I was brought up to be very considers about other people's views and openness. At a party you never discuss religion or politics and you always take the hostess a gift. unusually I am going to type a post that is more controversial than I would normally. What has prompted this is my pet hate assumption. Worse still assumption that points the finger of blame to people who actually are trying to help. How can I be so certain that my viewpoint is correct it is because it is not based on assumption it is based on experience over seven years. I think that means I have a valid point. Some of you may already know that I have been a Parkinson's disease ambassador and I spent many years working on the inside track i.e. within the pharmaceutical world. During this time I spoke to and engaged with over 12,000 employees managers CEOs and owners. My remit was very clear to provide insight intelligence and representation for patients. I was not a marketing pawn and I operated at the highest level. What I know is this :
1. Pharmaceuticals invest heavily in research and development to progress options and solutions for us patience
2. They do not withhold information. However they are tightly controlled and restricted by external bodies.
3. Their wish is only to operate in a culture of transparency
4. They are trying to shake off the reputation and misinformation that so many have about their industry. But they are unable to advertise unable to have marketing campaigns and unable to promote themselves in many ways.
So before you point the finger and accuse please make sure that you know for yourself exactly what you are talking about.
I have met dozens no hundreds of dedicated passionate intelligent fearless people desperate so desperate to find solutions for us in the best way they know how. I won't have their commitments hard work and effort's trashed through ignorance.
You may think that I have been dancing with the devil but better the devil you know.