Piriformis Syndrome: Hi Can anyone tell me... - Pain Concern

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Piriformis Syndrome

Scrumbler
Scrumbler

Hi

Can anyone tell me about how their Piriformis Syndrome was dx, what treatment was given and whether it improved things?

Thank you so much.

24 Replies
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Hi scrumbler

So sorry to read you have Piriformis syndrome a very painful condition!. I had it a few years ago and it was diagnosed and treated successfully by my pain clinic. Exercises to start with but because it was too painful I was given a steroid injection twice which did the trick and cured it. Such a relief it was. Hope that's helpful . X

Scrumbler
Scrumbler
in reply to misty14

Thank you Misty. I hesitate to use the word ‘agony’ on a forum like this but this has been coming on gradually I believe for four years. Bilateral pain now right down side of legs into feet. Numb legs and shin pain. I have Peripheral Neuropathy and Sjrogrens so have the pain from that too - mainly all my joints. Wait for Pain Clinic is too long. Will have to seek help myself but don’t know where from. Thinking about a private orthopaedic consultant.

Can’t walk, sit or sleep. Lying on either side is difficult and if I lie on my back it’s worse. Sorry to be such a whinge bag. I usually have a high pain threshold but this is in a league of its own.

I’m so grateful for your reply and pleased to hear that steroid injections were helpful. I’ve had them in shoulders, elbows and knees and found them very good.

Thanks again. Stay well x

misty14
misty14
in reply to Scrumbler

It really is agony scrumbler and I too had similar symptoms to you because I have an arthritic condition as well!. It's all pain on pain!.

The long waits make it so hard to cope with pain at this level!. Have you also seen your GP about pain relief as there are nerve painkillers like Pregabalin, Amitriptyline or Gabapentin. You may already be on them for your neuropathy?. If your considering a private Orthapaedic referral see if you could go to the pain clinic privately?.

All the best with it, do hope you improve soon. It is something that will go eventually. Xx

Scrumbler
Scrumbler
in reply to misty14

Thank you Misty. I feel desperate. Take Gabapentin 300 mg 3 x a day. It helped with the neuropathic pain - burning and throbbing but isn’t touching this. This is is just getting worse.

I’m so pleased that you have had some relief.

Thank you for your understanding

misty14
misty14
in reply to Scrumbler

You must be scrumbler, it's a horrid condition,. Your Gabapentin dose coukd go up as I take more than that!. Either specialist should be able to help, important to get their help quickly .All the best. Xx

A physiatrist gave a prescription for Yoga

The two yoga positions that helped the most were pigeon pose and a double log.

Hot tubs were essential to help the muscles Re calibrate and not be so tight.

Injections take the informations down but if the behavior causing the problem doesn’t learn how to work differently it comes back. Botox only weakened the muscles so I don’t recommend that but everyone is different.

Pinky2233
Pinky2233
in reply to Pinky2233

Inflammation not information ( autocorrect)

Scrumbler
Scrumbler
in reply to Pinky2233

Thank you Pinky for your response.

Hope all is well now.

My friend has this. I treated her with acupuncture, & she had regular physio until it was better. Look up some yoga positions online to stretch your muscles. Get a small hard ball or use the corner of a table to put pressure on your buttock on your sore side. Aim for the area that would be the centre of your back pocket if you were wearing jeans, & wriggle around. The point you’re aiming for is called GB-30, & is good for your condition & sciatica. It might hurt more before it gets better. 🙄

Scrumbler
Scrumbler
in reply to BadHare

Thanks BadHare. I was considering acupuncture so I think I’ll go for it and do what you suggest.

Not looking forward to it getting worse before it gets better - but no gain without pain 🥴

BadHare
BadHare
in reply to Scrumbler

Go to a real one rather than a physio. You may have a local community clinic which is cheaper. Look up ACMAC or BAcC.

Scrumbler
Scrumbler
in reply to BadHare

Thanks for that advice BadHare. Have had acupuncture before with success. Then I looked up BAcC.

Thank you

Hi, I have suffered from what I believe is piriformis syndrome for the past 15 yrs. Chronic sciatica both legs 24/7, exacerbated especially when sitting, laying on my side.I have been under several hospitals and have had the best acupuncture at the British Acupuncture Society at Gt Ormond St in London, physio, hypnotherapy, the list is endless. I take oramorph, gabapentin, amitriptylene, etc. I’ve tried everything Tens, cold and heat therapy, mindfulness, stretching, etc. .Sadly, I have read that the only true method of diagnosis is by having what is known as an MRN scan. I asked if my pain clinic could refer me to a London hospital that could do such a scan (there are only very few hospitals in the UK that can perform this. My local pain Consultant said “there is no such thing as piriformis syndrome” and that I should come to terms this is my life and accept it with chronic pain, nothing will ever change. He said pain is a disease. I do believe that they have caused my centralised sensitisation phenomena by prescribing opioid medication which I have been taking for 15yrs instead of correctly diagnosing the cause in the first place (piriformis) it was too easy for them just to dish out painklllers, now my brain pain messages will not turn off. I am seriously thinking of visiting the USA and having an MRN scan there but cannot afford it. I would love to Go back to that Consultant to tell him he is wrong. In the US they can perform surgery to alleviate the symptoms. It seems the UK are behind as always. I hope things work out for you. I find it best to keep moving little and often. Swimming helps a little also, resting makes it worst for me. Hypnotherapy is my best relaxation tool. I know how you are truly feeling, if you do end up on the strongest painkillers try not to stay on them for always. Good luck.

Thank you my friend. I am so sick of medics and so called experts. They are a bigger pain in a*se than Piriformis.

I’ve never heard of MRN scan. Will enquire. Some orthopaedists in UK do surgery where there is perineal or femoral nerve entrapment.

Cannot lie on my back either. Both legs numb. Off balance. Under a neurologist who tells me the Piriformis pain doesn’t fit my clinical picture. I know that 😡😡. It’s separate but it still damned well hurts.

Wishing you well and thanks for your response.

Do you mean MRI scan?

It is a MRN, similar to MRI except it shows nerves which an MRI doesn’t. I think it is called Magnetic Resonance Imaging. Spoke to a person in the know and apparently they place a magnetic blanket over the pelvis and legs before going into the machine? There are a great number of people who suffer from sciatica whose spines are in line perfectly healthy, but the medical profession in this country do not investigate the piriformis may be the cause?

Thank you.

I think some orthopaedists recognise and treat it .... but it’s finding one 🙁

No. MRI doesn’t show Piriformis. Milkbottles tells me it’s MRN scan and hard to find hospital that does it.

Hi, I can sympathise because I've currently got a flare. I cannot stand, sit or lay down for any length of time. The damp and cold make it much worse and rheumatism runs in the family.

I also have spinal issues and await dexa scan results. My feet and shoes make it worse too. I find it near impossible to find good shoes. And am fuming at the god awful time I had with podiatrists.

Not sure what to suggest as I'm not in good place with it either. But I wish you well.

I'm going to have a MRI so hopefully it will show what's wrong. Except I never have anything clear cut and I don't have any faith in Consultants.

I do hope you feel better soon 👍. I have osteoporosis but not sure there’s a connection. Take care

I feel there is a connection, no idea about the science of it though.

Hi I find massage very helpful. I'm in chronic pain from various conditions and I am very fortunate as I have a sports massage lady who comes to the house and helps me greatly with her treatment. I find that a good sports massage is very underrated. A good place to start is to to look for a massage therapist that works at a sports injury clinic .

Xxx

Thank you 😊

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