A update on how my PD is not progressing.

[Bailey_Texas]

I am 62 10 years  diagnosed with PD. 

Retired last year.

Meds 1 50/200 extended release carbidopa levodopa and 1 25/100 carbidopa levodopa  every 4 hours 5 times a day.  1 6mg requip 24 hour and 1 azilect 1 time a day. Have been on this regiment for 4 months.

 1 200 mg ibuprofen 2 times a day. 2 capsules of fish oil a day

Exercise 

Crossfit 5 or 6 days a week.

50 push ups a day 

Bike 15 miles a week average 1 hour.

Walk 1 mile a day

Side effects 

got to go do something feeling (restless)

Moody late in the day.

Problems

Hands get slow and stiff last 30 minutes of 4 hour cycle but does not happen if I am busy

Sleep but has improved the last two weeks to 6 hours a night

Good things

Go all day.

Smell has improve 

Taste has improved

Small set back 

Hurt my back digging a (2.5 hours non stop) 55 foot long 1.5 feet deep ditch for my brothers water line but am almost okay today a little stiff in lower back. Still work out but a little less intense. 

All and all i am improving day to day and am better today than 10 years ago. 

I started Crossfit January of 2015.

Keeping PD at bay.

Kicking PD's butt 

Bailey

  

[PatrickW]

You and I are on the same page - KEEP MOVING! I know a few people with PD and even though I've had it for 30 years, I'm in better shape than all of them. I don't do as much as you do but I do a lot. My enemy is sitting, doing nothing. Some days you have to do nothing but the more you do the less days you'll feel like doing nothing . Summary: when I'm moving, I don't have PD!

[Bailey_Texas in reply to PatrickW]

Finding something to keep busy can be hard. 

Moving seems to be the key.

[PatrickW in reply to Bailey_Texas]

moving is the key. doesn't matter what you do, just do it! I've had it for almost 30 years and believe me - that's the key, at least it is for me.

[BUZZ1397]

Sleep is restorative. Your routine is a model for therapeutic exercise. Do hope you find a path to longer sleep it seems you feel you need more sleep. Six hours used to do it for me but nowadays I like 8 for my brain to help me be more like my old self.

[JohnPepper]

Hi Bailey. May I ask you a question please, and don't feel offended. If you chose not to answer it I understand.

With all that levodopa and requip medication you take, do you have any dyskinesia yet?

John

[Bailey_Texas in reply to JohnPepper]

All aspects and  dealing with my PD are a open book. ask anything you like. 

No i don't have any  dyskinesia.

I have no been on it but about 18 months 

 i have a little Dystonia from time to time it was  worst at first but not so much as of late

I hope yet never comes

[JohnPepper in reply to Bailey_Texas]

Hi Bailey. I'm very pleased you don't have it. Just remember, dyskinesia is caused by the medication and not the Pd.

John

[Skymom2008]

Whew!  Thanks for sharing.

[Peaches]

Wow!  It sounds like you have found the key that works perfectly for you.  Very impressive.