just been diagnosed with Parkinsons. struggling with meds. On Sinemet 25/100 3 times a day. Hair is falling out. Can anyone help? Does it stop. Also balance bad as swaying. Janx
Parkinson: just been diagnosed with... - Parkinson's Movement
how old are you
do not wait do not think about it just do it
i write to you with tears in my eyes i believe with all my heart and soul that this will improve your life
you have a chance of a life time to help control your PD you need to start a exercise program as soon as possible you can slow or reverse the effects of Pd and reduce your need for as much meds
any fast pace and varied exercise that pushes you to be stronger everyday will help
but i am a living example of what exercise will do for you if you are not able to do extreme exercise do what you can do the research and you will find a lot of people that agree with me
I stared crossfit in my 9th year of my Pd and am now better than i was 5 years ago
this is me i work out 5 or 6 times a week
good luck kick and fight for your life it gives something to focus on look forward and kick Pd's butt
we (all PD people) have been there and done that so lean on us we will hold you up
the exercise will help with all your problems
with great hope for you
CrossFit is constantly varied, functional movements executed at high intensity. Ok, now that you are saying “What the *@$&”, let’s break that statement down. A functional movement is a movement that incorporates multiple joints and can move a large amount of weight over great distances in a short amount of time. By constantly varied we mean that we do not repeat specific movements regularly as part of the main workout. High intensity means that we do these movements as fast as possible as part of a timed work out in order to move as much weight over a long distance in as short amount of time as possible. Why do we do things this way in CrossFit? Well, we are trying to increase your power output (Power= (Weight*Distance)/Time) across broad, time and modal domains. CrossFit is designed for this singular purpose. We want to turn each and everyone of our athletes into a race horse, not a show horse, aesthetics are purely a by-product.
Fitness is most easily described through the 10 general physical skills: cardiovascular/respiratory endurance, stamina, strength, flexibility, power, agility, speed, coordination, balance, and accuracy. In CrossFit, we believe that you are only as fit as you are competent in each of those skills, which requires a wide variety of exercises and workouts. This type of fitness breeds general physical preparedness, which simply means that you are not a master of one skill, but are prepared for all of them. Fitness also includes eating healthy, which is as simple as eating lean meats, fruits and vegetables, and some nuts. Being fit is not merely being healthy, it is a higher standard and harder to achieve.
typical work out
can be adjusted for your fitness level
about one hour
all done supervised by 1 or 2 trainers
PreWod (wod is work out of the day)
150 JUMP ROPE
30 Good Morning 945 pound bar across shoulder bend over at waist)
20 Hollow Rocks (lay on floor and rock back and forth)
20 Arch Rocks (lay on floor on back and rock back and forth)
3 RM Deadlift (I did 295 pounds)
8Min AMRAP- HSPU, TTB, BURPEES
8 Min Amrap (as many reps as possible)
5 HSPU (hand stand push up)
7 TTB (toes to bar hang from pull up bar and touch toes to bar)
My hair was falling out not so much anymore, it was also very gray. Have you had your thyroid checked, this gets missed a lot for the men for doctors only see females with hypothyroidism. I was normal and took a drop of iodine seems to have helped, and B6 also replaces what is lost with Sinemet.
Had thyroid and appears to be good.
what drugs are on
Sinemet 25/100 three times a day is "standard" treatment. I chose to start with mucuna (actually it's fava bean in capsule form) and when I did choose to start sinemet, I only took 1/2 a pill and I am only taking it twice a day.
My exercise is swimming and stationary biking. Exercise is incredibly important.
Best of luck.
Hey Allyn - I've just purchased some Mucuna capsules. I'm not yet on any medications for my PD. I wondered what does you were using?
Hi Stevie, I take a Mucuna which contains 600mg per tablet - I take 4 a day (2 early am and 2 around 1-2 pm. I think it helps me - adding just 1/2 a sinemet at the same times helped even more.
I started taking Mucuna when it was going to be 5 months before I could see a neuro after I (self diagnosed) noticed parkinson's. I wanted to do Something! Then after reading about all the side effects of parkinson medications, I'm glad I didn't get the appointment quickly.
I had lots of time to research herbs and exercise programs.
Thanks Allyn. I've seen a neurologist three times - have a definite diagnosis but not on any drugs yet. I have noticed I'm getting worse - less steady and slower and I guess my main worry is that my driving could be affected although it isn't yet. I have to drive to get to work. My next appointment is in January and I've asked for it to be brought forward. I've heard nothing so I'm investigating alternatives. I have an exercise programme and I've bought some Mucuna. I will start with two capsules a day and see where I go from there. I appreciate your response.
Learn all you can about PD. Join a support Group. You can learn so much from others. Have your thyroid checked. That can cause hair loss. Prepare for your MD appts. Make a list of your concerns. Write down dates and times things happen to you . For example your balance issues. Is it only when you first stand up or all the time. Make sure you are taking meds on an empty stomach for best absorption.
Do NOT blame everything on PD. Be your own advocate and do not back down if your questions are not answered.
Have you had your thyroid levels checked? Hypo or hyperthyroidism can cause this hair falling out situation.
Thanks for all the replies will respond later in week as dayran away. Janx
Have you experienced hair loss on Madopar and amantadine? hair still falling out