Which supplements are better for parkinson

[Rasa2006]

Hi

Does anyone know which brand and what multivitamins are most effective for parkinson disease.

Thanks for your help.

[stevie3]

I take a multi vitamin marketed under the brand name of phenergen. Having done some research I currently take magnesium for cramps, a huge dose of emergen C for stiffness, Q10, vitamin D and, since there is a trial going on, Inosine. Mostly, I feel very well and my energy levels are much improved. It's trial and error, research and experimentation and, unfortunately, spending some money. Magnesium is cheap, the others are not.

[healthabc in reply to stevie3]

are the other supplements you listed contained in the multi, or in addition to your multi? I am taking a slew of vitamins, and would love to hear more responses on this topic

[stevie3 in reply to healthabc]

In addition to the multi vitamin

[Motal in reply to stevie3]

Stevie3, can you tell what impact the inosine is having?

[stevie3 in reply to Motal]

No. See my reply to Stargate - this is about whether Inosine delays development of PD. I'm taking it as I'm in relatively early stages (I have a clear diagnosis backed up by a second opinion, so I'm not in any doubt). So, I suppose I won't ever know, but if my condition progresses slowly, then hurrah! I think the trials have already shown enough promise for someone at my stage to invest in taking inosine, which is relatively inexpensive.

I know Zandopa works, because I have experimented by not taking it, and my symptoms are worse and I'm pretty sure the other supplements work, because my energy levels have improved and they had been quite low.

[cshamb in reply to stevie3]

Can you take zandopa with sinement?

[stevie3 in reply to cshamb]

I don't take sinemet so wouldn't like to say. But if you use the site's search engine, I know there are posts on this from people who do take sinemet.

[movinngroovin in reply to cshamb]

No-it is the same thing & can cause stomach issues and dyskinesias

[12stargate in reply to stevie3]

How much of the Inosine do you take daily?

[stevie3 in reply to 12stargate]

Hi Stargate. I know from your posts that you do a lot of research into stuff so just briefly, the point of Inosine is to raise uric acid levels as people with raised levels appear to have a lower incidence of Parkinson's. You shouldn't take it if you've a tendency to gout or kidney stones. I'm about to invest in a monitor to test my uric acid levels, as that will give me a better idea of dosage. I'm tirating up to 6/8mg a day. Currently on 4mg.

I think the thing to note is that this is being tested on people with early PD, like me, to see if it delays development. But the trials look promising and interesting.

michaeljfox.org/foundation/...

sciencedaily.com/releases/2...

[racerCP in reply to stevie3]

Would not eating spinach every day raise uric acid in the body? Of course spinach also has a lot of CoQ10 as well. I take the CoQ10 but the study finding was about 1200 mg of CoQ 10 was the effective amount...very difficult and expensive to maintain.

[stevie3 in reply to racerCP]

I make a lot of spinach soup.

[hopedope in reply to stevie3]

We have salads every night and they are very often baby spinach or arugula & spinach or mixed greens & spinach salads. We like them and maybe they will actually help delay "the disease" :).

[p-oui in reply to stevie3]

My MD told me not to take Vit C with Inosine

[lempa_nik]

SUPPLEMENTS & HERBS FOR PD

As a starting point, please see:

parkinson.org/understanding...

There are "indications" in various studies that the supplements listed in the following may possibly bring some benefits for Parkinson's patients:

fight-parkinsons.org/supple...

(A caution: I have read a warning from the NYU Langone Medical Center--in a 2014 file that seems to have been removed from the Internet--that SAMe, which is mentioned in this list, may reduce the effectiveness of levodopa.)

[lempa_nik in reply to lempa_nik]

In addition to the preceding, here is authoritative info on a large variety of dietary supplements:

ods.od.nih.gov/factsheets/l...

[Rasa2006 in reply to lempa_nik]

Thanks for you information. I read the links, but do you know which brand contain these elements such as curcumarin, silymarin, nac,....?

Thanks

[lempa_nik in reply to Rasa2006]

You won't find all those items in a single pill. If they ever made a single pill with all the goodies in it, and in adequate dosage, it would be as big as a golf ball. I have about two dozen bottles of different kinds in my fridge or on my dresser. But I hate swallowing pills, so I have started to empty many of the capsules into a tablespoon of applesauce, and scarf it down that way. (By the way, the white powders in capsules are usually OK for this apple-sauce strategy, but the brown/beige/off-white ones normally taste too bitter or sour, and had better be swallowed in the usual way, as capsules.)

If you can't afford, say, $200 a month for all these supplements, I would recommend that you at least take a good , all-around multivitamin. My personal favorite so far is Natural Vitality's "Organic Life Vitamins," which is liquid, and comes in a 30 oz., green bottle. It runs about $25-$30 online for a month's supply. My two favorite places to shop for supplements online are Amazon.com, and SwansonVitamins.com: prices are low and delivery is incredibly fast. If $30 is still too much, Swansons has a nice Whole Food Multivitamin (without iron) that currently runs about $10 for a one-month supply. The tabs are pretty big, but you can chew them (though they don't taste great.)

[Donzim in reply to Rasa2006]

You can subscribe to ConsumerLab which is very helpful in testing and rating different supplements.

[moonel60]

I am about to go on a suppliment from a brand called do Terra , I have been using their essential oils which are 100% pure oil no adatives and organic they are brilliant. Ive only been using them a few months but they really work!! A few drops of frankinsence in palm of my hand then rubbed on back of my neck, takes away tremors. I will let you know how suppliments go after a month of taking them....

[Dottie2 in reply to moonel60]

Do you have to put frankinsence in an oil before you rub on your neck?

[hanifab23 in reply to moonel60]

do they have a website what is the oil called

[hanifab23 in reply to moonel60]

what is the name of the oil.

[healthabc in reply to moonel60]

how is the terra supplement going? I am aware of the supplements/ brand, and wondered...

[Donzim]

Dr mark hyman writes extensively on it. Somewhere in here is our extensive list that my husband takes, Purecaps multi,carnitine, carnitine, lipoid acid, q10, Purecaps E, lots of C, NAC, isoquercetin by Integrative Therapeutics,extra D, ppq, melatonin, theanine, magnesium, Jarrow curcumin phytosome, b complex, coconut water and oil, Dribose, trace minerals, Purecaps electrolytes,probiotics, omega 3 from OmegaBrite, ashwagandha. glucomannon or glutamine for regularity. phosphatidyl serine for memory. Sometimes pycnogenol and resveratrol. This does not include thyroid and heart meds. Now that Don has a major heart issue and can't scarf down so many pills, I have discovered that emptying most of these into a drink with baby fruit purée, Splenda and a GOOD yogurt is a perfectly good way to take them. No oil based vitamins like D or ubiquinol as it makes it taste terrible. Just taste it yourself as you go.

Each one has a specific purpose. The idea is to keep all systems working as well as possible and avoid the 'anchor effect'.

I specifically mention brands on some because after years of studying it is my opinion that it is the best product available in that category.

Phenegan is not a vitamin or mineral but sometimes comes packaged with them.

[Beckey in reply to Donzim]

What is the anchor effect?

[Donzim in reply to Beckey]

When one body system goes down and it's not addressed, there is an increased likelihood that others will follow.

[stevie3 in reply to Donzim]

You are right. I said Phenegan in error - I meant Pharmaton, which is the brand name of the multi-vit I take.

[Lynnie1 in reply to Donzim]

Donzim i just read your post with great interest. I know it's been a year, but do you still take phosphatidyl serine? If so, what dosage? My Ron is having hallucinations, the Neuro has agreed to reduce his Sinemet and I asked him about phosphatidyl serine. He was completely non commital, of course, as he was when I asked about Mucuna Pruriens. His nurse is a lot more understanding, and kind of said to try it. We're desperate, they want him to take seroquel, he has a disabled son at home yet, we're waiting for placement in a group home. Does PS help with your memory?

Thank you!!

[Hidden]

Besides a multi vitamin my husband has taken calcium and 400 mg of Q10 for the 15 years he has had PD. He has also always walked as much as he can and worked with a pt twice a week. He is still walking, slowly but surely.

[Beckey]

I've never been crazy about multi-vitamins. There are some vitamins or minerals that don't work well together -- vitamin E and iron, for instance. Some work better together than they do individually -- vitamin C and iron. And there some I would not want to take every day -- vitamin A in particular. I take calcium and magnesium every day, likewise flax seed oil, vitamin B, and turmeric. It's my understanding cold press as a processor yields the best and most usable product. I scratch my head whenever I see an article promoting berries as a diet staple for PwPs, because I go through a carton of strawberries, blueberries and blackberries in two or three days.

[yellowhumpy]

This depends very much on your genetics. Many supplements can do more harm than good unless you have a good functional medicine doc who understands your genetics. Especially if you have CBS snps/mutations and either over or under methylation MTHFR. This will affect what kind of supplements you need and which ones you should definitely not take. VITAMIN C, zinc and magnesium are some to consider. Also you need to be very careful about selecting quality products. Pay attention to how you feel if you decide to add supplements. If you don't feel well or feel nauseous when you take them then your body is telling you something. Listen.

[Hil101]

I'm very late spotting this post but do have a look at 'fight-parkinsons.org' website which distils masses of proper research into a list of most-helpful supplements.