Sweating - PD or Meds?

Every day I go through boats of sweating and feeling really really hot when it isn't hot at all.

Today I went to early vote and I was online and I was sweating and everyone else had a sweater on and I was feeling weak almost like I was going to faint.

Anyone else have this problem? I don't know if it is the PD or the meds I'm taking. I think it is the PD because I remember it happening before I was on meds.

When it started I thought it was low blood sugar or low blood pressure or high blood pressure. I ruled those causes out by checking my BP and Blood Glucose. It's not my thyroid either, I get that tested every 3 months. Forget menopause, long past that, anyway I had a hysterectomy at 42.

61 Replies

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  • Actually, I think this year of all years, every body voting is sweating a lot.

  • I think searching for sources of symptoms is a futile gesture. I sweat profusely because I exercise intensely. The meaning I attach to sweat is that it is cleansing my body and I am grateful.

    Fjohn1

  • And I don't sweat. That is why I don't do anything to aerobic in the summer. My face turns bright red and everyone asks if I am OK.

  • What do you do when you "exercise."

    Fjohn1

  • Every thing I can. I will twirl 2 golf balls in my hand to sprinting to running backwards to using a balance ball with weights. I was taking testosterone and it helped me physically that I would pit myself against those that were in their 30s and did not have Parkinson's. That is why I kind of keep my mouth shut when others taught their exercise. If it works for you do it.

    I was working out so hard my brain was becoming manic, and the more anxiety I had the harder I worked out to burn all that energy. I would walk into my PD Doctors office and my blood pressure would be something like 167/132. I would tell my Doctor that I had a lot of nervous energy and I would do 50 pushups to burn it off and my blood pressure stayed just as high.

  • Why would you want to pit yourself?

  • There is an organization in my area called THE BAEHR CHALLENGE.

    baehrchallenge.org/

    I look at the challenge as my (I need to work out) motivation.

  • oh me too. everybody thinks i am having a heart attack.

  • OK -- this is not my why I sweat. I have these instances while relaxing too.

  • Sorry we did kind of strayed off topic. I don't know what to do because my internal thermostat doesn't work either. I just make sure that I work on fine motor skills when it's to hot.

  • mmm. i dont think you can pin this on PD. sounds like menopause.

  • Wrong in my case.

  • Sorry Fjohn, you have *NO* business telling ANYONE "searching for sources of symptoms is a futile gesture". If someone has a bothersome symptom s/he certainly should be seeking out the cause. If you cannot be bothered with such pursuits that is your problem.

  • My time is precious. I would not tell anyone how to spend their time. For me, my time spent Searching for Sources of Sweat is better Spent Sweating.

    Fjohn1

  • Theresa it's part of the autonomic dysfunction of PD. Can be made more noticeable by meds, and some find it's an off symptom. Another of the quandaries is it PD or the meds - often both I suspect.

  • It can be the result of certain meds. In my case I take Cevimeline, and before that Pilocapine. If I take too much of either it leaves me in a pool of sweat.

  • Do you know who sweats a lot? David Byrne of the Talking Heads. I have proof.

  • Easy to delete post. Just click over the little arrow to the right of the like button and then press delete.

  • Thanks Astra7. I deleted some.

  • it says ''report''?

  • If it is a text you have written you get a delete option. If it is someone else's text you only get the option to Report!

  • Don't make me turn this car around.

  • PD affects the autonomic nervous symptom which controls things like blood pressure and internal temperature. My husband used to sweat loads at night (but to seem to be better now). Nothing to do with your pesky election!

  • I have the same problem is you and my solution is to wear fewer clothes, when everybody else is wearing sweaters I can look great still wearing my summer clothes and a cardigan. Plus comma it's always easier to Wash summer clothes because they're lighter and dry quicker so it means if I have to change my clothes more often it's not a problem either.

  • Do you really have size 3 foot.?

  • I have two size 3 feet! Went out today in a tank top and a hoodie, everyone else was in coats, scarves and hats.

  • bwa haa. 2 feet. you are funny

  • I have the same problem and never suffered from this when I sailed through menopause. Just accept it and wear layers of cotton clothing rather than man made fibres. It is an irritation and feels anti social but I have to say not the worst symptom of PD.

  • I have the same problem. My neurologist said it was the "off period" from meds. I usually take my next dose of sinemet and neurontin and it goes away fairly quickly. Hope this helps.

  • I am afraid I can't help you with a reason, but you are not alone.My husband has problems at night. His pyjama top will be wet through in no time. Seems ok during the day.

  • I have this problem also. I find myself sweating when it is only 72 degrees and everyone is comfortable. I too am well past menopause symptoms I had a hysterectomy 12 years ago. I just thought the unusual weather this fall was not agreeing with my body. Interesting to hear someone else mention the same problem.

  • me too, Bailey. Oddly enough, I always ran cold, very cold, and had looked forward to menopause hot flashes. I never sweat(ed) during exercise no matter the intensity. I was just not a 'sweater'. Now however, with pd, I sweat a lot during exercise, like never before, and also run warmer than everyone else. I welcome it. Finally, after years of being frigid, I am warm, even hot. For the 1st time in my life. Not on meds yet BTW. I always remind myself that I much prefer to be hot than freezing!

  • I also didn't sweat before with exercise, my husband always poured sweat when he would do the same exercise. Now just moderate exercise I will sweat. I am on meds so it could be the PD and not meds. PD has so many symptoms sometimes hard to distinguish PD and simple changes in body due to age etc.

  • I am the same Theresa. It has become more noticeable as time goes by. Very annoying since I am fine then within a few seconds, hotter than hell. I had a hysterectomy ages ago so I do not think it is "age related''.

  • Years before I was diagnosed I had a very similar problem. Torrents of perspiration would pour from me even while sitting in an air-conditioned room. In fact, in one instance I was sitting across a breakfast table from a relative who was a world renowned neurologist and was sweating so profusely that I had to mop my face with my napkin. I still find that there are times when I spontaneously perspire. I have never found a definitive answer as to whether this is related to Parkinson's disease directly. I do not think that my sweating was anxiety related because it seemed to occur at the most random times. I haven't searched the web for quite some time for issues such as this but I will give it another look and let you know if I come up with something. I don't think the people meant anything by all the election jokes. Humor can be a very effective way to deal with Parkinson's disease but sometimes when someone has a serious concern the jokes fall flat.

  • I should have probably done this before I posted my reply but I found an article discussing 10 early signs of Parkinson's disease that physicians often miss. One of them was profuse sweating. I don't know if I can post a link here, but I will try.

    nwpf.org/stay-informed/news...

  • Very good article, thank you Pauldmd

  • Do you flush really easy and look like you have Rosacea but it is not?

  • Are you talking to me Hal? Sometimes I can't tell on these threads. At any rate, I have not been known to flush at all. My sweating has nothing to do with an emotional reaction.

  • Just curious. I actually feel and you can literally see my face turn bright red as anxiety rises. It is similar to over dosing on niacin.

  • I know that some people are like that. I have a sister-in-law that is. She is very fair, maybe that has something to with it. My skin color is a bit darker....more olive than fair.

  • Oprah had Erin Andrews on and was asked about her stalker, Erin turned bright red. Looked like a rash. They had to brush on the makeup to hide it. I was doing that a dozen times a day. It took 200 mg of Zoloft to get it to stop.

  • Excellent articles on this site.

  • Hi,

    I have the same problem, for the most of the day I feel like I am in the hot shower. My sweating was started gradually, even before I took Sinemet and was diagnosed with PD (I am pretty sure I already had it). It makes me feel exhausted and week. I tried tomato juice, sage pills to reduce this symptom. Sage a little helped.

    Best,

    Luba

  • I had this problem before (you can see my post on "excessive sweating") and I haven't had any problem since I went on HRT. As soon as that happened, I haven't had a problem with it, whereas before, I was having SEVERE flushing and drenching sweats daily. Ugh. Thank God it was solved! I also could sleep much better too. Estrogen is neuroprotective, and although the literature wasn't conclusive if artificial estrogen could do the trick for helping subdue Parkinson's symptoms, it sure seems to have helped me..., so if you're female, you should consider it, and talk to your doc about whether taking HRT is a good idea or not.

    Good luck!

  • I use to take Estrogen but stopped when I turned 62. The hot flashes did not happen when I stopped the estrogen. They are a recent problem that only started this year. I'm 68 now.

  • Hi Theresa,

    It seems then, in your case, it must be either the PD or the meds. (Such a useful statement - :-) ) My doc said it is common to have sweats for PWP when wearing-off happens. I do believe my sweating was much worse just before my next dose, but anyway, the HRT solved it, so I didn't have to take my doc's advice and up my dosage.

  • I was diagnosed w PD 4 years ago but since several years previous to that I have had profuse sweating from the back of my head, unrelated to ambient conditions. This was coincident with a deterioration in facial expressiveness and I have no doubt personally that it's PD related.

  • are you on hormone replacement. if you are not, it is probably hot flushes because you are talking about ''bouts of sweating''.

  • No doubt it is hot flashes, but I doubt from menopause. I had a hysterectomy when I was 42 and I am now 68. After reading these responses I do believe it is from the PD.

  • lol. yes by 68 you have finished menopause. and i dont believe you are 68. lol. not in that picture. maybe 30s?

  • Thank you Jacquioz for your nice compliment. It's a good picture taken at Disney in May of 2015. But yes I am 68, I was born in Sept. 1948.

  • Dear Jacquiosz

    You tie my head in knots with your answers then I remember you haven't got PD though you have had some symptoms as side effects of meds you take for bipolar disorder right?

  • lol. yes. it gives me a very strange insight. the one thing that got me more than actually having anything is that, like bi-polar, people dont understand the frustration. my frustration was that because i couldnt write i was told by family i should go off meds and i know i cant. they dont get the ''being normal'' is not me ''being back'' but meds ''keeping me going away''.

    then there is the frustration of what we take so for granted and i dont think anybody can understand it unless something like that happens.

    i always say with a mood disorder - it is as physical as breaking a leg. you would never ask a person with a broken leg to get up and run, to stop being silly and just run and to stop taking pain killers because your leg looks fine. in fact people would see that as a cruel response to a broken leg.

    and that is the problem with problems stemming from the brain region.

    i was told that everybody writes badly in job interviews. then i sent a photo of a sentence to my brother and said, ''ok then read that.'' and that was a day i could keep a pen to the paper. which was a good day.

    being mentally slow was terrible. i am still on meds but a lower dose, because i could just not function normally because nobody said, ''jacqui, your have parkinsonianism.'' then i would have been able to tell people, ''hey, i physically, cant function''. epilum actually stops the production of dopamine.

    i remember trying to prepare myself for having meals and started only ordering finger-food. i couldnt use utensil. i couldnt eat soup.

    i would try hold my one hand with the other or need both hands to hold a cup. i would remember back to when i was a kid and was learning to walk with a full cup. and here i was again, 44 years later.

    i remember i loved my handwriting. people thought i was being funny because it was lines going in different angles. i couldn't make a circle. i would remember looking at peoples handwriting and longing to write like that. they did it without thinking. i had started to have panic attacks preparing myself to write when i knew i would have to write. i often just told the person to write it, because they wont be able to read my writing.

    i'm on the futerlearn on-line program studying parkinsons and it turns out sweating is a symptom.

    but after about 7 years i was prepared to have the op. i even investigated it but medical aid didnt pay for it and i didnt have the money. i didnt know it would go if i lowered the dosage, i just tried it out on a hunch.

    i do not know how i would cope if i knew i had it until i died. i dont know how you guys cope. its so debilitating. its not like a broken leg where you can take a pain-killer and use a crutch and everybody can SEE you have pain.

    i think that is why my interest in psychology. i want to be able to have your layman understand that, just because you cant see a sickness, it doesnt mean it not there or fixable. being bi-polar, depressed, having PD doesnt mean that medicine fixes you. it hides the symptoms while the pills are working.

    with PD you are losing dopamine, you are getting lewy cells. its like having your leg chopped off and being told to stop being stupid and hurry up, with no crutch nor painkillers, and if they give you a crutch it comes armed with little sharp blades under the arm that tears into your skin when you put weight on it.

    thats just a few of the symptoms i have experienced. there are other side effects of epilum that arent parkinsonianism. i would wake up with a shock like i had been electrocuted. its not just the pain but the shocked awakening.

    lol. did i tie your head in knots again?

  • Well that sure did not cheer me up any jacq.

  • yip. i know. but just think what should cheer you up. you have adapted to it and are living with it and you are over-coming obstacles, that otherwise, people arent even considering.

    in a way, not having those symptoms after suffering from them like i was, makes me think of it in a different light. because you have adapted to it you tend to ''forget'' some of the symptoms or frustrations.

    much like with my migraines. in retrospect i had 1 migraine for 10 years in varying degrees. there was seldom a day i never had a migraine. when i finally ended up in hospital because my body basically almost stopped working, and it was obvious that it wasnt a ''stress headache'' (after being told that for 10 years), they worried about encephalitis and sent me to a neurologist. he assessed it was a migraine. put me in hospital and gave me migraine meds and next morning the world looked brighter, there wasnt pain of ANY degree, shapes were clearer. i was surprised to think that this is what it felt like for people that lived without migraines. i was amazed i could have a months without headaches.

    only seeing the direct contrast between not normal and normal makes me realise how you adapt. i adapted to always having pain, NOT that it was any LESS painful. with my migraines i was forced to adapt and people didnt understand.

    with my Parky shakes people didnt understand. in fact it has often been more inconvenient to them than to me. not just treating me like i was hamming it but also people tried to pretend they didnt see it, so it was like the big white elephant in the room.

    which brings me to my points.

    1. you deserve and have a right to a good cry occasionally. you really do have obstacles and i dont think anybody without PD can begin to understand...

    2. understanding what you have, means you can explain it to people, because

    3. that others understanding and therefore having the support of people around you is probably as important as the meds you have to take.

    no 2 & 3 is what i didnt have. when you explain the frustration of trying to hold a cup people would give me a ''dont worry, you cant really see it''.

    that's not the problem, it wasnt that i cared if people could see it, it was what i COULD NOT do and for some reason, nobody found it important that i couldnt write or hold a cup.

    it DOES matter if you have no alternative to replace it with.

    people could only sympathize with the things they saw, but until you tell them to drop everything they picked up and not be able to reach it, or to not write anything, they dont have a clue.

    because i had people denying and avoiding the topic or behaviour i couldnt get help doing anything.

    wouldn't it be great if people saw any of your behaviors and knew exactly what they needed to do to help you? or just asked, ''i see you have PD, what can i help you with?'' the cashier can help count the money. automatically put you loose change into a bank bag. if i was in the queue i could help you put your goods in the bag. while it doesnt ''replace what you cant do'', it can actually make you feel more independent. shopping becomes something you can do with peoples' understanding and not be something that you cant do without peoples' help.

    imagine if you had a whole bunch of michael j foxes around the world. he put ''uncomfortable twisting in your skin'' into a comedy / drama show - drop dead diva.

    if it wasnt for him i would have thought that PD wasnt a neural disorder, i would have thought that is what happens when you get old.

    because of what happened to me, because i am studying it, i can go back to everyone and educate them on what they were trying to do...ignore the big white elephant in the room.

    lol. hikoi? did i just tie your brain into a knot again?

  • This is an interesting look into your life and good philosophy to think about. I never did see the Michael J. Fox show. I didn't even know about it until after it was cancelled.

  • he seemed like such a good guy. never seemed to be any bad reports. and just think that he would have been getting the symptoms while he was working and we probably only saw much at the end. he was doing drop dead diva when his L dopa had stopped working and he would have had lots of lewy bodies by then. incredible he could remember lines. the part they wrote for him was a lawyer with parkinsons that was really clever and used his disorder to get sympathy in court and it always worked. he would get up and dyskinesia away and the other legal team would roll their eyes thinking. ''oh well, we have lost this case''. you should look up the series. watchfree.to/watch-26c5-Dro...

    its an odd mix since most of it is comedy but at the end of each show, there is always something incredibly sad. load adblock onto your computer since it pops up a lot of ads.

  • Hi. I have the same problem. I sweat and actually feel clammy. I also get really nauseous. And like you I know it's not my thyroid or menopause. I didn't think it had to do with sinamet either. My neurologist said to check my blood pressure. I have checked it several times and it's always perfect. My next step is going to my general practioner to have different blood work done. My problem is that this doesn't happen everyday just sporadic. I have good days but when the sweats and nausea happen I need to leave work because I feel terrible.

  • I am so glad I don't have to work any longer. I can't imagine what it would be like if I did.

  • i get nauseas often with migraines. the one time no medication was helping. the doctor had no clue what it was. she told me to try gaviscon. have you tried it. i now take gaviscon for nausea.

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