PD warrior in the UK

Yesterday, I started the PD Warrior programme. It's a combination of intense physical exercise and mental exercise. It originated in Australia where it's had promising results. You can google PD warrior and a lot of info will come up.

I live in the UK and I managed to find a hospital a couple of hours away that has a private physio clinic with staff who have trained in this. Yesterday consisted of an assessment plus a long session with a physio to show me the exercises. I now try them out for two weeks, then return to check I'm doing them properly. After that, I do the 'ten week challenge' for, er, ten weeks.

Some baseline measurements were taken in terms of balance, dexterity and so on, and these will be reassessed as I move through the programme.

This isn't intended to replace the 'usual' exercise programme of cycling, weights etc that I do in the gym, but to stand alongside. I have to do it everyday for about 25 minutes.

It was a very tiring day - the assessment and session with the physio took two hours, on top of four hours travelling and I'm tired today. But cautiously optimistic! I'll keep you posted on progress. Before my PD diagnosis I was very unfit. I'm no athlete now - my endurance is rubbish. But I'm much fitter than I was. Life is strange.

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  • That's great stevie, I hope to start the programme soon too.

    "Neurologists and other health professionals are referring to PD Warrior as a game-changer and, since its launch in Australia in 2012, it has grown exponentially, with extremely successful outcomes and widespread popularity. PD Warrior is not a cure, it's your chance to take control"

  • Have you managed to find a centre near to you?

  • I would love to see this in California. Sign me up!

    Fjohn1

  • where is this in CA I live in San Leandro CA

  • About 30 miles south. Place called Campbell.

  • I've no idea where it is anywhere else. I did a lot of research to find it. There is a Facebook page. It's Australian but you could post a question

  • Sounds great and appreciate you sharing. Keep us posted!

  • There is a cost to it as well and while you can do it on-line, it's quite expensive doing it that way. All I'm paying for, however, is a few sessions with a physio, which is very affordable. She gave me the manual with the exercises in, took me through them and I've a follow up in a couple of weeks. I was surprisingly tired today. I'm going to start on Saturday - I've had to clear a space - and I have to record what I do. I will keep you posted on progress.

  • Love your last sentence

  • stevie3 that all sounds promising. I've looked up PD Warrior online but didn't realise it was available here in the UK. Where is the centre you attend? We are in Hampshire. I'd love my husband to start a program like you're doing but he can usually only manage about 10mins exercise per day + a Parkinson's Pilates class for an hour once a week so he might find it a bit too strenuous. 😊

  • Please Try.

    Fjohn1

  • I will certainly look into it Fjohn1 and see if I can persuade my husband to 'have a go' :-)

  • I've sent you the details in a message. It's not that strenuous and he could build up.

  • Thanks stevie3 I received your message and will look into it a bit more.

  • We are rooting for you! Please let us know.

    Fjohn1

  • Thank you. It's an interesting programme. It needs discipline, something I am sadly short on, but I'm hanging in there!

  • A pleasure to write to you. You are someone I can look up to you.

    Fjohn1

  • Email I recieved from PD warrior at Salisbury might be useful for you as you are in Hants

    We've been building up our programmes for people with PD over the last few years. Currently we offer a range of input, from one-to-one appointments to group work.

    We find the groups work particularly well to help motivate continued exercise which is an important part of managing PD symptoms. We run 2 types of group: The PD Warrior Programme for people recently diagnosed or who have mild symptoms, or the Striders group for people who have some balance problems, for more severely affected people we recommend one to one input.

    Whoever you are we would always carry out an assessment and then 3 one to one appointments to ensure we find the best approach for that person.

    We are not an NHS service so there is a charge for these appointments. If you are a member of Salisbury and District PD society they cover the cost for the Assessment, 3x one to one appointments, and a 10 week exercise programme.

    Please feel free to come back and ask more questions.

    Yours

    Mary Fenn

    Neurophysiotherapist

    Odstock Medical Limited

    Laing Building

    Salisbury District Hospital

    Salisbury, Wilts SP2 8BJ. UK

    Tel: +44 (0) 1722 439560

    Fax: +44 (0) 1722 417611

    odstockmedical.com

  • Well done you for taking control and doing something positive.

    I think the PD warrior programme is excellent and hope that Parkinsons UK take it onboard and encourage Parkinsons groups andParkinsons nurses to get involved in getting people trained to teach the exercises so that it is more accessible .

    Keep up the good work I know you will improve and ENJOY,!

    Ps are you going to Salisbury?

  • Yes that's where I go, although it's a 3.5 hour round trip

  • Centres providing PD warrior

    Hallamshire Physiotherapy Ltd

    2 Newbould Lane, Broomhill

    S10 2PL Sheffield

    United Kingdom

    Dumfries Physio At Home

    76-94 Terregles Street, Dumfries, United Kingdom

    Dumfries

    United Kingdom

    Hobbs Rehabilitation Ltd

    Unit 1, Bridgets Farm Offices, Bridgets Lane, Martyr Worthy

    SO22 5DU Winchester

    DDB Physiotherapy Clinic

    1 Pier Street, Lee-on-the-Solent, Hampshire, United Kingdom

    Lee-on-the-Solent

    Salisbury District Hospital

    Odstock Medical Ltd, Salisbury District Hospital, United Kingdom

    Salisbury

    United Kingdom

    Morello Clinic

    Nelson House, Langstone Business Park

    NP18 2LH Newport, Wales

    United Kingdom

  • Is it helping yet?

  • Too early to say - I've only been doing it a week and I'm just learning the exercises. I go for a follow up next week, then I do the 'ten week challenge', at the end of which they will do an assessment and make comparisons with the baseline measurements they did at my first appointment. So it is evidence based and measurable. I also think just knowing that I am doing something to lush back is a great boost mentally. I'll keep you posted as there seems to be a lot of interest in this.

  • I don't know the program, but the approach and benefits sound similar to rocksteadyboxing.org that demonstrated similar results a decade ago with their innovative program. (I know. I was there.) There are more than two dozen programs in CA and nearly 300 world wide. The best program is the one you will stay with. Keep moving. #rocksteadyboxing

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