I was diagnosed PWP way back in 1991 - at the age of 45. I was prescribed Beta blockers only for a couple of years, then a small levodopa - MADOPAR 125mg once a day. This intake is now 8 x 125mg together with Entacapone plus Pramipexole. Around 1993, I used to have lots of friends who drank quite a lot of alcohol. So I used to suffer hangovers. These became tolerable with some Ibuprofen - which also helped me sleep. Consequently I kept on with Ibuprofen, taking in child format (liquid) , a small dose of about 5 to 20 miliitres (= 100 to 400mg) when going to bed.
I am convinced that I've kept steady, with every PWP around me rapidly going downhill! I have plateaued!,
Ibuprofen is well known as an anti-inflammatory. I tell my supervising neurologist to all PWP on it. But he just says "it isn't proven"!!
I must point out that my sense of humour has remained in peak form , and I never get depressed -a positive attitude has ensured this. I don't stop - always happy with some DIY project.
Everyone around me say that I am going at 100mph.
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rob26387
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I also recommend ibuprofen. It is the least offensive drug one can take compared to the many other, cornucopia of drugs on the list and the side effects caused by their ingestion. A patient must make decisions, informed decisions on treatment. I read a study that shows the decreased likelihood of contracting P if one has taken ibuprofen regularly. Considering what we have to look forward to in the coming years w/ evermore severe symptoms, I ask, what is the harm? Lets not wait for ibuprofen to be "proven", let us prove it ourselves. I take one dose, 200mg, every evening after my meal.
Makes a lot of sense. If it works for you; it works // despite what the experts may say. Best to you on the plateau
Ibuprofen is very cheap to buy so if the doc won't prescribe you can always try it out, It is far cheaper than some of these so called supplements and panacea's on the market.
Long term usage (How long term, depends on the persons tolerance I suppose) but it can cause some problems. But as the Docs often say the advantages outweigh the risks. If it definately works I would take it and bugger the consequences.
Does Ibuprofen (being an anti-inflammatory) have a similar effect as LDN (Low Dose Naltrexone) and for the same reasons? This debate has been posted before and is still an interesting subject. I take one 4.5 mg LDN tablet daily.
How do you find ldn? Has it made a difference? I had great hopes for ldn. I have been taking it for about 6 months but I was diagnosed 18 months ago and I can't really tell, except that I haven't progressed very much. I won't stop however because it has cured the chronic diarrhea that haz beset me for 25 years. When I ran out it came back within 2 days, and now I had to give it up because I was going for major heart surgery. I took immodium with very little success and at last, 4 days after starting again, it has gone off.
I am delighted to finally read that someone (and reading on, several people) have discovered the benefit of Ibuprofen. I mentioned this to my neuro and he was non-commital. I think I will start taking Ibuprofen again and keep notes.
Hi, rob26387! I'm just wondering if you are still taking low dose ibuprofen and I'm wondering how you are doing now that four years have passed since your post. I hope you are doing well.
I also take one 200mg tablet of ibuprofen a day after a meal (important to minimise gastric irritation). The thinking is that it’s the best anti-inflammatory available without a prescription. It may be useless; but at this dose it’s highly unlikely to be harmful. Worth a shot. My neurologist knows I’m on it and hasn’t told me to stop.
Wow so glad to have found this thread. Started dad on 800mg of Ibuprofen (2 pills, 2x/day - morning and right before bed) after being on Tylenol and even other stronger pain meds (ie Tramadol, injections, oxycodone etc) for so so long.
It's now the 2nd day and dad's back pain is down to zero AND the swelling in both feet have reduced drastically.
Dad's been on Tylenol for over 10 years, nerve pain meds, antidepressants, given other stronger meds for over 4-5 years and he's been complaining that its not enough/it doesn't do anything like Ibuprofen has shown us. Time and time again Docs claim Acetaminophen is the safest and strongest pain reliever...then why wasn't it working all this time?? Why did he continue to suffer? Thankfully dad hasn't had any stomach issues/bleeding/ulcers aside from Constipation... No issue with liver or kidney either. Just constant back and neck pain.
I'm so glad we gave ibuprofen a try now and aren't needing even the max dose (1200mg) in order to get actual relief. There's so many warnings about NSAIDS but if an anti-inflammatory pain killer was something my dad needed AALLLL THIS DAMN TIME and docs were gate keeping for the sake of their license or the verbal blanket statement of looking out for patients, I am just disappointed and in disbelief that we could have resolved this sooner.
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