My husband of 12 years was diagnosed with Parkinson's four years ago at the age of 51. It was never a definitive diagnosis and depending who we see, I can tell that they have doubts. We're in Canada, so no one will give him a SPECT or PET scan to even attempt to confirm a diagnosis. His on and off episodes are so dramatic I can barely describe them. He is cooking a ham dinner and decorating for Halloween one day and the next he is flat on his back, shaking in bed for two days. This wonder drug Sinemet has sporadic effects on him...sometimes we can't follow a marked improvement after taking them, sometimes it does seem to help a lot. I can't make any sense of this disease. He typically looks amazing at the doctor's office so they all just think I'm nuts. I have video, but neuro refuses to look at it??? Some days he never really fully wakes up...a walking zombie, just going through the motions of life. Neuro Psych gave him Concerta to wake him up which helps a lot, but too much made him really nasty/angry and threatened our relationship for good. My question isn't really about him, but me...How do I live like this forever? He shows no empathy toward me what so ever, as if his actions have no impact on me and our young child, he is apathetic toward life and is a-sexual. I'm also wondering if this might be the early stages of Lewy Body Dementia. He was playing a video game for 16 hours a day when on Neu Pro patch.
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