mucuna pruriance: Ruthgt Iam 74 PD since... - Cure Parkinson's

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mucuna pruriance

ruthgt profile image
47 Replies

Ruthgt

Iam 74 PD since 2012 i us dopa mucuna fom NOW company it come as copsules each 400mg/ 60mg L DOPA .I take 3/day Is enyone using it?

Why do evryone here use Zandopa powder .what is the diferance?

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ruthgt
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Ramuu profile image
Ramuu

Generally Capsules are extracts from Mucana seeds , it loose many ingredients of raw Mucana , even Zandopa is only 84 % of raw Mucana , for best results Raw Mucana or Kapi Kachhu Indian name ( Sanskrit - Vedic Language ) is pure form and better strength of Natural L- Dopa. I have experienced 250 mg x 3 Capsules of Mucana( Himalaya Drug Company Bangalore India ) or 1.5 TBS of Zandopa is equivalent to 1 TBS of raw mucana / kapi kachu from Vaidyratnam Kerala INDIA.

SuperMNew profile image
SuperMNew in reply to Ramuu

Ramuu, I have been in touch with China for a 99% organic Mucuna seed powder.  I have not ordered yet, but I am wondering what your opinion is of ordering from China andor if you have experience with Alibaba (apparently a clearing house for international ordering) who put me in touch with this company in China.  The price seems reasonable for such a concentration.  5 pounds is $81, delivered to my door by DHL.

Ramuu profile image
Ramuu in reply to SuperMNew

I trust Vaidhyaratnam Kerala INDIA , land of Ayurveda , they do the treatment , they are growers & manufacturer of : Kapi Kachu ( Indian Mucana ) , I have taken treatment and seen their manufacturing process. They sell online  & export world wide by DHL ; if you are interested please see following links , it will lead you product : Kapi Kachu Choorna ( Powder ). Sorry I have no exposure to Alibaba & Chinese products.

keralaayurvedamedicine.com/...

keralaayurvedamedicine.com/...

SuperMNew profile image
SuperMNew in reply to Ramuu

I placed an order for the pure, whole Mucuna seed ground into powder from Banyan Botanicals.  I contacted their support, and got all my questions answered.  Their company looks solid, and the whole seed preparation, as they indicated, would supply nutrients that the regular extracts do not provide.  I'll report back when I have tried it.

Healthxx profile image
Healthxx in reply to SuperMNew

Please let me know if it helps in Digestive PERISTALISIS mpvements, which may be an early sign of PD.

SuperMNew profile image
SuperMNew in reply to SuperMNew

I quickly discovered that the whole seed ground into powder does not supply enough L Dopa. The EXTRACT is what I have decided to order and use.

However, I am also trying to use the Relaxis Pad to see if it will help. I will turn every stone to try to find relief from RLS.

ruthgt profile image
ruthgt in reply to SuperMNew

I use the capsules from Now campeny each 400 mg mucuna extract 120mg L Dopa I take about 5 a day .what is the amount you take. I have PD from 2012

SuperMNew profile image
SuperMNew in reply to Ramuu

Ramuu, I followed your links (thank you very much), but I can't read the package information.  Can you tell me if this is the whole seed ground into powder, and what the price per pound is in US dollars?  I would like to compare.

Ramuu profile image
Ramuu in reply to SuperMNew

It is powder form , it is packed in 100 grams box, in Indian Rs 69 /-  with current exchange rate that is equivalent to USD 1.05 per 100 grams pack +  DHL charges at actual. Please try to order min 20 - 25 boxes , so that DHL charges trade-off with weight.  In my case for example : I take  1 TBS ( Equivalent to 7.5 grams) x 3 times per day ,  Appx. 700 grams required per month i.e about 7 Boxes per month , I generally purchase 15 boxes 2 months ( one month buffer stock )  requirement from local Vaidhyaratnam's distributor, as some times goes out of stock . If you need any help , please let me know.

SuperMNew profile image
SuperMNew in reply to Ramuu

Thank you so much, Ramuu!  Blessings to you.

ruthgt profile image
ruthgt in reply to Ramuu

Rummam do you know how much l dopa there is in the amount of 7.5 gram that yuo take each time

Ramuu profile image
Ramuu in reply to ruthgt

7.5 Gram raw Kapi Kachu is equivalent to 25/100 mg Sinemet or Syndopa , but I don't really know how much L-Dopa is in it. Please see this link , you will get some more info : mucunapruriens.net/

Palmarloop profile image
Palmarloop in reply to SuperMNew

Hi, if you decide to order from Alibaba, would you mind reporting back on how it goes. It looks good but unless you can be sure of the manufacturing methods etc. there may be other ingredients you definately don't want.

Best wishes.

SuperMNew profile image
SuperMNew in reply to Palmarloop

I am probably not going to order from China.  I have serious doubts about the purity of what they produce.  Besides, their payment methods are beyond what I want to wrestle with.

Donzim profile image
Donzim

Probably because zandopa was the only one available to buy for a long time and even then it had to be ordered from India or the UK.

SuperMNew profile image
SuperMNew

Hi Ruthgt:  I also use the natural L-Dopa Mucuna Pruriens, both the capsules (40%, 600 mg) and the Zandopa.  I separate the Mucuna capsules by taking them apart and dumping the contents directly into water, then I put a scoop of Zandopa in with it.  The powder directly into water helps the MP to be absorbed quickly without having to dissolve the gelatin capsules in the stomach first.  The Zandopa has been used in professional studies with RLS and/or Parkinson's patients and they have documented that Zandopa begins to work very quickly (on an empty stomach).  I want as little delay as possible for this preparation to begin working for me.  I also take Ferrochel iron with this, which also goes to work quickly.  The two together, I'm told on this forum, helps to supply the anemic brain with what it lacks, which may well be the cause of the jumpy legs.  However, no one is exactly alike, so I suggest you experiment and see what might work for you.

Palmarloop profile image
Palmarloop in reply to SuperMNew

Banyan Botanicals looks good. I think I might order some macuna powder from them and perhaps we could compare notes. If you don't mind my asking, do you have RLS or PD (or both!). I was diagnosed with PD ten years ago. Not long afterwards I had all my amalgam fillings removed. I know it is a contentious subject, but it really worked for me. I think I would be well on my way by now if I hadn't had it done.

I buy macuna capsules from BIOVEA, tincture from Indigo Herbs and Zandopa.

Best wishes.

SuperMNew profile image
SuperMNew in reply to Palmarloop

I don't mind you asking at all!  I've had primary RLS for over 30 years.  Early on I knew something was wrong, but no one could help me.  It's been quite a journey.  Let's all of us keep in touch with each other.  That's the way we learn.  My order from Banyan should arrive either today or Monday. 

ruthgt profile image
ruthgt in reply to Palmarloop

A capsuls of mucuna from Biovea has 100 mg Ldopa how many capsules are you taking to treat parkinsons

Palmarloop profile image
Palmarloop in reply to ruthgt

I take six per day, three morning and evening. I take Zandopa and kapikachhu tincture. And meds but I've managed to maintain a low dose of these. Every day is different though so it's a work in progress!

SuperMNew profile image
SuperMNew in reply to ruthgt

I take iron in the form of BisGlycinate and 4 capsules of Mucuna, each 650 mgs. of 40% an hour before I go to bed, along with 1 scoop of Zandopa.  By that time, the leg jerks have stopped and I can sleep 4 hours on that dose.  I repeat the above when I wake up to my legs jerking again at 1 or 2 in the morning, then after a half hour for it to take effect, I can sleep another 4 hours. 

I have just ordered a 1.8 lb. bag of the pure Mucuna EXTRACT powder, 98% L-Dopa which will cut down on the cost of capsules, which I empty into water and throw the capsules away.  The dose I will need to take, hopefully, will be much reduced at 98% L-Dopa.  I ordered from powdercity.com/products/muc....  Ten grams of the pure L-Dopa powder is $3.71; I ordered 250 grams, which is 1.8 lbs. for $49.23.  I learned that the extract works much better than just the whole bean ground to a powder.  That is not potent enough for me.  We'll see how this works out.

ruthgt profile image
ruthgt in reply to SuperMNew

Thanks a lot for your detailed information. In order for l dopa to cross the BBB you need to take also Carbidopa. Without it only a part of the L Dopa will reach the brain. Someone mentioned on this forum that he is taking a separate product of Carbidopa.

SuperMNew profile image
SuperMNew in reply to ruthgt

Isn't carbidopa a prescription drug? 

ruthgt profile image
ruthgt in reply to SuperMNew

SuperMNew.you take a big amount of mucuna .Did you consult someone.How do you know it is safe .Did you do blood test ? Liver tests.to if it is not harmful

SuperMNew profile image
SuperMNew in reply to ruthgt

No.  I tried to find experts on the subject, but they were not to be found.  I read respected journals and studies and based mucuna and Zandopa as my choices on what I read, and the dosage I experimented with.  It took some time to discover what worked for me. 

stevie3 profile image
stevie3 in reply to SuperMNew

Yes. That's exactly what I did. 

ruthgt profile image
ruthgt in reply to SuperMNew

Yes but I saw one name of same alternative I try to find ask on the forum. I work in a laboratory.  Do a blood checkup.

SuperMNew profile image
SuperMNew in reply to ruthgt

Do you mean someone mentioned an alternative to Zandopa and/or Mucuna Pruriens? 

ruthgt profile image
ruthgt in reply to SuperMNew

No I meen alternative to carbidopa.the sintetice type alway l dopa and carbidopa are in the same tablet

ruthgt profile image
ruthgt in reply to SuperMNew

Zandopa and mucuna are not the same?

SuperMNew profile image
SuperMNew in reply to ruthgt

The packaging of Zandopa says it is 87& Mucuna Pruriens.  Explain what you mean.  I'm all for being educated.

ruthgt profile image
ruthgt in reply to SuperMNew

zandopa is a brand name in india for mucuna . on google write zandopa .there is a lot of information .the say it does cross the BBB  so zandopa and the capsules that you take are the same product by differant companys.it is not pure  ground seed  they do some prossidur to get more L DOPA in the product

SuperMNew profile image
SuperMNew in reply to ruthgt

Thank you for this information.  I did Google Zandopa and found some helpful information.

ruthgt profile image
ruthgt in reply to SuperMNew

On google zadopa is bioavalbe and can cross the BBBThe formula that I mentioned insted of carbidopa I lidosyn ,

ruthgt profile image
ruthgt in reply to SuperMNew

Is the staff you ordered from powder.com working better for you.I also ordered and want to hear your expirence.

SuperMNew profile image
SuperMNew in reply to ruthgt

Hello Ruth! Yes, I ordered mucuna pruriens EXTRACT, 98% powder from powdercity.com. I use 1/2 tsp 45 minutes before I want to sleep. That gives me approximately 3-4 hours of good sleep with NO symptoms of RL. I do have to get up and take more when the first dose wears off, but I do that, and I get back to sleep and sleep another 4 hours. It's not the best, but I am NOT taking prescription meds because they stop working after a while and you must increase the dose or go to stronger meds just to get relief from RL. With mucuna, there is no addition, no "having to take more to get the same relief," and no augmentation. Mucuna is a bean that has been used in India for hundreds of hears to control the symptoms of Parkinsons. It works for RL as well. To me, it is God's answer for sleep when the RL symptoms start.

For your information, I've discovered that a decayed tooth underneath a crown I have (crown was lined with aluminum) is probably the cause of my RL. Additionally, the dentist who put the crown on my tooth chose a composite that contained aluminum, a LOT of aluminum, and I didn't know it. That aluminum was leeching into my body and most likely was the cause of the years I suffered with RL. A biological dentist here in the USA removed that crown and the relief I am feeling from RL is significant. Just by removing the crown. Now I am going through a program to detox from aluminum. Each day I am feeling better and better.

The doctor who pointed out to me that I had a problem under that tooth's crown was right! But I had no symptoms: no swelling, no redness, no looseness, no cracks in the crown. But the doctor tested me and told me to have the crown removed and cleaned up. He was right!! I will now have a diamond crown (no heavy metals) put back on that tooth.

God bless you, Ruth. This is my story so far. Everyone is different, I realize. Your story is probably not like mine, but I just thought I'd share it with you.

ruthgt profile image
ruthgt in reply to SuperMNew

I ordered mucuna 98% and they said to take 2 scoop equivalent to 150 mg ldopa.0.03tea spoon how do you take 1/2 a tea spoon ? Is it not too much don't you have any side effects?

SuperMNew profile image
SuperMNew in reply to ruthgt

No. I don't have any side affects. I can't take more than a 1/2 tsp. at a time, though, because my stomach can't handle it. 1/2 tsp. gives me four hours sleep uninterrupted ONCE THE MUCUNA TAKES AFFECT. Sometimes it takes 45 minutes to take affect, depending on how big a supper I've had. You will want to follow the directions to see how the two scoops works for you. Mucuna is a bean, and I have found it to be totally without side affects. It is not like drugs that work at first, then they don't. And withdrawal from drugs is horrible!! The two scoops they recommend don't last but an hour or so for me. You will need to do some testing yourself. Mucuna is used by body builders and the young set to get their "feel good" experience. I take Mucuna to sleep! Mucuna has been used for hundreds of years to control Parkinsons disease, and it is quite common in India. Experiment to see what you are able to tolerate and how it works for you. That's what I did.

ruthgt profile image
ruthgt in reply to SuperMNew

Thanks you are very helpful I have parkinsons for 4 year I take 1 azilect and 2 amantadin and mucunab a for 16 month I began with 2 from n0w campeny and now I am on 8 . 1 before bed time and sleep much better..2scoop have 150mg IL dopa and my 2 capsuls from now company havr 120mg

SuperMNew profile image
SuperMNew in reply to ruthgt

This is good news, Ruth! God bless you!

ruthgt profile image
ruthgt in reply to Palmarloop

the capsuls from Biovea have 100 mg Ldopa how many do you take

ruthgt profile image
ruthgt in reply to SuperMNew

Your post helped me very much .emptying the capsuls to a spoon taking with water works better

stevie3 profile image
stevie3

I have to say I have been very happy with Zandopa. Mine comes from India and I order it through a company on eBay at a very good price. It's been very effective in my case.

SuperMNew profile image
SuperMNew in reply to stevie3

I, too, am happy with Zandopa.  Someone said it is 87% L-Dopa, which is pretty good.  But I would like to find out what they use to sweeten Zandopa.  If it is Stevia, that is fine; if it is some synthetic sweetener, that is NOT ok with me.

stevie3 profile image
stevie3 in reply to SuperMNew

I can't say that bothers me much. It does taste awful!

mymomhaspd profile image
mymomhaspd in reply to stevie3

Thank you for all your answers - how much mucana do you take . Do you alternate with sinemet or is there a different protocol you follow ?

ruthgt profile image
ruthgt in reply to mymomhaspd

I take7-8 capsules a day of dopa mucuna .400mg each capsule 15%LDOPA =60 mg I Try to buy mucuna 98% L Dopa from powdercity.com as SupperMnew mentioned on the forrum

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