I was diagnoised just over 10 years ago and fought taking any meds for some time, untl my ablility to function was greatly impaired, which in turn greatly affected my mental state. I am currently taking Ropinirole, (0.5MG, 1 tab-4x dly) Carb/Levo, (25-100MG, 1 tab-4x dly) Entacapone, a generic of Comtan (200MG, 1/2 tab-2x dly) & Buprop, (100MG, 1 tab-2x dly). Though I don't know much of anything about my meds, I despise having to take them and how they make me feel. My neurologist worked with me to keep my meds to a minimum and taking baby steps with any med changes; I really liked and trusted her, she listened to me. Unfortunately, she just retired abruptly. I recently saw a new neurologist and refuse to go back, he read none of the notes from my previous neurologist of 10 years and when he saw what I was taking for meds, after seeing me for only 10 minutes, he wanted to change everything and increase doses, he said I'd be so much better. He never asked me how I felt or anything. Actually, after recently having left my high stress job, I was feeling quite well. I said that I opposed abrupt med changes and taking high doses as I am sensitive to meds and often find the effects worse than what I am taking them for. He then said that I should consider the DBS surgery. I was shocked, as I though that was a last resort and told him I thought that was pretty drastic at this point. He said that if I was going to be so difficult, that he may not be able to treat me. Unfortunately, he put all this in my disability paperwork, which I tore up. So I find myself in a rather difficult and perplexing situation, no neurologist, no disability and a husband that just wishes that I would not rock the boat, as we need the disability income. I just made an apt with a new neurologist, that can't see me for 3 months, so I switched my med perscriptions over to my GP doctor, as I have been with him for years and currently have no one else to sign for my perscription renewals. I had an apt with him earlier this week and guess what, the neurologist that I refused to go back to had contacted him and told him of my refusal to see him again. Even after I explained why, my doctor sided with him and thought I was over reacting and should reconsider going back to him (small rural community & they are in the same group). I feel like a little kid in class that keeps raising her hand, yet is never called on. Why is it all about the meds and the doctors, I am the one with this disease, it's my body; don't they care are how I feel, about amy quality of life, what I want? I am only 56 and have already been taking these toxic med for 8+ years. My desire is to find a happy medium between taking as few as possible, while still being able to functon. I can only imagine that it's the meds that will eventually end up killing me and much prefer that be much later than sooner.
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