight times a night. Finally , someone told me about an external catherter. It has been a God send for both of us. We can sleep through the night . We can also go shopping without having to locate a men's room every half hour. Very easy to use and my husband says it is comfortable.

TheresaCurley profile image
TheresaCurley in reply to Serenity_finaly-1

I have had to deal with it for many years. I went to a urologist and he said I'm not emptying my bladder complete? Don't understand what that has to do with it, but this was years ago and I just now have been diagnosed with PD. I've been wearing protective garments since 2006.

Serenity_finaly-1 profile image
Serenity_finaly-1 in reply to TheresaCurley

I like the term protective garment. Makes me feel like I am wearing a suit of armor.

Enidah profile image
Enidah

That's what I call being caught between a rock and a hard place. You need to hurry because you need to use the bathroom and avoid a possibly even bigger embarrassment, but, let's face it, we don't do too well hurrying anymore. I like what Hal said about this, that it's like our brains throw a circuit breaker. I'm glad no one was hurt and please know that you are not alone in this conundrum.

Beckey profile image
Beckey

That's a classic! You must have been mortified. It's sweet that you both laughed.

Can men do Kegel exercises? They really pay off. You tense that sphincter-like muscle around the urethra. I do 26 whenever think about it (a habit I developed during my second pregnancy, recommended by Dr. Bradley in his book on natural childbirth).

RobertoOcana profile image
RobertoOcana in reply to Beckey

There are two different types of urinary incontinence: STRESS & URGE.

Because the muscles of the pelvic floor on a women are over stretched out during labor and delivery which may lead, later on in life , to urinary stress incontinence. Kegel exercises are to tone the muscles up the overstrech muscles of the pelvic floor. Men, and women that have not had vaginal birth, as a rule do not have stress incontinence.

Urge incontinence is do to some bladder problem and more related to aging. I do not know why, since Dx with pd, I have urge incontinence, that when I have to go I have to go; urological work up is negative, I know that's part of symtomatolgy of pd. I understand constipation but not incontinence

Astra7 profile image
Astra7 in reply to Beckey

You are so right. At least for women they are essential and make s huge difference- especially after childbirth when I discovered that incontinence physios were a thing! They never tell you this before childbirth...

I do them in the shower which gives me an excuse to take a long one.

paddyfields profile image
paddyfields

The problem with going more often is that your bladder capacity will gradually diminish and then you are back to square one. Okay as a temp.solution. There are pills for urgency but I try to do without in the interests of keeping the pill count as low as possible. (italics arrived themselves )

RobertoOcana profile image
RobertoOcana in reply to paddyfields

But you have to put up with side effects of the pills. I rather program myself to Pee every 1 to 2 hours needing or not. The last thing i do when leaving my house or any establishment is emptying my bladder

Carolinagirl123 profile image
Carolinagirl123

I can understand how awful that must have been, but at least the theater was dark:)

TheresaCurley profile image
TheresaCurley in reply to Carolinagirl123

Good point!

honeycombe3 profile image
honeycombe3

Hi Theresa,

You could have been more embarrassed, though it probably didn't seem so at the time. You might have emptied your bladder (happened to me on a railway station platform) in England. Fortunately I had a change of clothes with me OR the 2 occasions I have frozen when on the toilet in public places. Fortunately 1 was the ladies in our local pub & I asked for help from my husband via a stranger through the locked door & 1 was at the hospital where I was rescued by a nurse using the same method.

The joys of PD!

TheresaCurley profile image
TheresaCurley in reply to honeycombe3

I never ever go any place (not even to my kitchen) without a protective garment on.

Pauldmd profile image
Pauldmd

I have been dealing with urinary urgency and frequency for years now. I find that the pain medication I take for my Parkinson's related back pain seems to make the situation worse. When I read your post my first thought was how wonderful that you were able to take your granddaughters to the movies. I find that spending time with my grandchildren is the most rewarding thing I can do. I have had my awkward moments with them because of Parkinson's disease but the enjoyment of spending time with them more than offsets any negatives. I don't remember the last time I sat through a movie from start to finish without having to run to the bathroom.

On a side note, someone asked if men can kegel. A friend of mine recently had prostate surgery. Part of his physical therapy was doing just that to regain control of his bladder.

RobertoOcana profile image
RobertoOcana in reply to Pauldmd

That may happen to men who have had supra pubic prostatectomy with probable injuries to the pelvic floor muscles

Wow I expected a lot of silence when I brought up the subject. It is frustrating because you do not feel the onset, just the I have to go now all of a sudden.

arwenmark profile image
arwenmark

I have had more than one person fall in my lap while I was in my wheelchair, people just turn around when you are behind them. I have also been burned by peoples cigarettes that they swing down from their mouth, or hold at their side.

TheresaCurley profile image
TheresaCurley in reply to arwenmark

Ooooo sorry about that.

Bridielena profile image
Bridielena

If it was me we would both be very wet .....now that would be very embarrassing.

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