I can't seem to find out where people are living on the site now. Am I missing something?
I would be more comfortable knowing what sort of health system people are under when I reply to them ( if they are agreeable of course.)
Where are you in the world?: I can't seem... - Cure Parkinson's
Where are you in the world?
Written by
soup
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68 Replies
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I don't know who you are addressing this question to? I live in South Africa, which is now a third-world country and the public health system has become almost non-existent. We have had to learn to look after ourselves and become more self-reliant. That has not done us any harm, it has made us stronger.
John
I am addressing anybody who uses the site and might know how to access this information from the profiles that are available for members to read.
I am from Nottingham the dr surgery as a parkinson exercise class and the instructor is very good and the people who go to the class d,is cuss diff symptoms I really enjoy going to the class it as helped me a lot to discuss things with people with Parkinson's.
iam from Yorkshire but live in Lancashire enow an have for the past 40+ years
lol jill
iam from Yorkshire but live in Lancashire enow an have for the past 40+ years
lol jill
Hi Soup I am from Nottingham England.
I'm in North Yorkshire England. I think this site is wonderful with so many people from all over the world.
Greetings to everyone!
Hi soup....I live in co. Wicklow Ireland...but currently visiting family in Sydney. I have to say I have excellent care in Ireland compared to things I've read regarding other countries health systems.....
Has anybody found a way good getting this information from the site?
Good Morning, I am in the US and belong to a group of PD people who exercise together. The support we gain from each other is wonderful. I enjoy my visits around the globe via HealthUnlocked. We all have similar problems and it is helpful to hear from others . dbean
I am in Thailand. Excellent care at reasonable price.modern facilities
Wow, I've no idea about the health and social care system over there. Can you tell us more?
I agree Soup but I think that info is up to each poster to provide on their profile statement, - The one that you access by clicking on a name. Many people dont write anything so its difficult. I dont think there is any other way.
I am in Milo, Maine USA. My movement disorder neurologist is a 3 hr travel from my home. There are no groups within a hour's drive. There is primary care available just down the street staffed with one young dr and a physician's assistant. Very rural, poor area. I do have great health insurance now. I purchased insurance where I worked a t high prices and high co-pays for many years. Once I was on disability for 2 years I now have Medicare and a supplement through the VA. Can now afford health care, the big problem is transportation. I'm 57 years old and diagnosed 7 years next week.
Thank you.
Our lack of public transport causes problems in Cornwall and most rural parts of the UK too. We car pool where possible to get to meetings but it's not always feasible of course.
Thank Hikoi, I must have been unlucky and clicked on quite a few people who had no location information. I quite agree, it's up to individuals to give location and any other information, I was just concerned that the new format might not allow for that or that I was missing something.
I really liked the very old map that showed where people were (if they entered the info.) Two designs ago I think. However, I am sitting here with a map of the world in front of me for a geography lesson.
If all of us updated our profiles, [about me section ]and included our location it would make it easier to find out where everyone is from. I just did this for myself. I guess I didn't know they had a map section previously it's really a shame they don't now it would be cool.
I dont remember HU ever having a map facility but a member made a map for us all. Is that what you are referring to Soup?
I think we might have to review and update our profiles on the new system or they dont show.
I think it was an idea knocked around for some while and then it suddenly appeared. I don't know who set it up, but I found it useful. I think I will try entering the information this post has brought onto google earth or something and see what that does. I'll explore that idea first.
Hi, I am in the USA from Texas. I love this website.
I'm in New York City, very fortunate to have NYU Center for excelllent PD care, great public transportation including Accessaride.
I am Guadalupe (gmunsot) and I live in México City. Will be interesting some about the people in Healthunlocked, how is the treatment in their city and many other things if you are interested for ex. my age; 69, my illness. Parkinson, two years ago, my profession, lawyer (retired), married, 6 grandsons, My English is very little .
I like very much your idea, I am in another "club" named REDPACIENTES and is in Spain and even make friends there.
Regards
We're from Lancaster. Pennsylvania, USA!
As a native UK Lancastrian I can you tell you all the best people are!!! (from Lancashire, that is).
I am in Corvalls Oregon... See ya in Portland next year.
I think most members put where they live on their profile, so you could check that.. I live in Nigeria but I see a Nerologist in the USA (not very often obviously) and I have to get my drugs from there too.
Sorry I just read your post again and saw that you have checked out the profiles. Anyway, you are already getting lots of interesting locations from the responses to your post.
I'm from Oregon, Prineville to be specific which is in the middle of the state. I'm 4 hours from Portland and Oregon Health Sciences University (OHSU), which has a highly recognized PD Center. I'm scheduled for asleep DBS surgery on July 2. Looking forward to the new me.
i m from canada.
I'm in the state of Georgia in the USA. I have medicare and a supplement for insurance.
I have learned a lot from this site since I joined in 2013. I did not know about the World
Parkinson's Congress in Portland, Oregon in 2016. I would be 80 by then so I probably
would not be able to go, but I would like to.
I am in Colorado, USA. We have an excellent Parkinson support group with about 500 members half of the which are actual PWP's "Person or People with Parkinson's".
I just sent an email to the HU contact us location requesting the ability to include our location along with our picture. I let's t see what they do.
This was HU's Reply
Hi,
Thanks so much for your email. Our team is taking this functionality into consideration as it has been requested by a relevant number of user. However, I can’t give you any time frame on when this might be released.
I hope this helps at least for know.
Best wishes,
Pepa Gonzalez
Operations Project Manager
Thank you for letting us know what was said. I must agree that a site that functions well is more important than a map. I hope that more people feel confident enough to add more information to their profiles and allow us to see which part of the country and world they are in.
pronounced "no gal": Nogal, New Mexico,USA
I am not under any health system. I do have health insurance and my family general practice doctor has agreed to work with me, my Parkinson's and when necessary, my meds
Soup this question has come up a few times. Paul Dineen set up a map. Here is the information.
My husband and I are from southeastern Massachusetts, next door to Rhode Island. Lots of PwPD around here and young onset numbers growing.
I am also from southeastern mass..diagnosed with Parkinson's at 42.
Wow, I go out for one evening and come back to all these replies and a way of exploring a map facility. Thank you everybody. I should get out more.
It's morning here so I'll see if I can get this map to work sometime today.
Thanks.
Hi Soup, I gather from Hikoi that we have similar backgrounds....I may have read this some time ago as I think that you, like me, keep a biog reasonably up to date.
Keep up the good work,
Angela
I don't know what that Hikoi has been saying... I'm sure it's just a rumour.
Rest assured only compliments & general background: one of the things I value most about this site is the lack of gossip. Oh by the way, although originally from Manchester I have lived in a small village near Worcester over 40 yrs. Another dot on your map (I used to teach Geography).
hi i am form north Yorkshire originally but now live in lancashire and go to PSP meetings in Liverpool when i am free and to parkinsons meetings locally,.
lol Jill
Dear Soup:
I understand where you are coming from. I do not understand a lot due to,location and vocabulary. I,am always confused by weight in"stones". No disrespect intended
It is that I live in Florida, USA and all I know is bY ounces and pounds.
I can look it up but loose my placec and have to ssign back on.
However,,I lovev this thread and will keep my conversion chart handy.
Polyanna 007
Dear Polyanna, don't get me on stones and pounds. All I know is that my hips own too many of them. Who was it who said, "America and England are two great nations separated by a common language."? How true that is.
My bugbear is trying to find the alternative names for the medications that people are on. The prescribing practices are very different too. Still it helps to keep the little grey cells active I suppose.
Are you able to get to a local support group?
I am from Mount Pearl, Newfoundland, Canada.Our health system is reasonable.
Now that's a place I have always wanted to see.
When I was teaching a unit of history on 'Exploration and Discovery' to 9 year olds they had to report back to the class on a few fascinating facts they had uncovered. One particular chap was ecstatic about the fact that this small ship had crossed the Atlantic and found a whole new land. "Guess what it was called... Newfoundland! That's amazing, they had just found it and it was called Newfoundland."
Poor lad thought that places were named on high and this one was actually very appropriate. His delight was contagious and I caught it. If I ever make it there I shall drink to the memory of that moment. That's the reason I so enjoyed teaching.
I am in Mexico City where we have good doctors and medicines. Many of them studied specialities in France.
I also take Pevodopa carbidopa and Sifrol, That make me feel wee in of. Also Y have 2 days therapy, 2 days yoga and 2 days swiming. I would like if you write to me,
Regards.
Guadalupe
Hi Soup, I am currently living in Hawaii, USA. I live on the island of Ohau. I am originally from California. I have very good medical insurance thankfully as my husband was a firefighter/ paramedic and they have a great plan we have always paid in to. Here in Hawaii we are getting better medical care than we used to have. It is finally catching up with mainland US. I am on the board for the National Parkinson Foundation - Hawaii chapter. It is an excellent source of support. I also just did a walk for Paws for Parkinson's at OHSU In Portland OR where one of my Neuroligists is. I noticed you May be going to the world conference in 2016 in Portland! I hope to see you there. My sister worked at the OHSU movement disorder clinic so I am sure we will be involved! Interesting to see were everyone comes from and what type of health care they get. I wish the best for all...
I think we should wear identifying silly hats or something so that we can meet up in Portland. That should make people sit up and think. Not sure my straight-laced husband would go that far.
I have a Blue Hat from my Paws For Parkinsons Walk... It has a Dog foot print and says Hawaii! Or we could exchange numbers and call each other... Or check at the sign up desk!
I agree I think most of this group are in Europe and USA . So I'm in New Zealand in the South Island I have had diagnosed Parkinson's for 15 years and I'm 54
Hello everybody, It is gratifying to see people from all over the world on here. The health systems, drug availability and cultural expectations vary so much from country to country that it helps to know that there is somebody on here in the same boat as you when you ask a question.
1shakey, New Zealand would be my second home if only I could stand (and afford) the regular but long flights. We find an excuse to visit every few years and we are trying to persuade our daughter that it is the 'land of opportunity' and that she probably could afford a granny flat for us if she lived out there. I'm not sure if that last part of the sentence is the one putting her off though.
Where in NZ are you? (Don't worry, this isn't a prelude to me visiting unannounced and unwanted!)
I am in Seattle, Washington. USA
HI I m in the UK and am responding to your other question about dbs surgery and how you arfe after it
it sounds as fi you have a lot of the PSP symptoms which i have anyway - balance probs/ probs with co=ordination./slurring speech and quieter voice etc etc \
lol Jill
Oh well, somebody has to live there!
I live in Texas (near Dallas)
We have our choice of hundreds of doctors and world class care
I go to a DR. at UT Southwestern a research hospital
heath care is expensive
I am 61 Pd for 9 years
retired and loving life
I do Crossfit 4 to 6 times a week
Read my post about it
it has changed my life
I live in London, I am quite happy with the treatment I have received so far. Only diegnose last December. Been to a Parkinsons support and research charity meeting. Found talking to other PD sufferers face to face very helpful. albert
Good to hear Albert. It is so important to get out and meet other people in the same boat. You don't need to live and breathe Parkinson's but it is good to find out that you are not on your own and to get some tips from people who are used to dealing with some of the same difficulties.
Thanks for replying. I go for long walks everyday ,one good thing about living in London so much to see,so many museums and places of historical interest. albert
I just joined , we live in Sunrise , South Florida USA . We would like to belong to an exercise group but haven't find one nearby .
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