Parkinson's Movement
12,452 members11,062 posts

Learning to live with PD

Hi,my name is Ray ,I live in Essex ,south east England ,I am 66 this year hopefully ,l was diagnosed a year ago as my left side slowed down,Drs thought of a stroke ,but that was ruled out after a C T scan,then MRI scan,then finally a DAT scan,which is nuclear medicine ,

I am currently on 8mg & 2mg of repinarole ,as time goes on I am I think experiencing different side effects ,not that I have put on weight but it looks if I have meaning my body has changed shape,plus my left ankle has started swelling,I just wondered if anybody out there has similar ,that's it basically,thanx for reading,looking forward for a reply,regards Ray

10 Replies
oldestnewest

Welcome Ray! I do not take a dopamine agonist but did an internet search and found a ropinirole/swollen legs posting:

parkinsons.org.uk/forum/thr...

From reading the posts it seems like it is a common side effect.

Best wishes.

Rich

3 likes
Reply

Hi, I was also on levadopa for past 3 months,so I've stopped taking them after contacting my specialist because I was ok till taking them.i hate taking any tablets of any kind because after a long while I have this notion that they can damage kidneys & liver,I have no proof of this,

All my life until I packed up smoking at age of 64 I get PD ,osteoarthritis in left arm,& scoliosis in my back,I'm glad I stopped smoking but I'm begining to wonder

1 like
Reply

Hello Ray, I am 69 year old female, diagnosed three years ago with PD. I am currently taking 16mgs. Ropinerole and also having problems with swelling of the ankles. As I am happy with this medication apart from the swelling I have not sought an alternative. I settle for ankle twirling exercises and raising my feet up if possible when I sit down.

2 likes
Reply

Hi Sylvestrov, what meds are you on?

Reply

I will get around to answering your query. Right now I am uber busy and have to 'clear my desk' before I can properly answer.

Rich

Reply

Ray, there are plenty of changes to medications that you can make with the help of your specialists. Chat with your Parkinson's nurse if you are not due a consultant vist yet.

Reply

Hi Ray, I'm in the uk too, in Surrey. Welcome. I started taking a small dose of ropinirole (4mg) in February. I do get swollen ankles but apart from that, I've been happy with it.

1 like
Reply

Hi during my last 7 years of pd and different clinical trials I have done most of the dopamine agonists have caused me adema in my feet/legs. Bring this to your Drs attention. Be well. Judy

Reply

if there was something you could do to improve your condition , would you like the information emailed to you. This is real and must be take very seriously. Learning is important, so do your research on this.

Reply

Welcome to the Parky Family! This is a wonderful site with SMART people. I was DX in 2014 by a neuro/movement specialist in Sacramento who is well known in PD . Like you the first thot was stroke. I'm 67 and live alone and blessed that it's early Parky. I take Sinemet and recently Contan for off times. Keep coming to this site!!!! Blessings.

1 like
Reply

You may also like...