I would like to introduce myself!

Hi, I am Roy and I was diagnosed with PD about 6 years ago but the symptoms had been there for at least 2 years before. My then neurologist put me on Cardiodopa 300mg. My GP thought the side effects outweighed the benefits and we tried homeopathic remedies.At the time I was being treated for high blood pressure and my cardiologist changed my meds to Perindopril/amlodopine without explanation. After a year my muscle stiffness began to be a problem and I was recommended t a different neurologist who put me on Azilect (rasagaline), pramipexol and Madopar (the latter at 250mg per day). A year later this specialist told me he would not think I had PD if he did not already know it . My movements were fluid, the slight tremor in my left foot was seldom present! He was amazed! Until today, my lifestyle has not been seriously affected ( I continue to be an active travel photographer) except when the weather turns hot and humid and when, for a short time, I stopped taking Azilect due to the fact that its high cost is not covered by my state insurance.

I often wondered why I am so fortunate! My PD is not progressing and I have not had to increase meds ever. I once read about the possible beneficial effects of Perindopril. The posts regarding Perindopril are what has drawn my attention to this community!

I wonder if this is indeed a possible explanation.

8 Replies

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  • Welcome to the group Roy. I was just diagnosed three months ago but like you I'm sure I have had PD much longer. I read somewhere that beta blockers that are used for high blood pressure can reduce the tremors but I've never heard of an Ace Inhibitor which Perindopril is, doing that. But then there is a mountain of things I've never heard of so don't go by me. This site has helped me in more ways than I can tell. Being able to talk to people that have PD is invaluable.

  • Welcome aboard, Royzluk. Your story is an encouraging and heartening one. Please stay active.

    Your job as a traveling photographer sounds like an interesting life. Have you ever been to Madison County, Iowa???

  • So let me get this straight. You credit your good condition to the three meds you're taking now, right?

    p.s. Good to meet you!

  • hi Becky, no i did not mean to credit Madopar (100 mg + 100mg + 50mg), rasagaline and mirapexin (1,05 mg) alone because even my neurologist was amazed how much my condition has improved with no progression and therefor no need to increase dosage in 18 months. Hence my my question about Perindopril, (minimum dose) which I take for hypertension

  • Welcome! Do you exercise? What is your age?

  • Roy, Unless you are a Yank, disregard the question about Madison County. It was a movie popular in the US some years ago, which involved a traveling freelance photographer. Don't ask for details.........................

  • That's great to hear.

    Are you taking the perindopril in addition to the three PD meds?

  • Wow, lots of newbies. I will say Hi and will read your post hopefully tomorrow. I have to defrag my brain right now.

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