I think i posyed this in the wrong place but here are my facts: thanks to everyone who replied. this site is amazing. as for my personal life i was a computer specialist/tech for a large school district here in the U.S, almost 17 years. i was in charge of three schools buildings. All the computers, laptops, ipad carts access points, and staff. i walked, lifted and did a lot of heavy work. My supervisor was concerned about my condition as it took over 1 year to get diagnosed with PD. I was walking slow, falling/balance problems and dragging my right side. It was decided that i go out on short term disability which is one year. they have to keep my job (union) available for me till then. that is 66% of my pay. needless to say that has created many financial issues as i am a single mom. My back also started really hurting so saw back surgeon who i know and he referred me to neurologist. one year later they dx PD. i also go to Jefferson hospital in Philadelphia and see a movement disorder specialist. started with neupro patch but that did nothing and kept falling off. started CL about 3x a day 1pill but it started to wear off too soon. tried entacapone made me feel real bad and jittery . so i went to cl controlled release to make it last longer but the wait time to get started was bad so now on 1/2 pill of each 4x a day. movement doctor added azilect but that really didn't do anything so i only take 1/2 in the morning for neuroprotective possibilities. i take NAC twice a day and isradapine channel blocker for my blood pressure switched to this as it is in clinical trials for PD. i have no tremors only slight occasionally while medicine starts to wear off. also my right side starts to drag and hard to walk. i feel it coming on around my mouth and my right lip looks like a stroke but had all kinds of tests everything else is negative. my balance is so bad that i cant do walking as my right leg is impaired even had a achillies tendon tear. i don't know what else to try. my doctors are very well knowledged. and listen to me. they both say i am an exception to regular PD and are open to trying different things. two years later i was back at the back surgeon ho is now sending me to have a lumbar facet joint injection (nerve blocks) and if that works they will do them with heat which last 3 years or more. once again - thank you for all your replies. i think i need to get moving more too.
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