I was diagnosed 5 years ago with PD , started then on levodopa carbidopa (Sinemet) , I am now on 2 tablets 4 times a day. I get Dystonia (I was told) in my feet from time to time !
I ,this week , participated in my local hospital study on 4 days.....1 day an MRI was taken when I had to be OFF medications since 6 pm the day before - 1st time on No medications since diagnostic - in the morning I had many times Dystonia, freezing, needed my husband help for me to get ready....unil we left our home for the hospital 12:30 pm meeting . To our astonishment I was able to get off the car by myself and then to go on to the study , MRI , movement tests etc ...with no problems , my husband even took a video when we got back home 25 hours after my last dose Sinemet .
Could dopamine be too much? Or is it a wrong Diagnostic PD 5 years ago? 25 hours after my last dose of Sinemet I was fine and chocked of the result of this experience ! What should we do? What should we think? Is it too much dopamine the problem when I am on medication? Was I wrongly diagnosed and it is not Parkinson? Please help me understand, did you experienced something similar? Thank you