Unbearable

[Littlemole43]

Please help I can't take much more just cut my leg off

[NFDK]

Oh, Littlemole43

Can you see your Pain Clinic urgently? Tomorrow?

Wendy x

[Littlemole43 in reply to NFDK]

Not until the 6th but even then don't hold much hope I'm on morphine now what can they do ? x

[NFDK in reply to Littlemole43]

I don't know, love - everyone responds differently to meds and other kinds of pain management. Forgive me if you've answered this before, but have you tried Lyrica (Pregabalin)? It led me out of HELL - and as I'm sure you can understand, I am not being over-dramatic when I say that. I also take Cymbalta (Duloxetine) and this works in a different way, taking off another edge of the pain. Now, these are not perfect meds - what meds are? I had trouble with the Lyrica at the maximum dose of 600mg, so I went down to a much more manageable 400mg and started with Cymbalta also, slowly increasing it over a good few months until I was on the maximum dose. I have heard that Cymbalta is hell on earth to withdraw from, but I'm pretty sure I will be on it permanently anyway. However - I am not a doctor and everyone is different. I can only tell you what helped me and also offer you my loving support. Personally speaking, I worry about amputation in CRPS sufferers, as I cannot see how it could possibly work in our case. We would most likely, I believe, end up with excruciating phantom limb pain. This is just my opinion, however. Hope you can maybe get your appointment brought forward. How about ringing the clinic and saying you'll take any cancellations they might have? Just a suggestion. With very best wishes, Wendy x

[Littlemole43 in reply to NFDK]

My appointment has been brought forward by a week the 6th of December x

[NFDK in reply to Littlemole43]

Ah, I see. Sorry x

[cathy1110 in reply to NFDK]

Hi i dont know what you have but they dignoise me with fiho but i the same could cut my legs off with the pain

[Sazntef]

Don't ask my husband to do it, keeps refusing to amputate my leg, back, hands, foot and head.

Please stick with it, there is help out there and there is support here. call you gp and keep getting referred until someone can get you on the road to health. It can get distressing but come here to rant, complain, talk or have a laugh as you need. Keep trying those alternative therapies and go see your pain clinic.

Hugs

Sarah

[Littlemole43 in reply to Sazntef]

When I contact my doctor is get the impression that I'm she is fed up with me , she kept upping my morphine dosse , I started on 10mg twice a day I'm now on 80mg twice a day , I tell her I'm in so much pain still and all she tells me is she is concerned that I'm addicted to it and I have to now drop down to 60mg twice a day it's new guide lines " apparently ".

I feel so alone sometimes , I can't go out on my own anymore it's too much , the last time I went out on my own in was in agony for days . I get the feeling my doctor doesn't care how much pain I'm in .

😢😭Littlemole43 .

[cathy1110]

What is it you been dognoise with please

[Littlemole43 in reply to cathy1110]

Crps .

[cathy1110]

O i just read up on that the way it decribes the pain is the way i am i have fibo but i put a post on that with pain could cut my legs off that pain full i got reponce and they said they have cprs i soory to hear you have this

[Littlemole43]

You know I'm feeling it's just so unbearable I feel like I'm developing taretts I just shout out and swear I can't help it 😢😭

[cathy1110 in reply to Littlemole43]

Thankyou

[slsn71 in reply to Littlemole43]

Im sorry you have this horrible condition my daughter has crps since april in her right knee and ankle she also says she wamts her leg cut off shes 14 my heart goes out to you as i have a small underatanding what you are going through x

[cathy1110]

My pain is the same crps but i have like me side of fibo do you have that with crps

[Littlemole43]

I've not been tested but could be possible