Hallucinations and PD or Hallucinations and Meds

I need to know if anyone who has been diagnosed with Parkinson's had hallucinations prior to the diagnosis. I know that sinemet and probably other meds for PD can cause hallucinations. As well, I believe the disease itself can manifest with hallucinations. If anyone has had experience with any of this I really need to hear what you are willing to tell.

thank you

15 Replies

  • Hallucinations are reputed to be a late stage Parkinson's symptom. Everyone is different...

  • Hallucinations prior to PD understandable; just as 'the sense of Deja Vu' is.

    Tricks of the mind are a Natural aspect to Life and not necessarily an indication of PD. Everyone has Dreams and the state of Dream bridging into the Awake can simply occur through dehydration and or intense levels in stress.

    Have a peaceful day

    Regards Andy

  • I did not have hallucinations prior to the diagnosis. The only started after being on Mirapex which now that I'm off it have virtually disappeared.

  • I was told by my neurologist that sinemet is the gold star of PD tablets, only 2 years down the line but no problem yet.

  • Oh my....did my husband have hallucinations! Almost every night he had so many people in the room we could have a party! Or there were little children in the bathroom so he would ask me to remove them so he could use the bathroom. I could go on and on. His Dr. finally eliminated one of his medications and the situation improved by about 95 %. I wish I could remember what med it was but do check and see which one you are on that could cause hallucinations. We are down to just one now. My husband has an imaginary dog named Spike. I think this is because our dog of 16 years passed away during the past year and he misses him terribly.

  • Hello. You have just made me breathe a whole lot easier! I am so glad that things are soooo much better for him!! My husband is only on one med so that part is easy. The literature does list that as a possible side effect, but not as common as less intrusive ones. Doctors in our experience and just in general,in my opinion, always dismiss the uncommon and the rare side effects of any meds as being due to other causes. Do you recall him having any hallucinations prior to diagnosis or prior to use of any PD meds?

  • No, they all started after he was diagnosed and on a few different meds. His Dr. also tried to give him the minimum dosage that still worked because he felt the hallucinations increased at a higher dosage.

  • I have had Hallucinations, some explainable, not related to the drugs. First White Flashes. I went for 6to9 months where I was seeing white flashes behind the eye, kind of like someone took a picture behind of me. My pd doctor didn't say anything but my eye doctor did. On a list was the questions " do you experience flashes of light " and I thought yes , yes I do. She asked was it the center, left or right side or up and down. I tolled her none of the above and said it was behind the eye. I then said that it was really no big deal but when I travel by speed cameras. Happened once or twice , and when I get home I am all upset, THERE WAS NO WAY I WAS SPEEDING, and let me know if we get any tickets I am going to DISPUTE THEM. I never received any tickets. She explained that there is a muscle attached to the back of the eye ball and if that muscle where to contract ,because of the Parkinson's, it would be translated by the brain as a flash of light.

    If interested in more fabulous tales of the seen but not seen I need 5 likes. OK I will settle 4-3.

  • Hal-9000, you seem to have a number of eye problems associated with your PD. So does my son. One of his first symptoms was DOUBLE VISION.

  • What is funny is that I am just learning for the first time the link between the two. I experienced my first episode of blephurites 15 years ago, long before I became diagnosed.

  • My husband had a couple of bouts with iritis, but reading on blephurite it doesn't seem to be the same thing. Maybe I am wrong. So these are what you are categorizing as hallucinations. Were there other types that did not involve the light flashes ?

  • Textures - in some low light ( not dark ) you can have texture hallucinations. Lets say you go to clean a toilet. there is plenty of light to spray the bowl and put in bowl cleaner so you don't turn on the light. when you see the bowl it looks like its been shattered, kind of like taking a clear marble , boiling it and then dropping it in ice water. It shatters but it stays together. You then turn on the light and there is no issue. Turn off the light and it appears shattered again.

  • In my understanding problems with the Eyes are not Hallucinations.

    Seeing 'snow fall' patterns of tiny lights for instance, can be simply caused by high blood pressure caused by moving the head too quickly.

    Broken up or 'shattered' views may be down to problems within the Retina its self, ie., individual cell's sensativity to light being lost in certain areas, possibly to do with low blood pressure; and not necessarily PD linked or of a manifestation in hallucination.

  • My PD Doctor was not concerned with Texture visions. She has seen that before . There have been times when I look at a picture and can not figure out what is it a picture of. She thought that was interesting because she has a patient that is an architect and could not interpret blue prints for a time.

    And now roof rats.

    P.S. went to the eye doctor last week and got a clean bill of health.

  • Can u not figure out what the picture is because of the shattering u describe? Do objects ever look like they are floating; can you describe any other visual phenomena ?

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