Spinal cord stimulator

[Haylou]

So I've been diagnosed with CRPS for the last year. This month I finally met with a consultant who wanted to get right now to treatment. I'd already tried most other treatments and was referred to a consultant at St Thomas London for a spinal cord stimulator. Despite many doctors being concerned that I was too young for the procedure (I'm 21) I received the trail last Sunday, not even two weeks after first meeting my new consultant. After having a follow up yesterday we both agreed that the treatment had worked beyond our hopes. Although I have had excruciating back pain (which settled down after a few days) from the procedure it has been worth it. I am now due to have the full implant on Sunday and I am so excited to be able to move on with my life and act like my age.

I hope many others in my situation receive this same great care and have the same positive outcome. 😊

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Have known several people with good results, thanks for your comments

[g3b1gk7]

That's Awesome Haylou!

[Pollyerrington]

Hi, how are you getting on now? Still good? They want to send me for an implant. I have CRPS in my left foot. I want to play netball again...

What is your life like now? Is there anything you can't do?

Thanks x

[Haylou in reply to Pollyerrington]

Hi

I hope you are doing ok. The spinal cord stimulator has given me a greater quality of life however there are a few restrictions. For example if you ever wanted to go skiing, horse riding or on a big roller coaster it is not advisable as it increases the risk of parts of the implant fracturing. Before having the surgery I was unable to live like people my age I couldn't go to work, had to drop out of university, I couldn't prepare my own meals and on some days I couldn't even get dressed or wash my hair. Now I am able to but I also now get occasional back pain on top occasional flare ups.

However I am back training as a chef as have been doing so for two months so it is possible to have an active lifestyle post spinal cord stimulator.

Hope this helps

X