Parkinson's or Parkinsonism

I have had typical PD symptoms for about 2 years (balance, tremors, gait, etc.). My third Neuro insisted that my medications could be causing my symptoms and that therefore I may have Parkinsonism which causes identical symptoms as PD but are a result of other factors. In my case he believed my symptoms may be caused by overmedication and suggested I stop taking aripiprazole. After 6 months off the antipsychotic my off times have been eliminated and my PD symptoms are minimal. Although I had been taking sinemet 25/100 three times a day, we are weaning me off it in six months to see my reaction. So far I am down to 2 a day and no PD symptoms. Obviously, I'm doing this under medical supervision.

42 Replies

  • This is so interesting. My doctor thinks my tremors are from Medication and thus must be ET. After researching each medication I take the only two possibilities are Zoloft and Trazadone. I'm afraid to stop or even reduce these medications because I have Major Depression Disorder and have fallen into very deep depression to the point of contemplating suicide for no apparent reason. I have told my doctor that I don't think it is ET because it is resting tremors and many other symptoms that point to PD. Hope you keep us posted as to how it goes. I'm definitely interested.

  • Whoops I see now that you said Parkinsonism not Essential Tremors. Anyway I still am interested. I'm not at all sure I understand the difference between Parkinsonism and PD.

  • I think it's parkinsons SYMPTOMS, but not caused by usual culprits. in your case, your anti-depressants?



    really great site for articles on depression.

  • Thank you, I'll check it out.

  • This is what came up when I tried the link. Seems to me Dr. Mercola could be a phony-balony.






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  • his personal life does not enter into the fact that he provides me with understanding and alternatives.

    just subscribe to his emails, you'll know what I mean.

    has an excellent article on ketosis....did you know that the body has two fuels, glucose....and ketosis, and that ketosis is recommended for insulin resistant persons. potentially I can find out if I am insulin resistant by taking MTC oil, available but rare. (it's an oil that you will find in coconut oil, in low dose.) he also gives you option to achieve ketosis by changing diet using natural oils that bypass the liver....what doc would share that?

    that other site is an education as well, did you know that viruses, unlike everything else on earth, don't die?

    with advent of social medicine, which is grudging uninspired, can kill you and does kill a lot of persons very year, you might as well start your medical education and become this annoying informed client.

  • I guess I'm just too old school to try anything my doctor doesn't approve of first. Besides the PD that I have I've been a long time diabetic and I know about diabetic ketoacidosis so I don't mess around with different products. Just my opinion. I think it's wonderful that you have found this Dr. Mercola's discoveries have helped you.

  • what make you think you're doctor wouldn't approve? maybe it's not for your state of health? i'm not advising you, I don't know what happens in acidocis. in the article he cautions, apparently there are test strips to monitor ketosis, I just scanned it, need to study it.

  • Honestly I don't know if my doctor would approve or not, I haven't asked him. Feeling a little too overwhelmed right now to think about anything but following doctors orders. I was only diagnosed day before yesterday. I have several chronic diseases that I take meds for and it is much too much for me to figure out what interactions could possibly happen so I just listen to Dr. Fulmer, I have a lot of faith in him.

  • I understand. your lucky to have a doctor you trust.

  • Theresa you do not have to answer this but. Was wondering what your several chronic diseases are. Could some of them be actually Parkinson's disease

    Such as fibromyalgia, rotator cuff problems, lower back pain, double vision, restless legs, depression, REM sleep disorder and a .few more ...

  • I have Hypothyroidism, Diabetes type 2, Osteoarthritis, Major Depression Disorder, high blood pressure, and now Parkinson's. Geese.... writing them down makes them seem so many.





  • Let's keep in mind I am 32 years older than you. When I was 36 I was in perfect health also and never took any medications.

  • wrong party? i'm 70.

  • Sorry, I have read so many posts I get them confused with who said what.

  • Well your depression is almost certainly related to Parkinsons (very common) and you may find your arthritis improves once you are on medication and watch out for that BP medication because we can have trouble with low BP.

    They always check thyroid in PD as hypothyroid and PD have some symptoms that are similar.

  • Hikoi, are rotator cuff problems, lower back pain symptomatic of PD? I know I read "shoulder pain" but rotator cuff problems? I had to have my shoulder rebuilt when I was younger but thought it was due to a horse riding injury. Lower back pain for years which is why I do yoga - it truly helps. The board is so helpful and your insight so appreciated.

  • medicine, which is grudging uninspired, can kill you and does kill a lot of persons very year, .........

    OH DEAR 999 666 - will social medicine kill us?! This is what Google came up with for social medicine.

    Definition: The field of social medicine seeks to: understand how social and economic conditions impact health, disease and the practice of medicine and. foster conditions in which this understanding can lead to a healthier society.

  • i'm just relating facts. perhaps your country delivers on social medicine, not here, not for me.

    I have not had a chest x-ray in a couple of decades, I was told by an MD, "if there is anything on your's too late"....they then sent me to a neurologist who told me the only way they could diagnose pd is if I test-drive levodopa...they also ignored possibility of ear infection. I have had psoriasis in my ear for clears up with lactaid...weird, I know.

    I won't cooperate before I get a thorough check-up.

  • There seems to be two different terms social Medicine and socialised medicine. They are defined quite differently


  • That's great news for you then, keep us posted.

  • Is Aripiprazole the sole med that the neuro thinks may have caused the PD- like symptoms? Was there something else that you took with it or prior to it and how long did you take it? Did you ever take any herbs or supplements that could also have caused symptoms? What about cholesterol meds?

  • I have taken other medications throughout the years, but my PD symptoms had a direct correlation to my taking and stopping to take Aripiprazole. I have not taken herbs, supplements, nor cholesterol meds. I am not a scientist nor doctor, just posting my personal experience.

  • Thanks

  • Medications can cause tremors, particularly psych meds! Give your neuro that was wise to this possibility an A+.

  • josefb, You have provided a striking example of the warning posted here:

    . . . namely that

    ANTIHISTAMINES (can be antiemetics, which fight nausea and vertigo)




    can mimic Parkinson’s symptoms, or exacerbate those we already have. They do this by blocking the dopamine receptors:

    In your case, the drug was an antipsychotic.

    As noted in this Wikipedia article, after "long-term or high-dosage" use, the DAMAGE CAN BE IRREVERSIBLE--scary, but true:

  • There is a good summary of drug induced PD here dumplekin.

    About 7% of people with parkinsonism have developed their symptoms following treatment with particular medications. This form of parkinsonism is called ‘drug-induced parkinsonism’.

    People with idiopathic Parkinson’s disease and other causes of parkinsonism may also develop worsening symptoms if treated with such medication inadvertently.

    In 50% of cases, the symptoms generally occur within one month of starting the medicine. In some older people, features can be identified as early as the fourth day of treatment, and sometimes after one dose. However, there can occasionally be a delayed development of parkinsonism.

    Generally, 60% of people will recover within two months, and often within hours or days, of stopping the offending drug. However, some people may take as long as two years. One study reported that 16% of cases went on to be confirmed to have idiopathic Parkinson’s. These people were probably going to develop Parkinson’s at some stage in the future in any event, but the offending drug ‘unmasked’ an underlying dopamine deficiency. This theory is supported by research studies with specialist PET scans.

  • Thank you, Hikoi. What we don''t know can hurt us. My stepdad was prescribed high-dose lithium for depression, and developed tardive dyskinesia as a result.

  • My doctor said it is fine to take Antihistamines.

  • There are many antihistamine drugs. Your doctor may be right in asserting that the majority of them are safe. British Pharmacists treating PD patients have been warned in particular against the antinausea/motion-sickness drug called cinnarizine (Stugeron, not available in the USA) because it can cause Parkinsonism. You can ask your doctor about page 11 of this brochure:

    P.S. Your doctor -- no matter how smart he may be -- is not as "omniscient" as the Internet. We have to do our own homework.

  • You must have been taking the Aripiprozole for a reason. Is it ok to stop it? Will you be taking something in place of it or do you no longer need it?

  • I was taking it to control mood swings and he replaced it with tegretol. No side effects from stopping to take Airpiprozole except the positive ones. To clarify, I sometimes get tremors and my doctor informed me that the medicine caused changes in my brain that don't go away immediately. He expects that the brain will heal itself and that the effect may only take a year to go away! I have also recently stopped taking Lithium (following his advise). He feels that lithium can also be a contributing factor. HE will re-evaluate in 6 months.

  • Bravo ! Sounds great. I think often we forget (or fail to fully realize) that medications bring with them side effects. Sometimes its not "us/or disease" that is the problem. I wonder how many other people are potentially capable of taking the same path you have, with similar results.

  • Good morning! I thought I was finished with my questions on LDN, but one popped up this morn. When do you take your LDN? Do you take it at a time to avoid your C/l-dopa or other meds? Thanks....I am off for my morn walk.

  • It is (universally) recommended that you take it at 10:00 pm (or at your evening bedtime). I follow that recommendation and take my Cardopa-Levodopa at the same time I don't remember the reasoning behind this. Maybe allow it to repress the immune system temporarily while you are asleep and allow it to revive itself prior to waking.

    Are you thinking of going ahead with LDN?

  • For my son, a strong possibility down the road. His meds still need to be adjusted. Right now I get to experiment with Mucuna. I'm glad I asked the question because I would have never guessed 10pm/bedtime and to take them with last dose of medication. Thanks!!!

  • on top of that, I don't know what a "long time" means....I have the impression that after about two years, they have to up the dosage.

    I wanted to tell you that I appreciate any thinking person's thoughts on this malady. this pd , in my humble opinion, to date, is somewhere between the "leaky gut" and the "leaky brain" barrier. (toxins from leaky gut get past brain barrier, because of malfunctioning immune system. (I think they call it " oxidative stress/load") what happens is thieving free radicals, hungry for oxygen molecules steal theml from your cells which USUALLY they can easily just go and get another one. if not, you're in trouble.

    or else, your not eating/unable to deliver, precursor to dopamine production site.

    I believe body can heal itself, is designed to heal itself. I discovered this possibility in: Dr., articles.

  • you must send that 3rd neuro chocolates, or something. you lucked out. I think this is criminal, the other two just wrecked your health.

  • Jose, I am going through the same thing as you. I was just told by my new neuro that I don't have PD but Parkinsonism and am now weaning off the Sinemet (same doses as you). Do you or did you have any side effects going off the meds and how long did it take to see a difference? I would appreciate any info you could pass along to me.

    Thanks so much,


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