DBS and waiting lists

I was seen by a nurosurgeon in May 2010. He said, admitt for investigations etc in autumn, maybe operation in spring next year, mind you, he didn't say which year. After many phone calls to Lund's neuro clinic and to be told by the RN, you're not on the list. I complained to my "Parkie" doctor at the local Parkinson team. Recieved a letter from Neurosurgeon, apologies all round, long que.

Last week, recieved a new letter from Neurosurgeon, no operation because the "higher ups" have restricted them to ONLY 14 DBS/Yr. What do you do? Parkinson Assoc, are informed, the newspaperare also informed. We'll see what happens

7 Replies

  • Just as a matter of interest does anyone know about the situation regarding DBS operations in the UK?

  • Very much depends on the hospital I suppose. My experience of Frenchay Bristol, Referred June saw consultant August, Went into hospital beginning of October for assessment offered surgery March

  • Where in uk do you live. ?

  • While you are waiting for dbs why not try acupuncture. Research has shown that its effects are similar to dbs inside the brain. I haven't kept the links but I'm sure you could find them if you googled. I have acuncture and I find that it eases my symptoms for a while, depending on what else is going on in my life. As far as I'm concermed, this is brilliant as there are no risks or side effects. Find a good sensitive acupunturist and try some qigong. Immensly helpful.

    Best wishes

  • Where do you live?

  • Skåne, Sweden

  • I live in the UK . I attend salford royal hospital. I was put forward last september for DBS and had in January .

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