Medication.

At the moment I am on 10 mg of selegiline. My neuro said to go and see him when I feel I need 'stronger' meds. I am terrified of starting DA's because of reported ocd's, but know the day will come. Would really appreciate any feedback. Thanks in advance for your time x

[Jerebet]

Alison, I think my wise Neurologist said it best."Don't worry about your med progression. Worry about living the best life with the best meds I can give you today. You don't know what tomorrow will bring and side effects are better than not walking, speaking and living," I'm paraphrasing but that is the roll up..

[jillannf6]

hi alison]what jerebet says is so true

live for 2day and take what meds help u

love jill

[compucure]

Sorry to be so thick but what do you mean by DA's and ocd's? Tony

[Hidden]

Thank you jerebet and jillian, think that was definately the advice I was looking for. Tony you are not thick - my apologies for abbreviating. By DA's I meant Dopamine agonists, and OCD's obsessive compulsive disorders. Alison x

[Jupeter in reply to Hidden]

Hi, I have been on Requip from the start - 12 years, with no noticeable side effects. But without it, I would get "shaking legs" - thigh muscles spasm and it is impossible to get to sleep. As for OCD, I insist on stacking the dishwasher due to my wife's habit of slinging all the cutlery into one section of the rack! And I re-arrange the toilet rolls to ensure that the flap is not against the wall but that is all!!

Incidentally my PD Nurse told me Selegiline was no longer used? see medsafe.govt.nz/profs/PUart...

I was started on that but soon switched to Madopar, now on Stalevo.

We are all different so don't be afraid to try a DA - you can always stop using it and try something else if it upsets you..

[Hidden]

I agree with Jerebet and jillannf6.

I was over medicated at first. The side effects of my meds were PD symptoms…so I was given even more meds….side effects became worse.

After three years and a lot of prayer I found a Dr. who took me off all meds and then we started again.

Learn as much as you can and communicate with your doctor.

I wish I had known when first told I had PD that we are all different and "one size for all" does not fit us. We are unique.

[PatV in reply to Hidden]

my experience as well.

[srarndt]

Over the years, I have met a number of Parkies who have had no serious difficulties neither with the Dopamine agonists nor with OCDs. I would most certainly agree with the comments above about not worrying about either the progression of PD or your meds...there is really nothing you can do about it at this time EXCEPT to regularly exercise your body and your PMA (positive mental attitude!)

Steve (Bisbee, AZ)

[Hidden]

Thank you all for your thoughts and advice - its so good to feel you are not alone xx

[JennyR in reply to Hidden]

You are never alone - just having an organization like this to share thoughts and questions with is wonderful. JennyR

[Helshubby]

I am on a "high" dose of (the dreaded) Requip XL (22mg/day)and can honestly say I have never had any difficulties - apart from mild nausea when i first started.I agree with everyone else - the drugs are there to help but find that regular exercise and a positive attituded help immensely

PS - I tried taking Sinemet along with Requip but it made me worse - so , i only take Requip and nothing else

[maryalice]

I tried taking Sinemet, but it made me feel bad. I didn't take any medications for about 3 years after I was diagnosed with PD. I too am concerned about the side effects. Not as much the short term side effects but the long term.. What is all this medication doing to my body. I went to Duke University to get some other opinions. Since I couldn't take Sinamet., they put me on Mirapex and Amanadine. It helped,but I''m going to try some alternative methods,

[jillannf6]

hi all again

good morning!

i have PSP a rare type of parkinsons and there is no meds to help this so i have tried co careldopa and amantadine neitherof which helped

but i am good apart from teh constant falling over /and the lack of sleep/ anxiety

Plz try any meds you can to see if they work and if they make u feel better then continue htem - I have taken anti=depressants for 35 years and it takes forever to find one which u cna tolerate re side effects /and which does the job etc

Every perwson with the PD is unique and it all boils down to perosnal experience which is why htis site is so good

LOVE JILL

[Hidden]

Thanks everyone xx