After many years being on pd meds has anyone gone off them

[Prayingforacure]

I am wondering if many have gone off pd MEDS after being on them for years. What changes came about?

[isis6361]

Be careful suddenly stopping pd medications can lead to death. Take advice from your specialist before doing this please

[JohnPepper]

Hi Prayingforacure. I am sure that other readers will be tired of hearing me say that I stopped taking any more drugs in 2002, after having taken them for ten years. I don't want to bore readers with my story once more. If you go to my website - reverseparkinsons.net - you can read the whole story and also over 400 articles on treatment, medication, exercise, dancing, boxing and many other related subjects. The articles on research and studies are also very exciting.

John

[mistydog1 in reply to JohnPepper]

John you keep saying you reversed your Parkinson's indicating you no longer have Parkinson's. My question is what's the possibility you were missed diagnosed since there is no definitive test. If you truly found a way to reverse Parkinson's then foundations like MJ Fox aren't needed. I think to give a more accurate picture when your promoting your book is to say your background which is a business man and that you've found a program which was very affective in helping you personally to manage "your" symptoms.

[JohnPepper]

Hi Mistydog: You are not alone in asking these questions. I was very doubtful myself, after that terrible diagnosis, but that was only natural. I could not believe that I was headed for the scrap heap at 58 years of age. Ten years later, when my health had improved so much, I was even more convinced that they were wrong. However! After writing my book, in which I claimed that, "Nobody would ever know that still I have Pd", I thought I had better put that to the test. I went to see another neurologist, whom I had never met, and told him about my book and why I had come to see him. He got very cross, but I can't understand why because I was paying him his fee. After a cursory examination, he said, "You do not have Pd, therefore you never had Pd, so stop going around and telling people that you do!" Nevertheless, eight years later, a very well-known research scientist came to visit me and he questioned my GP and my three neurologists. He also went around South Africa with me and spoke to many of the people I had helped to deal with their Pd. He was, and still is, absolutely sure that I do still have Pd, even though I show no outward signs of it.

I put my improved condition down to exercise, the type of medication I took, having given up my high-powered job, which caused me so much stress and adopting a positive attitude towards my health.

What I have been able to prove, beyond any shadow of a doubt, is that when I stop doing my walking for one hour, three times a week, my condition starts to deteriorate again. I become more clumsy, I sleep less, and I cease to feel as well. This has happened many times, due to other health problems and injuries caused by doing too much exercise.

You can make of this what you will. It is your choice.

Kind regards

John

[Balderdash]

Medication is science, taking PD meds and getting the optimum best from them is an art,stopping would be foolish.There is more to it than swallowing a pill at a given time.The purpose of medication is to support a disease process in our bodies that is very complex and not fully understood. I would not advise anyone to abandon medication,ten years of Pd and I still have windows of absolute normality.Self awareness is a valuable tool self promotion is often narrow in its field of vision