Hi everyone I have read that a lot of you have botox treatment for dystonia.
I was told that I could not have it as I do not have dystonia all the time and it would make my legs and feet go very floppy so I would not be able to walk.
The pain, sensation and discomfort is driving me nuts. What can I do?
I am a candidate for DBS and am on the waitlist with UCLH, London for pre-op testing.