heavy head

[budsey]

Does anyone have heavy head when walking . I've had PD 2 years take sinemet and Pramipexole head feels like ton weight and slows me down and very giddy.

Budsey

[rhenry45]

Yes. I get this feeling toward evening every day. It is one of my worst symptoms I think.

[budsey in reply to rhenry45]

Hi rhenry45

Although I am sorry you suffer from this , how much of a problem is it for you.

I have been searching everywhere on forums to find another person with this problem. Do you feel it affects your balance and walking, slow, weakness unsafe.

Have you told PD nurse or doctor and did they know what causes it. It is a huge problem for me as it slows my walking down to a crawl at times. Have you found anything to help. Thank you for replying

Budsey

[rhenry45 in reply to budsey]

It seems to affect me in early evening. I am not always affected by it but sometimes I definitely notice that feeling. It is actually a feeling associated with fatigue that hits us later in the day when we get tired.

[Hidden]

Constantly......very unpleasant when walking, or shopping in grocery store with the fluorescent lighting. I feel my eyes are affected or part of this too.

[budsey in reply to Hidden]

Hi Birdworld

Sorry you suffer this as well- how I know how you feel

How long have you had it and do you think it is one of your meds you take causing it. Have you told your pd nurse or doctor and what did they say. I take sinemet plus 5 times a day and pramipexole I wonder if there is a link. My pd nurse and consultant don;t know what cause it. Are you able to go out shopping alone, I can't I feel so unbalanced and unsafe. This is my worse symptom by far and makes all my pd problems worse. My head feels like there is a ton weight inside moving from side to side when I walk it is so exhausting. How do you manage and which meds do you take.

Thanks for replying

Budsey