Has anyone reduced/eliminated their tremor through an entirely nutritional approach?

I have been diagnosed as having 'tremor dominant Parkinson's' which affects both hands, my head and walking when my meds wear off. I am currently taking Sinemet and mucuna pruriens, but want to adopt a nutritional approach to reduce/eliminate my tremors and hopefully the medications,

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  • Norton, I'll nominate you for a noble prize if you find something (not medication) that will stop tremor.

  • "I have Essential Tremor ... And I've been dealing with it since I was a teenager, normally it doesn't present until the 40s... I'd done tons of research on how a ketogenic diet could help with tremors in Parkinson's patients (what they initially mentioned when we discussed my symptoms...) and though I could never pull off nutritional Ketosis through ketogenisus (aka a strict diet and lots of fasting to start) I did find a product (all natural) way to put my body into A therapeutic state of Ketosis... So I took it to my doctor and made sure she approved and have now been on it for two weeks... My tremors are noticeably less, and in general I just feel better. I don't know if I'm allowed to say what it was in here or not..."

    I posted this as a comment before reading any comments- no Nobel prize needed... <3 let me know if you want the details on the brain food my own doc approved: then you can talk to yours!

  • Hikoi

    I've got a good feeling that someone on this website has found a nutrient or combination that will do as we hope, be it a herb, vitamin, mineral or importantly, diet free from processed foods that which has, at least, shown promise. All we need is for them to communicate with us so that we can try it out.

    Norton

  • "I have Essential Tremor ... And I've been dealing with it since I was a teenager, normally it doesn't present until the 40s... I'd done tons of research on how a ketogenic diet could help with tremors in Parkinson's patients (what they initially mentioned when we discussed my symptoms...) and though I could never pull off nutritional Ketosis through ketogenisus (aka a strict diet and lots of fasting to start) I did find a product (all natural) way to put my body into A therapeutic state of Ketosis... So I took it to my doctor and made sure she approved and have now been on it for two weeks... My tremors are noticeably less, and in general I just feel better. I don't know if I'm allowed to say what it was in here or not..."

    I posted this as a comment before reading any comments- no Nobel prize needed... <3 let me know if you want the details on the brain food my own doc approved: then you can talk to yours!

  • Hello Ashley

    There is at least one other PwP who has had a good result on his tremor by following a ketogenic diet, but for much longer than a couple of weeks. You máy fall foul of some rule or other by mentioning a product, but why not risk it so long as you are sincere.

    Many of us will be interested in what you have to say.

    Norton

  • I, too have ET and am attempting to reduce my tremors with Ketogenesis. What worked with you ?

  • I'll nominate anyone who can stop dystonia, dyskinesia ,apathy, anxiety, depression, constipation... infinity.

  • Etterus

    I sometimes experience depression, anxiety and constipation, but fortunately not the others. At the risk of being accused of having a Pollyanna outlook, I spend a lot of time researching PD in the hope that I can come across some nugget of information that I can pursue to improve matters; it's what keeps me going. I am not thinking that drugs are the answer, but that diet/nutrition is vitally important at the very least for constipation and maybe a reversal of some of the other symptoms.

    Norton

  • Parkinson's Disease news breaks that a drug that could stop or slow Parkinson’s disease (PD) is advancing in clinical testing.

    , the drug isradipine is proceeding to Phase III testing, the last step before regulatory approval. With a $23 million grant from the National Institutes of Health, researchers will test if isradipine has an effect on PD progression. Previous studies showed drugs in the same class, calcium channel blockers, were associated with lower incidence of PD.

    When recruitment for this study begins later this year, it will be the most advanced, current trial of a disease-modifying therapy for PD.

    ALSO

    Ultrasound surgery for PwP

    insightec.com/Parkinson_Dis...

    healthsystem.virginia.edu/f...

    on.ted.com/a01aj

    ted.com/talks/yoav_medan_ul...

  • Thank you RoyProp

    Although I take allopathic medication to ease my symptoms, as hard as I try, I just can not see a drug stopping the progress of Parkinson's symptoms. I am currently also on Azilect and I recall that claims were made that it slowed down PD symptoms a claim which is disputed by some authorities.

    I just wish that all I had to do is swallow a pill, but I fear that Parkinson's is too complex for that to occur.

    Regards

    Norton

  • Wow! Thanks, Roy!

  • John Coleman and Dr.Terry Wallis both have PD and used nutritional diets as park of their program . You may want to try and google them.

    Hope this helps.

  • Thank you Maryalice, I will certainly follow through with that information.

    Norton

  • Try this book: Parkinson's Disease Reducing Symptoms with Nutrition and Drugs, by Dr

    Geoffrey Leader & Lucille Leader, Denor Press 2006

  • Thank you Hanuman for your recommendation which I will certainly take up.

    Norton

  • How much mucuna do you take at each dose and how many times a day do you take it. Do you take mucuna ate the same time you take your sinemet. What are the dosage you take for each. Do you take coconut oil..........

  • Drevy

    Thank you for your question(s). To save me repeating myself, I posted answers to your questions in reply to a similar question to yours of 9 days ago from MaryAlice. It concerned carbidopa and mucuna pruriens. It is worth noting that my dose is likely not to be the same as you require, so you will need to experiment a little to get the appropriate dose for you.

    Norton

  • Norton, I am also taking mucuna and sinemet 25/100. How many times a day do you take mucuna and sinemet. Are you taking the mucuna Zandopa and what mucuna capsules are you taking? I find myself fatigued almost the whole day. Do you take any other supplement?

  • Drevy

    Your questioning how much Mucuna and Sinemet do I take in a day leads me to think that if you follow me, you'll be alright. If you don't mind me saying, taking medication, allopathic or alternative does not work quite like that, because it is likely that our physiologies are not the same leading us to different requirements. I may have given you the idea that I've got this condition hacked; I certainly haven't. What I do have is the motivation to try out different nutrients in an effort to reverse some of my symptoms and increase my energy level, for I too, suffer with fatigue. Currently, I am trying a probiotic every day to improve my gut flora which may be out of balance through the medication I'm on or because of anti biopics I took in May after a tooth extraction. I take magnesium citrate daily because it is such a vital mineral which most of us are short of, just as we are of iodine, which I am starting today in the form of Kelp tablets. Iodine is so important to the functioning of our bodies that one hundred years ago it was referred to as the universal nutrient. By all means ask me your questions, but remember that like many other, I'm still a work in motion.

    Best wishes

    Norton

  • Norton, are you takeing magnesium citrate or magnesium chloride???

  • Hello Allnatural

    I am taking magnesium citrate right now because as I understand it the citrate is more absorbable than the more common form magnesium oxide. However, I shall be changing over to the magnesium chloride form in due course because it is the same form as is found in seawater.

    Norton

  • I just watched a video about a man in his twenties that was just diagnosed with PD...His tremors were already on both hands and very pronounced. He had been on PD drugs for about 4months when he was told to go on a gluten free diet. Within a month his tremors were gone...I'm going to try.it...after 17 yrs. With PD. I'll try anything..lol. if it works you will be the first to.know, I promise.

  • Thank you, I'm sure that many others will be waiting your findings.

    Regards

    Norton

  • I've been on a gluten free diet since the first of the year, plus a low carb diet. Haven't lost or gained any weight despite taking coconut oil 3 x day (1-2 Tbsp). I think it has improved my tremors, though not completely stopped them, especially if stressed. I feel a lot more comfortable in my skin!

  • Thank you Marion 11005 for your feedback. I note that you are taking CO 3 times a day, but you have not said if you are taking any medications, if so, what are they?

    Regards

    Norton

  • sorry I'm so late replying--I take levodopa carbidopa 25/100 2 tabs twice daily and mirtazipine 15mg at bedtime.

  • Marion11005

    Thank you forgetting back to us listing your medications. The Levadopa twice a day suggests that you are on a relatively low dose. Long may that continue. Is the Mirtazipine to help you sleep? I am not familiar with that medication, but it may help some others who have sleep issues.

    Kind regards

    Norton.

  • no, it was recommended by a movement disorder specialist in Springfield IL. It's to help tremors. It entirely eliminated my tremors for a short while (so odd when my tremors stopped), BUT they have slowly come back, but not to the extreme they were before. I'm actually supposed to take my generic sinemet 3Xday,but only take it 2Xday, I have had left side tremors starting when I was 55 yrs and am now 64 yrs. They became much worse a t 61 yrs after my general Doctor started me on a statin drug but didn't recommend co Q 10 with it. Needless to say, I won't take them anymore!

  • Thank you for explaining it to us. Please keep us updated with your progress. It crosses my mind if PwP have high cholesterol requiring statins to be prescribed, could their Parkinson's be of the vascular type?

  • Hello Marion 1105

    Do you still take Mirtazipine for sleep? Does it still have a reduced effect on your tremors?

    Regards

    Norton1

  • Have you tried gluten free diet and what is the outcome ?

    Regards

  • I have just recently achieved nutritional ketosis on a low carb diet with blood ketones staying between 2-3 mM/l. I don't believe I am completely adapted yet because my fasting glucose is still falling and my fasting ketone is climbing..

    My tremor sounds much like yours, in that can involve both hands and head. So far my tremors are completely gone after a brisk 1 hr walk (serum ketones above 3 mM/l) and generally in the evening as ketone levels naturally climb during fasting. Still the tremor comes back if i am subjected to stress, but I think it is getting more resilient and recovers within minutes rather than hours

    .

    My tremor is quite tolerable now, and I expect one day it just won't be there. If I was still on a conventional well balanced diet my neurologist would have recommended surgery because she told me drugs would not improve my tremor. I have an appointment in three weeks, just about when I should be completely keto-adapted. It should be an interesting meeting.

  • Thank you Satwar for updating us where you are on your keto trial. There will be several PwP who are following you and I'm sure wishing you every success. Please continue to keep us updated.

    Regards

    Norton

  • I was on paleo few years ago, and want to try keto. but I just started taking levadopa - so there is a conflict between high protein food and the drug. How did u solve it?

  • Hi Kamair,

    First and foremost you must talk to your neurologist if you have any concerns. I am on a very low dosage of levocarb and my neurologist told me that protein is not an issue for me, and even if I was taking a high dosage, where every bit of levodopa is important, it would be simply addressed with timing of the meds apart from the meals.

    Secondly the low carb diet I am on "The Art & Science of Low Carb Living" by Phinney & Volek is moderate protein (1.5 to 2.5 g protein daily per kg of body weight) and is flexible. I am in fact taking 0.8 g protein daily per kg of body weight, because many experts have suggested that only 0.5-0.6 g protein daily per kg of body weight is required. Restricting protein has a positive effect on serum ketone levels. Restricting calories is also supposed to have a positive effect, but I have not pursued this avenue yet.

  • Hello Satwar

    I have to say that you are generous in relaying your experiences with the keto diet and taking of CO. The book you are following by Phinney appears to be the definitive article when going down this route.

    There must be a lot of PwP on this site who are pleased you are willing to share your knowledge.

    Thank you

    Norton

  • Hello Norton,

    I've noticed some changes in the behavior of my right hand in the past few days. Firstly the waking tremor is relatively gentle and completely stops after I've had breakfast. The tremor is essentially gone for the rest of the day, except when stress occurs. I've also noticed that right hand is much better at fine work like fastening buttons, buckling seat belts etc. That test neurologists get you to do by bringing index finger to thumb as quickly as possible is almost keeping up with left hand now and I have no problem at all keeping up after my brisk walk.

    The main point is that my tremor has decreased since I've achieved nutritional ketosis. Brisk walking elevates serum ketones to ~3 mM/l and stays up between 2-3 mM/l for the rest of the day. This seems very beneficial to keeping the tremor down.

    I'm also starting to practice "intermittent fasting" which means you do all your eating in a 6-8 h window. A fairly easy task when you're in ketosis because you don't crave for food when you have a fat burning metabolism. Your energy supply is limitless when you're living on your fat reserves.

  • Hello Satwar

    Your research and application to the cause appear to be working well. It is generally recognised that tremors are the last symptom to go, but you seem to have brought it forward, so whilst I am excited by your news I look forward to hearing from you from time to time to see if your tremor continues to reverse. If it does, it would be great if you could find the time to consolidate all the information, because I can not remember anyone else working so diligently as you have on a symptom such as the tremor.

    I am grateful to you for keeping us updated on your progress.

    Regards

    Norton

  • Yes, the tremor always disappoints when it comes back with stress. My right hand can feel rock solid quiet and something stresses me and the tremor is back. Since it's been with me for 16 years or so I must be patient.

  • Satwar

    At least you are trying hard and honest in your reporting. I respect that in you.

    Norton

  • Actually ketosis is a very stress free and enjoyable place to be. It gets better the longer I'm in it. I definitely be staying for the long haul.

    The results I obtained with CO therapy very gradually showed up and nutritional ketosis seems to work the same way only faster, I assume due to ketone levels being 1-3 mM/l compared to 0.3-0.5mM/l. Improvements are certainly more endurable once carbohydrates are out of the picture.

  • Satwar

    Please remind me, what level of carbohydrates are you taking now. Go to Hikoi's initial post in this thread and it is you leading the way here!

    Regards

    Norton

  • Very little. Only what I get in brocolli, red cabbage and kale, which I have at least twice a day. I sometimes make a salad with baby greens, feta cheese, olives, onions, red peppers etc topped with olive oil and balsamic vinegar

    I'd say I'm under 20 g per day carbohydrate.

    Also my experiment with intermittent fasting seems to worked, my fasting ketone before breakfast was 2.5 mM/l, a very respectful number. That involved 18 hour of fasting and 6 hour window for eating

  • kale, cabbage, broccoli, cauliflower, collard greens

    Kale is heralded for its ample supplies of calcium, magnesium, potassium, Vitamin K, and various healthful phytochemicals and anti-oxidants. But the superfood is hiding a nasty secret: dangerous levels of heavy metals.

    In a recent study, molecular biologist Ernie Hubbard found that kale—along with cabbage, broccoli, cauliflower, and collard greens—is a hyper-accumulator of heavy metals like thallium and cesium. What's more, traces of nickel, lead, cadmium, aluminum, and arsenic are also common in greens, and this contamination affected both organic and standard produce samples.

    The source? Its soil. "If it's left in the ground, the leafy greens are going to take it up," Hubbard

    delish.com/food/a43162/kale...

    Let's all just fast until the cure is found.

  • I just started levocarb - a quarter of a pill once a day, so a salad for breakfast can solve the problem, you are right :)

    thanks for numbers - I will prepare my plan and than will recheck it with your results

    my friend (he is about 10 years on paleo/keto diet) recommended me

    ketogenic-diet-resource.com/ - will try to start from there

    hope I will have results to report :)

    the main problem for me is that there are 4 children at home, the elder daughter and her boyfriend are vegetarians, 2 other girls like to bake - so there is always something forbidden in refrigerator, and I am just a weak woman :( ... but I have to try

  • I would highly recommend reading the "Art & Science of Low Carbohydrate Living" by Phinney & Volek. You are swimming in shark infested waters. It sounds like you live in a very challenging environment and the first week or so of keto-adaptation is also going to be difficult, as your body adapts from being a carbohydrate metabolism to a fat metabolism. There are lots of tricks, a few being: be prepared to deal with constipation, significantly increasing your sodium intake, Magnesium & Potassium supplementation.

    Please read and understand the book before proceeding. Also if you have any pre-existing health issues please consult with your doctor before beginning the diet.

    Please register with Fwes non-clinical trial so you can report your results:

    tending-the-iris.us/coconut...

  • thanks for good advices )

    I stopped eating sugar, pasta, rice, etc long time ago. 2 weeks ago excluded bread (miss it :( ), the last 3 weeks taking 2-4 tea spoons of coconut oil daily, so hope change to keto will not be very difficult.

    Taking Magnesium supplement daily - probably should increase it?

    Need a blood test to check Potassium. Will talk to my GD

    What is Fwes? I am not in US - does it matter?

    I have read "Protein Power Life Plan" 3-4 years ago, do you think it is not enough? If I start reading one more book now I will start the diet next year...

  • Hello Kamair

    As you will have discovered, Satwar is the best person to address this question, but I would like to add a general comment from my own reading. The diet such as you are following and the Ketogenic diets should not be high protein, but 'moderate' protein. Regarding the timing of taking your medication and eating protein is important as you know. The general advice is to allow at least 30 minutes between taking your medication and eating protein otherwise you may not absorb your medication properly and you may get a failure. I personally have found it beneficial to allow even more time than this if possible.

    Norton

  • Thank you Norton. I further believe that regular moderate exercise is an important factor in achieving good ketogenic results. Not only is there the immediate benefit of a boost in ketones after exercise, but exercise in general has a positive effect on the state of ketosis.

  • I was wondering if you r still on the diet and how are your tremors?

    Thanks, Suzie

  • thanks ) Meanwhile I take levacarb once a day at 7-8 AM and have a big green salad + olive and coconut oil dressing for breakfast - so it is not a problem

    Just want to know how others solve the conflict when the medicine should be taken every few hours.

  • Hello Kamair

    Leave at least two hours after you have eaten Protein before taking your medication again.

    Regards

    Norton

  • Oh yes, I am very much on my low carb, adequate protein, MCT oil diet, with brisk walking 3-4 times a week.

    It's been several years now, and I haven't required an increase in medication. My tremor has decidedly decreased since maintaining higher level of ketones in my blood. Unfortunately under stress, my tremor will come back. Higher blood ketones seems to reduce the negative effect of stress, which I can independently control through the ingestion of ketone salts. The use of ketone salts is a rather expensive approach so I try to manipulate through diet (low carb & adequate protein).

    From my personal experience with a ketogenic diet, the progression of the disease has slowed way down, and my tremor and walking have improved (I walk 5 km in 50 minutes with ease). If I get tired from staying up late the symptoms will come back as they do when under any type of stress.

    My tremor would have driven me to elect for surgery, since my neurologist maintained that increasing levocarb would not help my tremor. The ketogenic diet has definitely improved the quality of my life. I can't say that it has reversed the damage done but it certainly provides relief from my symptoms

  • Pennworthy

    Thank you again for your response, but has this treatment been seen to work reliably, how long before benefits are seen and where do you get the instant protein from?

    Regards

    Norton

  • Hi Norton, I know you will post when you find 'your pot of gold at the end of the rainbow' - keep on trying - there are thousands of us out here looking it for it also. It would be a very lonely journey if we were on our own- but we aren't. My own view is that our own thoughts & wishes will swell the finding of a cure & prevention of PD.

    What amazes me is that we are a very adventurous & courages lot of people fighting our corner - most times against tremendous odds - and when one of us flags - others are there to consol, help, love & spur us on - & how remarkably amazing this is to have available to us.

    I have lately been fortunate to have some exceptional kind & caring medical people helping me - it has made such a difference to me - has almost made me mellow - instead of my usual confrontational attitude with seeming non caring health care. Best wishes.

  • I have Essential Tremor ... And I've been dealing with it since I was a teenager, normally it doesn't present until the 40s... I'd done tons of research on how a ketogenic diet could help with tremors in Parkinson's patients (what they initially mentioned when we discussed my symptoms...) and though I could never pull off nutritional Ketosis through ketogenisus (aka a strict diet and lots of fasting to start) I did find a product (all natural) way to put my body into A therapeutic state of Ketosis... So I took it to my doctor and made sure she approved and have now been on it for two weeks... My tremors are noticeably less, and in general I just feel better. I don't know if I'm allowed to say what it was in here or not...

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