My reaction to the diagnosis of having Parkinson's Disease has been surprisingly positive. I think because I've been trying to find out what it is that is making me sick for so long and getting worse each year, I was actually disappoint last year when my testing for MS came back negative because I wanted so much to be taken seriously. I'm so very grateful that the Darb/Levo is working. That horrible constant muscle tenseness that you just can't make go away is now gone. My tremors are much lighter. My achiness is much less. My depression is subsiding and I can honestly say I'm feeling happy right now.
I understand the seriousness of Parkinson's, my Uncle (who is long gone) had it, and I have a first cousin that has it. She was diagnosed 5 years ago. So I'm not deluding myself to thinking this is no big deal because I know it is. BUT...at least now my family can understand why I can't do things and feel like I need to lay down and rest often. They won't think I just don't care anymore about family events because I can't cook Thanksgiving dinner. Maybe now the nurses and receptionists in my GP's office won't give me that "Good God She's Back Again" look.
My attitude for myself --- and I am not saying anyone else should have this attitude if they don't have it --- is that I have lived an active and rewarding life and this is just another phase of life. I lost a son 6 years ago and believe me a Parkinson Diagnosis can't hold a candle to the deep grief and pain of hearing your son is dead.
I'm making reservations for a week vacation with my other son and his wife and 5 grandchildren at Disneyworld. We were planning to go in about 3 years but we just decided to go next year because I don't really know how many years I will be able to do something like that. So I have a year of planning and anticipation to look forward to. I'm happy. Which really surprises me.
What was your experience like when you found out you had PD?