Parkinson's with Ms

[coco71]

Does anyone have PD and MS? My doctor is now wanting to test for MS because of numbness. Can't win the lottery but may be winner if 2 no cure illnesses. Sorry. Venting. It is what it is.

[Hikoi]

Yes coco i have heard people say this but never heard of anyone actually diagnosed with both conditions.

Of course tingling and numbness is quite common in PD too. Has your doctor considered this?

[Merzem]

I hear you friend. I was 39 when my dr told me that I had parkinsons. I remember feeling so special like of all the assholes in my life I was the lucky one. Trying to be constructive with my blues...............presently, life sucks. So excited, my left arm and leg won't stop shaking.

[coco71 in reply to Merzem]

Doesn't seem fair does it. My new motto is just it is what it is. When I saw the doctor the other day he told me my Parkinson's looked best it had ever. Then bam MS Sucks.

[coco71]

Yes. The numbness is much more sever then is generally w PD or so doctor says. Really have no filling in one leg below knee. Originally thought neuropathy but test can't confirm it.

[harding55 in reply to coco71]

Did they by any chance check you for a blood clot. That's what my leg felt like when they found mine.

[coco71 in reply to harding55]

Have in both legs and moving into hands.

[Skyrace51]

Hi , coco71,

I know exactly how you must be feeling. When I was diagnosed with Parkinson's , I had been suffering for many years with Charcot - Marie Tooth disease. When my neurologist told me I was extremely unlucky to have two diseases. I replied. 'You don't say' !!.

It's unfortunate to say the least. Sending you my best wishes.

[Merzem]

This whole experience has been about loss. I'm close to burying what remains of my self esteem, my identity, job, girlfriend etc......my condolences dear Coco over the death of your leg,

And that's just it........it truly is what it is, and it's about death isn't it?.................pieces of me dying, slowly...and so aware of it every second of each minute. .........just tell me when to shutup

[coco71 in reply to Merzem]

It is about rebirth. Yes you will never be the same because u do realize your on mortality. But you don't simple wait to die. You focus more on what's important to you for me my children , faith, family and friends. You learn that life can go on. Not as you had planned but it still goes on. I love a song that says " he never promised that the cross would not get heavy and the hill would not be hard to climb ...." It's not easy but it is not worth giving up on. You get news like we have you are changed forever but only you can decide how. It us what it is and you choose your response.

[coco71 in reply to coco71]

May I ask how long you have been diagnosed ?

[Merzem in reply to coco71]

It's been about five years

[Jocee in reply to Merzem]

Merzem, I always tell myself things could be worse......

[Hidden in reply to Merzem]

Please don't despair, keep fighting. It's hard I know. I have Parkinsons, diagnosed 2010. I thought how unfair, why me. Then I thought why not me?

I have a son with Huntingtons Disease, and his positive attitude puts me to shame. He can no longer play his guitar, still has a go with his drums. He lives alone and with help from his siblings he copes. Now I have been diagnosed with Hyperthyroid, which can be linked to an autoimmune problem. Tremors, racing heart, breathlessness plus aches and pains and a lots other problems. Living alone I sometimes get scared.

I always said I wanted to be there for my son, to see him through this awful illness, now there are times I get very down and wonder what's the point. Then I am thankful for my son and the inspiration he gives me to keep fighting, that there will always be reasons to go on. My baby grandchildren, birdsong on spring mornings and of course my son and his big hugs and sense of humour. Most of all, hope.

Keep your chin up. Hugs.

[beauxreflets]

Numbness could be down to pinched nerves due to cramping compressing the lumber region of spine (dehydrated or pinched discs) and thigh area etc. Have you had your spine and leg scanned to spot any physical compressed areas?

When my leg plays up it is usually the injury in my spine causing the problem and I'm currently needing physiotherapy to decompress and realign my lumber lower back and pelvis. Hope you get it sorted

Best wishes

Andy

[Merzem]

Thank you Coco. Your words may have started something..........

[coco71 in reply to Merzem]

Keep in touch.

Keep the faith.

[twwp]

yes me. diagnosed with parkinsons 5 years ago then remittent MS 2 years ago. my motto is moaning won't cure me....but yup keep thinking withstand odds of 2 neurons diseases i should be able to win at least a raffle! hey ho as you rightly say..it is what it is. chin up n keep plodding

[Kadie57]

I m doubting your doctor, i have never heard of a person who had both MS & Parkinson. I suggest being tested for Lymes(deer tick)disease.. this mimics MS & PD.....even a 2nd opinion is good. Don't let the doctor label you They must give you proof, please don't give up fight for yourself, arm yourself with knowledge!! Let us know how everything works out.

[rtag]

I was thinking the exact same thing as Kadie...Lyme mimics MS and PD. Numbness can be a symptom of Lyme. Your Dr. may dismiss it, but do some of your own research and decide whether it is worth investigating.

[twwp in reply to rtag]

3 drs 2mri's and lumber puncture have convinced me

[chirodoc]

numbness can be a presentation of PD as well. I have it also. IF you already had a brain scan MRI- then the diagnosis of MS would be solidified as it has different image findings that Parkinsons. Have the MRI if you want to know .

[chirodoc]

I am feeling sorry for myself too as the symptoms chip away at my activity levels and the meds don't help with any improvement to give encouragement. shift from wanting to be a pillar of strength and spiritual understanding to being a tearful victim with fears.