Caregiver support group on line

[Prayingforacure]

Does anyone know of another site on line that is for caregivers, I have been trying to find one. Thanks.

[Prayingforacure]

Did this get posted

[cjsg]

No, I am a care giver to my hubby and I use this sight to find out more about PD, and to find out what other people are experiencing with PD and how it effects their lives. I would be interested in a caregiver sight. If you find one let me know please.

[Prayingforacure in reply to cjsg]

Thank you, I am really needing to find one. I will let you know.

[PDbedamned in reply to cjsg]

myparkinsons.org

[Hidden]

You do not say which country you are in but try.

''Family caregiver alliance'' in the USA

''Caring UK''

As a start. I wish you all the best.

[JohnPepper]

Hi Prayingforacure. My support is entirely behind you. I have always said that the person who suffers the most with Pd is not the patient but the care-giver. Why not word your question differently, on this very same site. Could I suggest that you ask, "Has anybody got any tips to help me get through each day? Follow it up with the basic causes of your concern for your situation. For instance: I need to get away for a break, but who will look after ?. Or, I cannot continue as I am now, I am at my wits-end. PLease someone, I need help!

You might be surprised what comes out of such a question!

Good luck

John

[Prayingforacure in reply to JohnPepper]

Bless you John, it is hard for me to post as a caregiver here, in respect to those with pd ,in my heart they have enough to deal with and my posting would not be to their benefit. I am so appreciative of all the replies, and will get back later and post privately to some that would also like a site for caregivers. Wish there was one on this site. John my husband had to have a tooth extracted three weeks ago, an hour before the extraction he had to take antibiotic within hours it was havoc to his body, three weeks of allergic reaction, I hate drugs. In the last five years I have not been away from my husband only when he was in hospital and that was just to come home shower and go back, I take him in wheelchair to get groceries and manage fine, My heart goes out to all with pd I PRAY PRAY THERE WILL BE A CURE FOR ALL. Thanks,

[Frida12]

I would also like to find an online support group - please let me know if you find one.......thanks

[mktbob55]

Check this site for information. pdf.org/caregiving_fam_issues it is not exactly an online interactive site but should give you some more information. Where do you live? In the US many cities have their own Parkinson support group that may be able to help.

[lmbanni]

Hi Prayingforacure!

I am also my husband's caregiver and it touched my heart when I read that you have not left your husband it the last 5 years! I haven't left mine either! I have tried only a handful of times "to go out and have a relaxing time for myself"! Ha! It is not relaxing!! I couldn't get over the guilt and worry of leaving him alone! It is very very hard to leave him for me also. I don't even try anymore. We are always together. Shopping, visiting friends, doctor appts. He even go in with me for mine. Some folks must think we are joined at the hip!! LOL!! Anyway, if you even need a persons "shoulder to cry on" I'm here for you! I know the others with PD won't mind!! They understand and who knows, it might help them with understanding what we go through also!! We are in it together and sometimes I have to remind my hubby of that!! LOL!!!

[PDbedamned]

myparkinsons.org is the site my wife uses, she being the caregiver and me the PwP. It's 2:43 cst here, and she says the site is currently down, so try back later if its not back up when you try.

[Prayingforacure]

I sure appreciate each and every response from the members here. I feel very blessed to have found this site.

[gleeson]

Check out agingcare.com/