I have been taking 3 carbo/levo (25-100) per day for 4 days. don't notice any reduction of hand shaking. But I do feel strange. memory is bad. organiztion skills inferior. sometimes feel very weak.
Any of this sounds normal? if not what should I expect?
how did u feel before starting meds
Hard to do but be patient, increase dosage only slowly, keep active mind and body and see how you are in a couple of weeks. Initially everything little thing is easy to attribute to the drugs.
Another thought is why you are taking the l dopa? Is it under advice to use as a diagnostic tool? Or does the shaking restrict your productiveness?
Hi Davy. You might not be aware that NO PD MEDICATION HAS ANY EFFECT ON THE PROGRESSION OF PD. That means that if you do not feel any temporary improvement in any of your symptoms you should stop taking the medication, it is not doing you any good. The only know way to reverse any of your Pd. symptoms is to do FAST WALKING!
Go onto my website - reverseparkinsons.net for more info on this.
Good luck
John
John she did not ask about your opinion
on the drugs just about side affects
you have no reason to answer this post but to advance your agenda
this is a can answer you post all the time
Don't you have nothing better to do than try and confuse new PwP
you blasted my post to just get your face on the site
your claims are unsupported
you are a anti med person and should be band from posting or replying
do not put any stock in what he says
he is misinformed and behind the times
all my post can be proven
so just get off this site and the world will be better for it
Hi Bailey. You appear to think that I am doing this for my own benefit. I AM NOT HERE AT ALL FOR MY OWN BENEFIT, I AM HERE FOR EVERYBODY'S BENEFIT! If I don't tell patients that they are wasting their time and money on drugs that do nothing to stop or slow down the progression of Pd. then nobody will.
If what I am saying is false then take me to task on it!
I am not behind the times I am leading the pack in this drive to make patients aware that the brain is plastic and it CAN CHANGE. We have known about GDNF and its power to repair the damaged brain cells for well over 20 years, so why aren't doctors telling their patients to do FAST WALKING instead of pumping them with medications that have serious side effects?
I have just returned from a trip to England and Holland, where I spoke to over 500 people and showed many of them how they are capable of walking normally, when shown how. I did this at my own expense, not knowing in advance that they would reimburse me, which they did very generously. Two men in wheelchairs were able to walk normally within less than 2 minutes.
I don't have to apologise to you or anybody for not having the medical profession's approval for what I do. They should be fully supportive of what I am doing, not against it.
Grow up!
John
Warm hello John,
They should be fully supportive of what you are doing, not against it. Maybe the rock throwers would be more supportive of your points if you were more aligned with their opinions.....
As proof you're not in this for profit, not book sales; A PwP or caregiver need not order your book, only go to your website for free details clearly written therein with no subscription request.
Kind regards,
royp
Hi RoyProp. Thanks for this support. I tend to be my own worst enemy. I am short and to the point with responses and don't first acknowledge what the others are saying.
I don't expect patients to give up taking medication and I don't expect them to follow my lead, but I do feel that for those who want to get better they must first be aware of what the real situation is in the Pd. world.
It is not an ideal world but there is HOPE out there and it all depends on what the patient is prepared to put into getting better.
I have given proof many times in this HU site of what fast walking can do for us. I have given proof of what GDNF does to the brain and what produces GDNF. For the full story surrounding GDNF and what FAST WALKING does for us they would need to go to my website - reverseparkinsons.net and read all about it.
I sometimes feel that some patients get pleasure out of being a Pd. patient, with people running around after them and looking after them. But what about the care-givers, what sort of life are they experiencing.
Surely we owe it to them to do our best to get better, that is if they believe that the CAN GET BETTTER.
John
You bring:
1. hope - moves us forward day by day
2. action - that we can take now
3. encouragement - to face down our fears
Not to worry, Bailey. We're all grownups here. Each post resonates with some folks more than others. The key for me is, is the poster encouraging the reader to do something dangerous? Or is the person pushing a line of products? If the answer to either is "yes," I would object. By my stock, John Pepper does not fit the bill.
i was not upset by his agenda
his lack of knowledge
and his attack on every thing i posted that day
was what got me
it is his way making people look stupid
weather him ment to or not
sorry i am just stupid
Any changes in what you had prior to taking the med? My husband has memory prob and he is weak but at least he can walk and eat without issues. Everyone is different.He has been diagnosed with PSP.
It took a few weeks before I started to feel better on Sinemet. Hopefully you will start seeing some benefit soon. As Mr. Pepper said, no drugs will cure PD, but oftentimes, they help you feel much much better. Exercise helps too, but it is no cure. I prefer to to fight PD on all fronts. Drugs, supplements, and exercise.
What is the down side of just taking Levodopa and not carbo/levo (simemet)? I heard that Levodopa is a natual product that works well with other medicine and Carbodopa is not a natural product that does not work well with other medicine. I feel great, Just little hand shaking until I take simemet. Then after I take simemet I feel week and weird. Like I have taken some poison and my body trying to throw it off.
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