Director of DBS Clinical Research Development.. Department of Neurosurgery, Anatomy and Neurobiolology, University of Kentucky.

[annh]

I had the most amazing experience last week! Just tell me...what are the chances that someone on this blog site would be in my clinic....sitting in front of me...having had consultations with me....going through DBS, with me sitting by their side every step of the way..there when it's all over? I would answer...In your dreams! Well...it happened! One week after surgery while in the clinic..she mentioned this blog site...and then her user name. I was stunned....I had responded to her questions...we knew each other, can you believe it?

It seem's that life has a plan for us! PD isn't the end of the world...rather it's opened up my world. People with Parkinson's are a very special bunch! Truly, a kinder, more compassionate, caring group of people you couldn't find anywhere on the planet .This site creates a wonderful opportunity for us to engage and help each other, and who knows...maybe I will meet some of you in Montreal, or like my now best friend...Salon..here under my very nose!!!

[Debfrmco]

I wish my Neuro would chec out this site! She might learn about compassion and. Something other than her text book knowledge! To her....the back pain, inncontinence and other PD things we all deal with have nth to do with PD...lol...it very discourig!

[honeycombe3]

What a truly amazing experience!! This site is my PD lifeline having introduced me to good friends I may never meet in the flesh, giving me perspectives from other PwP & reassuring me that I am not alone.

[salon]

i am so pleased to have met you as you are a very loving remarkable human being who has made such an impact in my life . you made surgery so much less scary . i truly do thank God for you my new friend. everyone should get to know you. salon

[rustjudge]

Once again you demonstrate care, compassion, and determination. I just had Randy Eady (foot whisperer) stay with me for 3 days teaching me new approaches to combat PD. Very interesting. Let me know if you are interested in his program.

[tlongmire in reply to rustjudge]

Does it help with foot cramps? If so, I'd be very interested.

[judam9 in reply to tlongmire]

i get cramps in my feet and ankles and calves of my legs. i take two calcium lactate , with

manganese. i take two in the morning and two before going to bed. i helps a lot, just have to be careful how i position my feet. but it does help a lot.

[Allyn in reply to judam9]

Sometimes, I get cramps in my legs and feet - and it seems to do with being dehydrated for me. I up my water consumption when ever it happens (and actually try to remember to drink a lot of water anyway) and it seems to help!

[PatV]

Cool -- serendipity

[froggatt55]

Hi annh

Although I live in the UK and have only visited Kentucky once in my life, I just had to write to express my deep gratitude for someone as warm as yourself in the Neuro-surgical world

PwP are an amazing bunch of folks - having the Disease seems to bring out the best in us. I almost came to Montreal but at the last minute turned down the opportunity - now I wished I had said Yes just to meet someone as caring as you obviously are. I have been diagnosed 10+ years but with exercise and drugs, I cope very well but obviously have DBS in mind so hope to find someone like you in the UK.

Kind regards

Bob

[salon]

my hope would be for everyone on this site to meet annh .she puts a whole new face on treatment for pdand reinforces the idea that there are still caring thoughtful people in our world.

[frito1]

Annh, my name is Freda from Corbin,Ky.My Neuro Dr.is John Slevin who is also @University of ky.I'm in one of his clinical trials ,the Levodopa/Carbidopa intestinal Gel thats delivered by a med. pump and it's working great for me..I was excited to find you here .

[annh in reply to frito1]

Hi Freda, feel free to call me and maybe we can meet next time you are at the clinic. 859 983 9229

[bethanyp]

dear annh,

Hello!! did you ever do the microdose therapy by the Helen foundation? You talked about it in a post 2 years ago and I wondered....I have not read much testimony about it.....peace, b