Parkinson's Movement
12,715 members11,295 posts

Botox for feet/toe and calf dystonia

Hi everyone I have read that a lot of you have botox treatment for dystonia.

I was told that I could not have it as I do not have dystonia all the time and it would make my legs and feet go very floppy so I would not be able to walk.

The pain, sensation and discomfort is driving me nuts. What can I do?

I am a candidate for DBS and am on the waitlist with UCLH, London for pre-op testing.

5 Replies
oldestnewest

Hello!

I also have cervical dystonia and Parkinsonism!

I have been getting Botox in both of my feet every 10 weeks and it has helped with the curling toes! I have opted not to get it this past time to see if I can control the curling with message! This probably was not a good decision! BUT!!

It definitely does not make your legs and feet "floppy"! Give it a try if your insurance will pay for it! I am now facing $700 bill for the Botox in my neck and feet! It takes about 2 weeks for the Botox to kick in but it helps iith my cervical dystonia!

Reply

I have been getting Botox in my head The sweating problem is helped with shots . Worth a try,

Reply

I have a problem with holding my head up and leaning to one side. Do you know if it will help me with these problems? Thanks.

Reply

Check with your MD they only apply the Botox under the scalp to stop the sweating. Seems to work but does not control completely. Good luck

Reply

I found that it just weekend the muscles and causes other problems. I think that this breaker the same doctor's rule, the "first do no harm". 

Reply

You may also like...