Hi all, Just a shot in the dark here. My sister has been diagnosed with a rare condition called Empty Seller Syndrome ESS for short. This is a problem with the pituitary gland which causes lots of miserable things mainly headaches pressure build up, sight problems, dizziness, black blacks, she's lost her job due to illness it's sad to see her. Anyway she has to attend for a session of treatment where through a hole in her back they do some sort of lumber puncture to release the pressure in her head, this gives temporary relief sometimes just for a few days, and she can only have this done so many times.
This must be a neurological disorder due to her seeing a neuro at the hospital appointments.
I wanted to see if I could find a specialist who specialises in this complaint? I have tried google searching for ESS neuro UK, but come up with nothing, I have messaged the pituitary foundation to ask them also. Has anyone any ideas or any knowledge of this condition please? Regards to all love G🌝