Parkinson's Movement
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Being negative about being positive

I am too cheerful, I don't struggle enough, I have it too easy, I don't suffer, I am too happy, wait until you get advanced, a bad advert for fundraising, must have an agenda..... believe me I have heard all of these and more....

I am 50 in two days time. It feels like a milestone of sorts, but only in a having to move up a box in the 'age range' tick. What does it mean to me, truly well to be honest I pondered on is it time to give up PVC shorts (frankly that time was 30 years ago but since I didn't heed it then its unlikely now) I guess what I am saying is it is no more significant than that.

I hold no more significance to all the negative comments I have about my attitude, my maverick 'loose' cannon reputation and my out spoken approach to illness.

I remain largely mis understood and that's because unless people engage me and bother to find out who I really am, in the same way as we all should with each other, I am not going to spend my time soothing my own way for other people's benefit. I don't have the time nor the desire.

I have Parkinsons disease, it is progressing, many many things are hard and I deal with them my way. The way I choose is fiercely pro-active, massively energised, and positive, oh I am ++++ extra. And you know what, I remain in stunningly great health all things considered. My life is extraordinary, and I am not ashamed to be gloriously happy fulfilled and live without fear.

I have made it that way and my way. It requires effort, thinking, planning and a bit of smart behaviour, all things I can control. All things I do.

I am not telling anyone else to do them, I am just saying it works for me. And actually thats all that matters.

I believe we all have it within us to find this place where we can operate, where frustration is minimised, where discipline, ideas and a free spirit keep you well. I am keeping well, so something I am doing is right.

The point of this post, is to say, I think my positiveness is a good thing. Put it another way, I am not trading it in for anything else.

Have a great day, please.

15 Replies



Wise words C......thank you. Tony


Your posts are always inspiring. They always makes me stop and reflect. This post came just when I needed an "attitude adjustment". Thanks HH.

Have a very happy 50th birthday! :-) :-) :-)


I'm 66. Diagnosed in 2006. I appreciate your comments. Thank You for being there! I don't have a partner, but a lot of friends. I deal with PD, enjoy life, and participate as much as I can. :-)


You, my Dear Friend, are a force to be reckoned with, albeit, an extremely positive, inspirational, happy force, but a force, nonetheless! Keep up the good work.


Your attitude is the best one to have. Mine was the same for the first 20 yrs when my progression was very slow. Now....not so much!


Top post. Well done my friend.


I try my best to be positive but,it doesn't always happen!

I have a great partner who gets me through a lot and I am so thankful for him being in my life!

I am having some cosmetic surgery to uplift my spirits and hopefully make me feel a little better about my appearance (I HOPE)!!


Thank you for all the "Positives"!!

Have a super day!


I love your positive attitude. I have been positive since diagnosed in 2004. I always tell people you have to keep a positive attitude, stay away from negaitive people, exercise. My motto is PUSH....pray until something happens, SHOP TILL YOU DROP and DANCE TILL YOU CAN'T

The last two years I have had a little trouble doing the shop and dance part. I just had my 2nd surgery for DBS yesterday and will get turned on in a week. I am very positive about the outcome. I have an excellent Movement Disorder Specialist and also Neurosurgeon.


Give a shout for all "Pollyannas," as I have been accused of being. Sometimes it looks like this: you are having a great time marching in the parade. I am also having a great time even tho' I'm marching in a chair and at 73 not always sure if my symptoms are PD or age related.(not a wheel chair but while I walk just fine, standing just doesn't wrk anymore)


Thanks, once again, for a post that I wanted to read and which I really needed as I am a bit down at the moment. My positive attitude seems to have deserted me at the moment. However., I am determined to get it back. I will not give in to this back pain. Went completely mad and have booked us a holiday in Portugal to coincide with my birthday. I will not be 70!!


Happy Birthday Sue! Enjoy your trip and your special day as you are a special lady!

Cheri <3


Your post was the first thing i read this morning. Bravo!

When going to bed last night i caught myself wondering for a second "why bother". Im 56, diagnosed 2005. I look fit and do a lot of different things to keep me occupied, but occasionally I hit a brick wall. This morning, after reading your blog I am back on task and ready for whatever happens today! Thank you


Thanks for the post. You aren't the only one who "sees the glass half full". I agree...I do as much as I want for as long as I want. I am 61, recently diagnosed, but my neurologist/movement disorder specialist, highly recommends my continued to increased activity.


"The problem isn't the problem. The problem is your attitude about the problem". My favorite movie line. You go girl!


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