After 2 hours of painstaking typing I lost log. But with a few bites of dark choc. And my extreme stubbornness I will try again. I was diagnosed 14 years ago with Parkinson's. I was a teacher at our local college, competitive curler and training for my first marathon. I was in the best health I could be. I would occasionally trip delivering my rocks or fall holding the broom. I just put it down to being a busy working woman raising 3 beautiful daughters. I wanted to be in better shape and over a 2 year period I took up running in preparation for our city's 10 mile race and the onto a full marathon. I so well prepared except for the occasional bouts of fuMbling feet. I started to notice a weakness in my left side. I would occasionally loose the left leg. I would be running full out and down I'd go. I did all the normal thing such as changed runners, maintained a better warm up and drank more water. I then started to notice my left leg and sometime left arm having a life of their own. They would shake uncontrollably while sitting at my desk. I was rapidly loosing the feeling in my feet and the strength in my left arm. It felt useful most of the time.
I then became very sick. I had 3 tumours removed from my breasts(benign) and ended up with pneumonia. Even though I was physically in good shape I just could regain the movement and all I wanted to do was sleep.
I endured every test discussion, abuse to depression. Nothing made any sense and I was starting to question my body and mind.
After much deliberation "Parkinson's was mentioned, I had been tested for everything else" what did I have to loose. My great grandfather had been diagnosed many years earlier. The dr s had alway suspected my grandfather but he was never formally diagnosed.. I was in my mid 30's at the time and everyone said I was to o young.
My gp started me on a low does oflevodop-levocarb 100/25 2 tabs x 6 daily, I also. Take levocarb cr x 6 X-ray, mirapix 6 x day,rivastigmine3.mg x 2dAily. To help with my sleeplessness we have added co-quetiapine
Like a welled oiled car thing seem to be going alright. I had even stopped using my cane and my seizure medication. I seem to be having more seizures with the med. it also made me feel like I was in the twilight zone. Even though I was back exercises I didn't seem important anymore.
On my last visit I was resolved that my life was going to quiet. I took myself off the seizure med the alternative was not living. Not on to of everything else. I had done some research on the cyanogen diet. With the support of the genetic diet I feel I am making healthier . I am having very few seizures now and making healthy choices thanks to my dietician s
As a good team player we now have to reevaluate the Domperidone and Entacapone. The Entacapone causes hallucinations (pretty extreme at time), trouble breathing,my heart races even though I am extremely tired and can't sleep. It comes on about the same time everyday (noon), usually after the 2nd round,
. My Speech is slurred to the point that I am hard to understand but even more so. It is really hard to put 2words let alone 2thoughts together. I can't remember. It helps to take a lorazapam but I feel it I a bandage effect
Although this is extremely difficult for me, my husband and grown children my friends are blaming themselves . They think they have tired me out, etc.
I have surrounded myself with both professional and nurturing friends go all ages. I don't want to wear them out or scare them but most of all I don't want to give up.