I have just returned from second visit to my neuro in three weeks. I want to update my fellow parkies and especially those that have been following my adventure.
After three years no drugs, I recently experienced trial run (about 1 month) let’s say of first sinemet and then, after stopping sinemet three weeks earlier, for the last three weeks I was on ropinirole. I told my neurologist that neither medicine did improve my condition.
Backing up for a moment, the first question I asked, “what percentage of parkies live out their lives and only have, primarily, tremors. He answered that of tremor dominant parkies, 5%.
I recently had to have surgery by a plastic surgeon. He made astonished comment when I told him I was not taking P meds. He said “But look at your arm!” I related that to my neuro and went on to explain my desire to continue med free. With one exception, I thought if I took one ropinirole in the evening that may calm my tremors. As my experience seem to indicate. He agreed with my med free desire but explained most P meds do not control tremors. Amantadine is for the control of tremors. He said I could get an across the counter substitute with Benadryl (generic cheap but identical drug) at 100mg one hour before retiring for the day.
For now I am again drug free.
I think this is enough for now, I have chores waiting (six cats). I will probably think of more to say after posting this/