Sorry more questions. Is there any defina... - Cure Parkinson's

Cure Parkinson's

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Sorry more questions. Is there any definative test for PD?

dubdiva profile image
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dubdiva
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8 Replies

Not that I am aware of.

I think not.

First they see if you fit the profile.

Then they rule out other possible dxs.

In my case I had to get an eye exam to rule

out Wilson's Disease, (too much copper, who knew?

Besides Wilson I mean.)

Then they prescribe the meds, stand back, and see what happens.

Sounds kinda primitve, don't it?

dubdiva profile image
dubdiva in reply to Parkinson_Schmarkinson

On the meds . My tremor that i had all my life stopped, My mom & cousin both had Parkisnsons. I have 9 of 10 of the non movement symptom but not the agte or masking, The did the heavy metal tests. My doctor didnt think I had till she saw how different I was on the meds (and I rattled off a bunch of things that I thought had nothing to do with it, I can deal with stuff if i know what it is. Been living with Hep C for at least 12 years , most like 25. Some days I can do a million things, I was so active. Much of the time I feel like my life is happening somewhere else. Things keep getting weirder, like not wanting to leave the house, even when Im not fatigued, and aching- Wont answer the phone,,,on the other hand I can jump onstage and for an hour all is well,,,I watched my mom being mis diagnosed for all my life . She was had text book symptoms and lousy docyors. I feel as if she new whe would have been kinder to herself..Now she with the Angels, (in heaven not the baseball team...) thank u wish you health and joy

Moderator_1 profile image
Moderator_1 in reply to dubdiva

dubdiva

re your question about a test for PD - have you read the responses to similar questions posted here, in particular the question "what criteria was used to diagnose PD?"

Helshubby profile image
Helshubby

I had something called a DAT Scan ?

PatV profile image
PatV

My doctors said no--that the meds work is the most definitive sign. Who knows?

dubdiva profile image
dubdiva in reply to PatV

Many thanks all -So many symptoms Im reading about Ive lievd with so long just thought it was 'normal. Till the fatigue. 4 years going to doctors who besides saying well you have issues ie hep c &graves-but mainly that it was my age (i'll be 52 in feb) Till i met this neurologist Im now with felt so hopeless. Great to know Im not crazy,

Koko profile image
Koko

Another reason to find a doctor who is well versed in PD. SO much trail and error. with medication, yes if it works you've got it. HOwever I was "Tested" by a PD specialist. He just watched me for 20 mins and his educated eye caught my body movements that were indicative of PD. HE noted stiffness, my holding my right hand that was tremoring slightly at the time, He checked my writing, and my reflexes. He watched my balance ad gate

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