I have had pd for at at least twenty years. After dx I had been put on Cabaser by a neurologist who then retired and my gp informed me that there were insufficient funds to replace him. He would just keep prescribing this med. and I would just continue without a Neuro. Cabaser turned out to be particularly problemmaical for me because, while I was left to my own devices I had some ICD issues which grew and matters became quite serious and life changing. Very soon my med. was changed to Sinemet and for 5 years things were fine. But I am now in my 10th year of taking Sinemet and its efficacy is unpredictable, short lived and leading to secondary dystonia in my right foot. My present Neuro has ruled out prescribing any dopamine agonists and even dbs because in large part to my previous reaction to the much written about Cabaser.
Has anyone had any similar experiences or recommendation.