When I was first diagnosed 1.5 years ago, I decided that how to "come out" to others about my PD would be my own, slow roll out and that decision was really good for me. I wanted to be the one to share in my large circle of friends, community acquaintances and colleagues, one by one. I didn't want people to "hear" and feel uncomfortable asking me about it. Increasingly, I am open; however thus far I've kept it confidential in my work; until it feels relevant to share with others (none of my symptoms are obvious - mostly stiffness and rigidity, but people don't see that!). Publicly, I still feel uncomfortable being specific that I have Parkinsons; I feel more comfortable saying I have a "neurological movement condition" - perhaps because for people without knowledge about PD, the word "Parkinsons" brings up such a frightening and negative image. So often I see the gasp of "how awful," and that makes me uncomfortable. Plays havoc with my long time identity of being a really healthy person! And there is always the issue of meeting someone new and when I choose to share my health condition or not. Curious to know how others feel about all of this.
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