PD and DBS Surgery: Hello everyone! I have... - Cure Parkinson's

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PD and DBS Surgery

Rezaazad2050 profile image
14 Replies

Hello everyone!

I have been diagnosed with PD for thirteen years (at age 33) and have undergone deep brain stimulation surgery. I would happy to share experieneces

Reza

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Rezaazad2050 profile image
Rezaazad2050
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14 Replies
parkie13 profile image
parkie13

I for one would love to hear about your experience I believe Michael J Fox had it done also thank you Mary

49949 profile image
49949 in reply to parkie13

No MJ Foxe's operation was not DBS , but similar method was used to burn some brain cells on one side.

p-oui profile image
p-oui in reply to 49949

Can you share more details on this or a link?

Rezaazad2050 profile image
Rezaazad2050 in reply to parkie13

Hi

My email

Rezaazad2050@outlook.com.will be happy to help if I could be of any.

Rezaazad2050 profile image
Rezaazad2050 in reply to parkie13

Hi

My email

Rezaazad2050@outlook.com.will be happy to help if I could be of any.

garyd11 profile image
garyd11

Reza, was that one side or two?

Rezaazad2050 profile image
Rezaazad2050

Hi. It was on both sides

jeeves19 profile image
jeeves19

So are you happy that you had it done? What sort of difference has it made?

Shege1 profile image
Shege1

How much did it cost you and when did you do the DBS

Rezaazad2050 profile image
Rezaazad2050 in reply to Shege1

Hi.I did it in Iran. It cost me about 15000 US dollors, the battery, the electrods, and hoapital charges altogetger

Rezaazad2050 profile image
Rezaazad2050 in reply to Rezaazad2050

I did it four years ago.

Rasa2006 profile image
Rasa2006 in reply to Rezaazad2050

Hi, I live in Iran too and my mother has parkinson for 6 years, which doctor did it for you ? In which hospital?

Are you satisfied with your surgary? Do you feel better?

My mother's main problem ,despite other parkinson symptoms, is dificulty in eating and facial spasm,

Thanks

Jimbo26 profile image
Jimbo26

Where did you have it done?

How long after surgery did they activate the system?

Who is the Mfg?

How long to get it adjusted?

Are you able to make adjustments yourself?

LOL yes we are interested!

p-oui profile image
p-oui

I am interested in hearing about your experience, the challenge of getting it done and whether you feel this has paid off for you. Wishing you the very best!

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