Does anyone with 8 to 12 years of DX with Parkinson"s feel that they have their PD almost completely under control.

[Bailey_Texas]

If you feel you do please list your symptoms and meds and what ever you do to control your PD. 

This is me doing box jumps

Those are 20 lb balls we use top do wall balls we pick them up do a full squat and stand up and through them to the red line (10 ft high) 

Also there is a orange kettle bell that we swing above our heads i believe it is 25 lbs

[Beckey]

You're in good shape, Bailey. Hats off!

[Bailey_Texas in reply to Beckey]

thanks

[Beckey in reply to Bailey_Texas]

You're an inspiration. All that hard work done so consistently sure pays off. 

[movinngroovin]

DBS & daily exercise. Dx q almost 20 years! Couldn't be happier!!

[nourilo]

Your determination and hard work inspire!

[Bailey_Texas in reply to nourilo]

thank you

[gilesyassin]

I don't see the point of this post. Are you looking for another unicorn?

[Bailey_Texas in reply to gilesyassin]

why 

[hopedope]

Your picture is very inspiring.  You  really look good! 

[Bailey_Texas in reply to hopedope]

Thanks

[Hidden]

I had 15-20 symptoms per day, everything you typically get with PD, and it was spreading from my left side to my  right.   The weekend before I started Homeopathy I was not able to stand in the shower and taught my daughter how to give me a bed bath, when I could walk I was so out of breath and the anxiety was awful. I had lost 75# and was a skeleton, broke and broken.

It started when I swallowed a chipped tooth, 3 weeks later my wrist started shaking, then my hand, I had to quit work 8 months later, I also temporariy had the symptoms of Alzheimers and later on Fibromyalgia. I was dragging my left foot and shakiing all over at times.

One day I woke up and said to myself "what the H is going on here?" I looked through the scribble I wrote from looking at the internet and found someone's name and number and called him and said "why do I have your info?" he said Homeopathy was a very gentle effective way of getting rid of metals in the body----- I had had my heavy metal levels checked, and mercury, cadmium, and lead (19.9 scale of 20) were high, but the IV and oral chelation with EDTA and DMSA made me even worse. 

I knew how damaging lead was to the brain, and it worried me that I could not take care of my autistic child, she turned out to be my saving grace by making sure I at least drank water. With the last of my savings,  I hoped and prayed that this would work, every time I exercised I would get much worse, and tried everything else. Within one week I started sleeping better, memory improved, anxiety way down, and I felt human again, the shaking and foot drop the same. The homeopath said I had to get my amalgams removed before the metals could be chelated out of the brain, so I did this, it was a total of 12 hours in the chair, and I found a dentist that safely removes amalgams, now 2/3s of my shaking is gone, and I improve everyday. And my precious daughter had secretly saved the money to have it done with her part time job (tears).

 I'm not saying this is the answer to your PD, you wanted my story and here it is. Yes, I had been diagnosed by 3 neuros including the movement center at UCSF and I'm still on a low dose of Rytary which is the med that didn't give me horrible dyskenesia.  AND I can exercise without getting worse. Now I can get in the gym Bailey!

  Thanks for letting me tell my story, I know this is contraversial and I've gotten flack on this site for mentioning amalgam toxicity but the last 3 yrs. have taught me so much, and I'm so grateful everyday to wake up and feel good. I still shake a little on my left side, but when I bake and dance I don't shake at all-------so I dance!  It keeps me from gaining too MUCH weight from all the baking,  LOL.  and a little insomnia from all the sugar, but I  hope to be as fat and sasssy as I once was. Blessings to all of you, and as I remember my daughter saying DO NOT GIVE UP!

Suzie, RN

[Hidden]

PS Yes I know my diagnosis isn't that long ago, but  at least 8 yrs ago I started having migraine headaches I couldn't control, and nightmares----when I went to the first neurologist he said nightmares were sometimes the first sign of PD, because of the lack of REM sleep. I continued to have screaming nightmares until I got relief.

Suzie, RN  (ok ok I'm going to bed now!)

[Bailey_Texas in reply to Hidden]

Thanks for your reply

What ever works for you 

[DEAT in reply to Hidden]

Mtnstream

I have been dx 10 mths and have minimal symptoms. However most nights i have bad dreams and my husband tells me i scream in the night. This is probably my worst symptom. I exercise 6 days a week.

Interesting that you got relief from your sleep issues.

[Bailey_Texas in reply to DEAT]

 meds can cause the dreams what are you taking

what are you taking

I get about 4 to 5 hours a night enough for me 

[DEAT in reply to Bailey_Texas]

I am not taking medication yet.

[moonel60 in reply to DEAT]

Hi yes i was diagnosed November 2014 I am 55 yrs old and started dreaming and screaming! Got left hand tremor , now get painful knees not sure if from PD or increased weight gain from meds I was taking. But The natural oils im using taking care os symptoms .

I wish you well and that inspires me that you excercise so much I really think excercise a big factor in controlling Pd. 

[stevie3]

I think for many of us, the formal diagnosis is the 'aha! I knew there was something...'moment. For at least three years prior to my dx in the autumn of 2014, I'd been acutely aware that something was wrong. I chalked it up to a trapped nerve, but I kind of knew it wasn't. When I was being investigated, they were ruling out things like MS, brain tumour etc, so in the end, I felt PD was the least worst option. Whsn I saw the neurologist after the tests, I'd already worked out what it was. My approach is to use the lowest dose of medication possible consistent with a good quality of life. I investigated supplements and take those I think are worth taking. And exercise, as everyone says, is the biggie. I didn't know that until I found this site - no one in the PD medical team even mentioned it! This morning, I was very stiff and slow. I just got back from the gym, where I did high intensity cycling (most reluctantly, let me tell you) and I feel much better. Which is just as well, because I'm taking my teenage daughter shopping and that requires more stamina than Bailey's cross fit!

Sue

[Angelo65]

What's dx. How long you had pd. How best do you feel is best program to take control of pd. I've been diagnosed nearly 3 yrs. I'm very active also. 

[Bailey_Texas in reply to Angelo65]

Dx is diagnosed 

I was diagnosed with Parkinson's 10 years ago.  I am 62.

I believe that a aggressive exercise program like Crossfit along with a very active life style free from stress as much as possible. Along with a also aggressive medicine approach. By that i mean as much medicine you can tolerate to control your symptoms so you can do every day chores as well as exercise. When i do Crossfit at the end of the program I am laying on the floor with nothing left to give. I push as hard as i can.