Pulses not pills: I have been toying with... - Cure Parkinson's

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Pulses not pills

20 Replies

I have been toying with the idea of taking vitamins and supplements and I read so many of you do. As with everything to do with my pd life I think very hard about these things. I have concluded the following for me :

1. I pop enough pills

2. I'm not sure how effective they are

3. They are expensive

4. If I did I would have a full blood nutrition test to find out in black & white what my deficiencies were

But you know what I'd rather spend the extra money, time and effort on real food.

When was the last time you ate...

Fresh figs

Steamed asparagus

Fat purple cherries

Gorgeous red grapefruit

Scorched red peppers

Toasted pistachios

CHH

Read more about...
20 Replies
12stargate profile image
12stargate

Good points Collen!

I have the vitamins and supplements too.

Then I don't take them . when I do , they don't seem to make a difference any way.

Last night I gagged on my medicine.

I so agree, let's eat the lushus fruits and veggies available to us.

I will have blood test now and then to make sure I am good!!

For me, stress reduction is a high priority!!

Thanks and enjoy your day h

Blessings Eva G

🍀🍀🍀

in reply to 12stargate

And of course there is the added extra of simply the joy eating them now that has to add to our pleasure bank !

🍌🍉🍒🍇🍍🍓

12stargate profile image
12stargate in reply to

Soooo true!!!👍🍒🍒🍒🍒🍒

In the US we have the most expensive pee in the world. It is full of excess vitamins and supplements an Rx. drugs.

If we eat well and get enough sunshine (for vitamin d) we will do just fine.

This as list of supplements that one site recommends PWP should take every day the total amount is 35 pills a cost of about $500 a month.

SuperR-LipoicAcid

Supper OptimizedCarnitine

OptimizedResveratrol

Lunch FloraProHealthProbiotics

SuperBioCurcumin

LiverSmartMilkThistle

SuperiOmega3

N-Acetyl-L-Cysteine

VitaminD3

VitaminK2

DigestWiseDigestiveEnzymes

GreenTeaExtract

UbiquinolCoQ10

VitaminBComplex

VitaminC

GammaETocopherol(VitaminE)

S-Adenosyl-Methione

Melatonin

in reply to

Bloomin heck! That's a lot of cherries! 🍒🍒🍒

Skymom2008 profile image
Skymom2008 in reply to

Where did you find this list? Thank you!

in reply to Skymom2008

under this post on this site

Inspiring website

fight-parkinsons.org/

gilesyassin profile image
gilesyassin

I had a complete metabolic panel done and was very surprised by the results. I was in the normal range for everything. I thought I would be deficient in something due to PD, the medicines or the fact that I don't take any vitamin supplements. I just eat healthy home cooked meals. The only medicine I take is Sinemet. If Sinemet works for you, the other medicines may not be necessary.

Court profile image
Court

Hi Colleen

Strangely enough I also have been wondering about supplements. However, I reached the same conclusion as you have. My meds are so perilously balanced that I am frightened of upsetting the applecart. It took a long time and effort for my Consultant to get me where I am today and I am grateful for the time she gives me.

Your list of lovely delicacies has to be a lot better than even more pills.

Sue

in reply to Court

That's my view too, however I do appreciate it may work for others!

I'm craving Pineapple today! 🍍🍍🍍

Beckey profile image
Beckey

Ooh, yum. If it weren't 2 a.m., I'd stop in at the natural food store that just opened up across the street and fill my bag with fresh foods!

Christin313 profile image
Christin313

I like the idea of buying nutrient rich good versus buying a list of supplements.

Supplements really do get expensive. We had a list to purchase each month, with COQ10 being the most pricey. Then a prescription supplement called CerofolinNAC was added, and the best price we could find was 50 (USD) per month. Much better to buy quality food that will deliver nutrients more effectively anyway.

Christin313 profile image
Christin313 in reply to Christin313

Just had an additional thought regarding raised bed or container gardening. It's a great way to get a little exercise and enjoy watching vegetable plants or herbs grow. Containers are good, because they can be easily moved and kept at a height one can easily reach.

It's almost planting time where I live, so I have both spring and planting fever.

stevie3 profile image
stevie3

Yes - my father-in-law has made me some raised beds. Last year, we had lettuces, radishes, spinach, tomatoes, strawberries and spring onions all through the summer. This really helped me to eat in a more healthy way because there is nothing like picking something from your own garden/patio for dinner! I grow herbs all year round and I make a lot of soup. I pay much more attention to trying to stay as well as possible these days and I've (deliberately) lost a huge amount of weight. I did this just before I was diagnosed. I had been very overweight and I think if I still was, my PD would be much more difficult to manage. I was just saying to my husband this morning that I needed to start planting the first tranche of salad soon. I get a huge amount of pleasure from this. As we have said here before, sometimes it is the little things that can keep you going.

laglag profile image
laglag

I agree with going as natural as possible (and I love reading all your yummy sounding posts), but I believe that PwP's need lots of extra antioxidants & I think that's hard to do with food alone?

in reply to laglag

I'm not sure which is why I'm always so careful . A good dose of spinach should help!

laglag profile image
laglag

I put spinach in my smoothies.

stevie3 profile image
stevie3

I think it is hard to get everything from food. I try to eat well - lots of fish and salad in summer, homemade soup in winter. Although I have a weakness for cheese and chocolates and recently have found myself somewhat addicted to crumpets. But I do take quite a few supplements.

in reply to stevie3

Crumpets haha!

hopedope profile image
hopedope

My only PD medicine so far is Sinemet which someone else mentioned. I take omega 3 1000 and vitamin D 2000 and curcumin most days. The omega 3 has made my eyes much moister so I don't need restasis now. We do eat lots of spinach and berries and I get about 29 grams of fiber every day. Except for the Sinemet I have been eating this way for many years (and since I am the cook my husband has too!) . I think it is hard to get the omega 3 from diet and if we use sun lotion outside (PDers can get more melanoma than others) we probably need the vit D supplement. I also think nuts are a good way to get nutrition. I guess PD people just really need to be aware of all they do and that includes eating. My sense of smell is not gone completely yet but is not real strong and I hope I don't the sense of taste which we can lose.

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