corticobasal degeneration: does anyone have... - Cure Parkinson's

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corticobasal degeneration

redroseart profile image
9 Replies

does anyone have cbgd?

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redroseart profile image
redroseart
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9 Replies
shall1019 profile image
shall1019

I had a cousin with this disease. She lived in Italy and died last year after having it for about 10 years.

redroseart profile image
redroseart in reply to shall1019

my sister has this disease she is 63 and cant walk or talk she has had it for about 7 or 8 yeard and has got gradually worse she cant walk or talk and is becoming increasingly violent and abusive.

shall1019 profile image
shall1019 in reply to redroseart

It's a very sad disease. My cousin was bed ridden for a long time and had to have full time care givers.

Owenbob profile image
Owenbob

Could someone explain to me what this is,

eml256 profile image
eml256

You could access this site to read about cbgd. It is also known as one of the "Parkinson's Plus syndromes" .

theaftd.org/frontotemporal-...

shall1019 profile image
shall1019 in reply to eml256

Thanks for the info - describes my cousin perfectly.

Hikoi profile image
Hikoi

Redroseart

This is very sad for your sister and for family to watch happening. I just looked and there is cb forum on here which may be useful.

Hoagy profile image
Hoagy

I do

Hoagy profile image
Hoagy

I have been diagnosed with cbgd nothing the medical association can do for me. I have been seeing a naturopath since the beginning of March 2014. I am going for my 3rd appointment tonight. He had told me that he cannot change what degree of disability I have but may be able to slow down the progression. I have told my wife I will spend up to 10,000.00 witch will be about 6 or 7 months of treatment and supplies. Then we will assess things to see if there is any improvement if yes then we will continue if not then I will stop and let nature take its coarse.

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