has anyone had knee replacement surgery? - Cure Parkinson's

Cure Parkinson's

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has anyone had knee replacement surgery?

17 Replies

I had knee replacement almost 2 years ago and my knee has never stopped hurting and swelling since. Now the Dr. thinks the artificial knee may be loose. I think it may be due to the Parkinson's and from walking so badly. Anyone else have any experience with this and what did you do about it?

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17 Replies
cabbagecottage profile image
cabbagecottage

yes my husband had a kneecap replacement which cost him £11.500inc all his physio and hydro therapy . we stoically went regularly . What waste of effort as well as cost . He was unable to do justice to it all . He went on further , I said he was stoic .and had keyhole arthroscopy . at the that time I had the Devils own job for them to release him from hospital so that I could look after him I knew he wouldn't improve unless he was him e. he still cannot walk . I wouldn't do it again

cabbagecottage profile image
cabbagecottage in reply to cabbagecottage

Of course everyone is different and at different stages of Parkinsons . some people improve after the op and others don't . My husband cannot load bare as soon as he put any weight on his leg the pain was excruciating . The very best of luck whichever you choose

PatV profile image
PatV

No I didn't have knee replacement but I had arthroscopy both knees and MUCH PT and other injuries and insults. I will say that PD takes ANY pain and RUNS with it. I hope he finds some class or activity that will get him up and moving. I've thought many times, this is it, I'm stuck in the house forever but somehow was able to get moving again. The more you move, the more you CAN move.

PatV profile image
PatV in reply to PatV

p.s. fyi i'm 74 dx 10 yrs on sinimet 8 years.

joyceann profile image
joyceann

I have had knee replacement and must get my other knee replaced after 6 years since my last. I have no problem with my knee but I was very determined and worked diligently with my physical therapy no matter how much it hurt. If the doctor recommends surgery again DO IT! ! You should not be in pain.

cabbagecottage profile image
cabbagecottage

So glad it worked for you joyceann , it also dends how far down the road someone is with Parkinsons to how they can manage to exercise and keep going isn't it . My husband was 70 and had struGgled for many years before diagnosis . You are absolutely right as far as keep going and exercise . Even as limited as my husband now is I keep prompting him to exercise even Dow to singing for his mouth and throat / swallow .

pauline19 profile image
pauline19

I had a total knee replacement in January of 2008. It took 3 years and 9 months for the pain to stop. I had the essential tremor in my hand already, but my gait was only slightly affected at the time. I was bone on bone (age 47) when it was done. I blame the long lasting pain on the surgeon only giving me Vicoden for 2 weeks post op. I know now from CYP450 genetic testing that I might as well have taken sugar pills....I'm glad I did it reallly , if only because it taught me a hard lesson. I need the other one done too, but there's no way I would do it now, PD or not. And I had a great surgeon, but he thought he was soooo good, that it somehow meant it wouldn't hurt, and that's nuts!

Grannani profile image
Grannani

Yes I had knee replacement 3 years ago and have the same problem. The Dr. was head of ortho depart. at very reputable hospital and X-rays look great. They tell me it's just arthritis. I use Voltaren cream (prescrp) and I keep using it. That's about all I can do. I was diagnosed with PD in March after a neurologist told me for 2 years I only had Benign tremors. All the symptoms that I've had for years finally make sense…impacted colon even with fiber and laxatives; difficulty swallowing ( I had hernia surgery and biopsy for Barret's) and still hoarse and choking. Finally after 4 falls in 6 months (1 of which almost killed me) I went to new neurologist who immediately diagnosed PD, put me on Sinemet and most of my symptoms got better.

panda92111 profile image
panda92111 in reply to Grannani

Do you know what type of knee they used as a replacement? If it was Triathlon there is a huge lawsuit because of the mislabeling of sizes of the knee. Also, the alloy in this knee is GIVING patients PD!!

I had both knèes done a year apart. The first was the easiest, I was only in the hospital,for 4 days & in rehab for 10 days. And, it is sTill good. BuT My left knee was awful. I was in rehab for 7&1/2 weeks. Which was awful. Although I think that I was in lala land the first 4 weeks. I was in a nursing home that was less than nice. The only good thing was the food was so bad that i lost the 30 lbs thaT I needed to lose. That was in February of 2013 and my left knee is still not good. It doesn't seem to,be the knee replacement itself but may a hamstring or tendon issue., I don't know if this was due to my parkinsons or not. But my pd has. Certainly progressed now that I have to,walk with a,walker full time.

I was diagnosed with pd 11 years ago. And have been N sinemet for 8 years.

in reply to

thanks for your comments. You had your knee replacement the same time I did -Feb 13. Have any of your docs said why it still hurts after all this time? That is what I am wondering about mine also.

in reply to

My dtotc Said it was my hamstring, x-Rays of the new knee look finel. I don't think it's the hamstring but maybe another tendon that attaches to the back. & outside of the knee . I have to make an appt to see him again .

in reply to

My dtotc Said it was my hamstring, x-Rays of the new knee look finel. I don't think it's the hamstring but maybe another tendon that attaches to the back. & outside of the knee . I have to make an appt to see him again .

Soosipoosiwoosi profile image
Soosipoosiwoosi

Hi. Yes I had a full knee replacement 18 months ago. It was the most excruciating pain I've ever experienced which lasted more than a month. I had a DBS procedure 21/2 years ago on a local anaesthetic but it was nowhere near as painful as post op knee replacement. The kneestill clicks loudly and is still warm which sounds like it's not healed yet. But it's much less painful than the pre op knee and I'm glad I had it done. I winced with every step before. I am convinced that those with PD have a difficult time with recovery because of their condition and people without PD also report long healing times.I have had three x-Ray's since the op as that is the hospitals policy. Get yourself one yo put your mind at rest.

guy1947 profile image
guy1947

I had my knee joints replaced first two and a half years ago,the second one it be 2 years in Feb,2018, every time I sit I find it hard to get up. Everything went well,shortly after second operation within 8 months I was diagnosed with PD,it's been 1 year since being diagnosed but I seem to be finding it hard or impossible to walk, I get too weak not just my legs my whole body,my energy is drained,my appointment with my neurologist is in December,I tried to get a earlier date but I was told I've got to wait my turn.

panda92111 profile image
panda92111 in reply to guy1947

Do you know what type of knee they used as a replacement? If it was Triathlon there is a huge lawsuit because of the mislabeling of sizes of the knee. Also, the alloy in this knee is GIVING patients PD!! I had my left knee done in August of 2017 and a total reop in July 2018 - still in terrible pain but at least walking with cane/walker. I developed PD 3 months after the surgery.

panda92111 profile image
panda92111

I had knee replacement a little over 1-1/2 yrs ago and a re-operation to replace what completely what was originally put in this last July. My knee from the beginning has never stopped hurting, swelling. I found out about 7 months ago that the type of knee (Triathlon) has many law suits because they have mislabeled the boxes on the size of the knee! The one I got was WAY too big for my leg but still had to wait a year before they fixed it. Now, I was told yesterday by my Dr. that the alloy in this type of knee has caused Parkinson's Disease in patients! I started developing symptoms of PD shortly after the first implant and was diagnosed by a neurologist a short time later. I pray none of you have had the same experience but would like to hear from anyone who has. Still cannot walk without pain or a cane.

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