I have a bee in my bonnet, that's a polite way of saying I'm about to rant. Now to be fair rant is not exactly right it's more to do with expression.
I spend as little time as I can in what I class the illness world. I define that as being any time my experience is controlled by my condition.
I want and need to operate in a normal as possible environment.
And to the greater extent I do.
Most importantly for me is my mind set to my condition. I believe it is my responsibility to help myself than to look to others to find solutions for me. This doesn't mean I don't need resources such as my Doctor and Neuro but it does mean that I am not expecting them to hold all the answers, nor to treat me whilst I remain unengaged.
I feel the biggest weapon I have is my attitude, my resourcefulness and my actions.
The buck stops with me.
I am determined, focused, strong. I make a point of never giving into moaning, being sad or sorry for myself.
I am lucky to have an upbeat personality and a creative brain. Both of these are fundamental to my continuing fulfilment.
My life including my illness is firmly in my hands. I am choosing to keep well. I am choosing to keep my life alight.