I Was diagnosed with PD 5 years ago at age 72. I started out with Azilect, 1m per day and gradually added sinemet. I functioned very well (except for sleep-another story). I was able to work until a year ago. I changed to Rytary about a year ago and have had very even control. (10 per day of 36.25/145.) I have arrived recently in the "land of dyskinesia". I have had periods of uncontrollable movements of head, jaws, teeth, and upper body that I could only describe as a seizure in slow motion.
I understand that the meds need to be titrated down slowly. So far in 3 wks we have stopped the 1 Azilect per day with no changes in the movement.
I guess my question would be - at what rate and how long did it take to cut down the dosage to get some relief?
I'm aware after that, choices have to do with a pump or DBS.