Just another Parkinson's personal blog - Cure Parkinson's

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Just another Parkinson's personal blog

olpilot profile image
8 Replies

Like many these days I too am blogging, it's called"olpilots world". It's basically my experience with this disease and whats.going on in the life of a former airline pilot turned woodworker. Heres the link

olpilot.blogspot.com/?spref...

Would love to have you visit and comment.

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olpilot profile image
olpilot
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8 Replies
shasha profile image
shasha

GOSH SUCH A LOT TO READ !!!

quirkyme profile image
quirkyme

I'll have to read this to my husband who reads less and less. You have given several ways that may be causing visual difficulties and that will help in teasing out what's going on with him. He does have Talking Books (Recordings for the Blind and Disabled) which is offered to people with PD since holding up a book may be a problem.

(Ironically, I'm the one with double vision but only when I drive).

tlongmire profile image
tlongmire

Very nice olpilot. I tried to post but it wanted me "comment as: select a profile" and none were applicable to me or at least they didn't appear to be. :-)

olpilot profile image
olpilot in reply to tlongmire

I believe you can just click on open id, I'm hoping that works. We are trying from another computer, if it doesn't work I will try to find out why, if it's different I will post an answer. Hopinv to hear from you all.

mommajo profile image
mommajo

I just posted...used one of my google (gmail) IDs. Thanks for the blog, olpilot...it's good not to be alone!

Blondir profile image
Blondir

Hello olpilot - first congratulations on becoming a great grandfather - and what a lovely name Audrey -

its good that some of the older established names are coming back. I have a grand daughter called Cordelia (my son her father is a Shakespeare fan)

What an interesting and positive blog you post - and if you can do woodwork like the photo's with PD what could you do before.

The most important thing to my mind is your comment on having to do something (or maybe having some thing to do). It would be far to easy to sit in front of the TV all day waiting for the Grim Reaper - well he'll have to wait because like you I'm too busy . Diagnosed 5 years ago recon I've had Pd for at least 8 to 10 before that - I still cook , and I can still play guitar and sing with my wife who sings and plays fiddle . You have to be pragmatic - I've had to change my way of playing and my voice sounds more like coal being crushed under the 'coal house door' but we still do it. Yesterday I joined up with some other musical friends and went Busking for 2 hours to raise money for a local Children's Hospice , I was wrecked when I got home and I'm still tired this morning but I'm off down again about noon for another session - I'll pay for it tomorrow but that's another day -

Keep up the blog its really goods and worth the visit - might even have a go myself

Blondir

olpilot profile image
olpilot

Thank you, the woodwork takes longer than it would otherwise take, mistakes need to be fixed more often, but it's worth every bit of time it takes. My daughter (grandma) is on cloud nine, and was almost in tears when she saw.what I made for my granddaughter. To.have been able to do that, was worth every bit of time and energy it took. I used to play the guitar, now my sense of rhythm is so far off, but I love music and am envious of those who still make it. We have to keep trying to make the best of all that we can do, I think in some ways I get more out of life now than I ever did. Before I was to centered on my job, and getting ahead, not sure ahead of what, now I am forced to slow down and at this speed I see so much more.

Thank you for taking the time to read my blog.

Blondir profile image
Blondir

I think your last sentence says a lot , like you I was job centered funnily enough with an involvement in aerospace as a supplier enjoyed it too much but as you say we have to adjust and change our priorities - more time to change my guitar style to keep playing - my wife plays fiddle and we perform at local Folk Music clubs .I'm setting up to make a CD so at least we have a record (no pun intended) of our musical history - we enjoy it music is a strong binding force - and I'll keep playing one way or another as long as I can - guess you're the same with woodwork - keep it up !!!

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