How very very sad and very very scary. Greatest commendations to all the caregivers.
LDN might be able to help at least a bit.
I have been on low dose Naltrexone for at least a year and a half. If you could Google LDN you will get many articles. It is also good for cancer patients. It raises your endorphins so it helps with pain, helps with your mood and how you generally feel about life. This drug is used for addictions in large 50 mg dosage. I use 3 mg per day. I buy it from a Canadian pharmacy that you do not need a prescription. I buy an uncoated tablet that I can dissolve in water and use a measuring syringe. Sometimes when I forget to take it for a few days I can see a definite difference in my happiness level and my pain level.
If you get a doctor's prescription you can buy it compounded however it is way cheaper to get it in pill form again with a prescription and dissolve it in water. This is just a suggestion I strongly believe that that's helping me and it is working. Mary