Every day is different,this illness,has taught me, never to take anything for granted
How you manage your condition when not under direct medical supervision makes a difference to your quality of life, your general health, and your usage health services.
Self-management takes time and demands interest in short you need to educate yourself in the many complexities related to your illness,
As I see it,youve got it. its not going to go away,your its manager.This was not somewere I suddenly arrived at, it was years after diagnoses and living with PD now it lives with me.
Our health care management colleauges GP Neuro,PDnurse.Physiotherapist,prescribe care by tradition but are increasingly the providers educating and enabling self-management. By definition this is the tasks that individuals must undertake to live well with 1 or more chronic conditions.
These tasks include having the confidence to deal with the medical and emotional management of your condition.This is the difficult bit,in life without an illness its not easy to achieve.In our present system its not really promoted,or financially supported,making people well isnt a good long term investment.Dont mistake what I am saying is not intending to undervalue medication or health professionals but it most certainly is easier and safer to prescibe care,than unleash you on yourself.
Accept we must not all want to choose this path and those who pursue it will graduate at different times,be it ten years or two .Patients are afraid to self manage,needing the reassurance of approval and the safety of direction from professionals.We forget a most important role,the patient as the educator,of professionals as well as fellow sufferers.There is some development in this direction.but in the main it is under-resourced and under researched.
Self-management programs are an effective complement to the work provided by health care teams..Programes location, staffing, and the extent of personal interaction between self-management educators and patients are fragmented and diverse
The overall objective of self-management programs should be to support and influence by educating the behaviors of all participants. While variation will always exists regarding the implementation of such programs ultimatley I feel you cant manage someones lfe but supporting choices is important empowering wellness,disempowers illness,live long live well,be happier.
Dont sit back and wait for the system TO DELIVER do a little DIY.
Manage illness
Take action,
Face problems,
Make choices.
Your on the way to Personal “Wellness ”.
Simple and easily grasped and accessible strategies,we know them ,but old habits die hard, so be it, choice made,I am not the mistress of self sacrifice.I know whats good for me whats not so I compromise.
Healthy diet,
Exercise,
Sleep,
Reset you goals, rebuild your dreams
It has been shown that’ Sharing responsibilities with patients and emphasizing the vital role patients play in improving health-related habits and self-managing their health conditions are key issues, regardless of diagnoses’.
One study found that 4 months after participating in patients with diabetes mellitus showed significant improvements in eating breakfast, mental stress, aerobic activities, shortness of breath, and pain.
The way forward with this one ,well its upto you,and whatever you choose be it right for you at this moment tommorow may be different,if its the only exersise you undertake choice is always your own.
I cant be evangelicabout food and diet but I can still improve my health.Im never going to win the health olympics but then I wouldnt enter,Im not a competitor.I prefer a fun run,thats my level of participation,my choice today,but the path unkown tommorow.
Appreciate every blessed day.
Day 17 of taking TTDF:
managing days with poor sleep.
The problematic 2nd dose of the day
I don't want bad days and good days. I want good days and good days... 
