I need to vent my frustration with my constant complex of medical conditions causing severe insomnia.
No joke I wake up every hour in the dot if I'm lucky with the clonazepam working with other tablets I get two hours straight up?!! Wow?!!
It's driving me nuts it really is?!
The osteomalacia the sever bladder spasms constant loo duties!! Kidney pain and dialysis withdrawal symptoms!!
It's affecting my whole life. Family and marriage cod im so jittery frustrated and feeling trapped and useless cos I literally can't go out cos I can't walk and I can't even ride in any king on transport cos the pain sears right through me through the slights bump in the road or turning a corner?!!
I'm at my wits end but still I but in a brace face cos I know even my family to be burdened with constantly with all my complex medical and emotional condition!!
No matter how tearful depressed or exhausted I may be I still try to hold my head up high and preserver against duck travesty!!
Staying strong 💪🏾 and focussed 👀as much as I can.
And I emphasise greatly in many of these people who post on here and urge then to to stay in the light as much as possible and try not to be swallowed by the darkness that tried to suffocate us and prevent us front living the best way we can regardless of whatever physical psychological or emotional pain suffering or trauma we have to endure!!
Peace ✌🏾 to you all 💜
Sakinah 🌹
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sakinah111
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Hi Sakinah, my name is Sue and I can't remember the last time I had more then an hour or two of undisturbed sleep 😴 9 times out of 10 I am awake all night and I have short naps during the day. This is the ideal place to come on and vent, let out all your frustrations and pain we all understand what your going through. I would consider letting your family know how much this is effecting you as putting a brave face on can make you feel worse.
Hope it helps to know that we're all here for you.
Hi there i have the same issues with sleep due to pain etc.
Have you looked at doing the 90minute sleep cycle. It might help. Its being used by lots of sports people. So footballers playing at different times through the season. Its to regulate and give you enough sleep through out the day.
Its based on 4 sleeps of around 90mins
Over a 24 hour period. There is a certain stigma attached to sleeping at night. And getting the 8 hours required.
This is not possible for most with chronic pain . So why not try something different. If i dont get a night sleep i have no issues topping up through out the day. I used to however struggle with other peoples perceptions of me doing this. Thinking i was lazy , idol etc
Now i know that this is their issue not mine. If it makes me feel better i will do it. If their small mindedness cant understsand tough.
Listen to your body it will tell you what works. I sleep when required .
It is all about understanding what works best. For me sleep is one of my triggers. So not enough leads to fatigue to pain to low mood to depression so i had to figure out a way to stop this at source. No one can manage properly on 2 or 3 hours over 24 hours. You body wont cope. I have looked at and studied many sleep studies. With chronic pain we will try everything and this works for me. And may help.
You aren't alone with the insomnia, it is a common side effect for those on dialysis. I usually am awake all night reading or on computer or watching movies 4-5 nights per week. It is what it is. You said you have dialysis withdrawals, may I ask what you mean by that? Thanks and Blessings
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CRPS is there anyone out there?
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